Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gi In Ontario, Canada


sore joints

Recommended Posts

sore joints Apprentice

Good morning!

Does anyone know of any GIs in Ontario that support Enterolab test results? I'm waiting to get in to one and the wait is a year and I'm worried that after such I long wait I'm just going to find out that the doctor doesn't believe in a positive test result from Enterolab. Any experience with this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesscarmel Enthusiast
Good morning!

Does anyone know of any GIs in Ontario that support Enterolab test results? I'm waiting to get in to one and the wait is a year and I'm worried that after such I long wait I'm just going to find out that the doctor doesn't believe in a positive test result from Enterolab. Any experience with this?

im not sure about the enterolab piece but my dad recently went to gi for celiac who he really liked....maybe you alrady have one but you are specifically looking for one who will validate the enterolab. i believe the dr is in toronto.

JEss

celiacgirls Apprentice

You could try asking Enterolab if there is a doctor in the area who uses them. That is how I found my GI here.

lorka150 Collaborator

hey sore joints,

where are you from? i am not sure if he supports enterolab, but my GI is excellent, and i never have had to wait long for an appointment. everyone loves him. my internist is also a gem.

another option would be to try to get in at mcmaster. they have an abundance of great doctors there.

Suzie-GFfamily Apprentice

A year seems like a really long wait to get in to see a specialist. I can understand your concerns. I wonder if there is any way to get in earlier??

I was considering the Enterolab route for my family back in the spring, especially for my children because their wait time to see a specialist was longer than mine. The Enterolab tests would have been quick and non-invasive- both good reasons to consider that route.

I attended the celiac assoc meeting in Mississauga in May. One session was a question & answer session- they asked people to submit their questions in writing on Sat and the professional advisory board (PAB) answered them in the Q&A session on Sun. I asked what their opinion was regarding the fecal stool testing preformed by Enterolab. The professional advisory board of the Canadian Celiac Assoc advised caution when using test labs on the internet. They didn't say much specifically about Enterolab, only that some people in the Ottawa area had run into trouble relying on the Enterolab results. Again, no specifics about what the problems were. They certainly did not endorse Enterolab.

This position is probably not very surprising because the only research in peer-reviewed medical journals related to fecal fat testing using a single stool sample (ie the quantitative fecal fat microscopy testing) has been done by Dr. Fine (as far as I know). It seems that the 72-hr stool test for malabsorption is well-accepted- just not very practical. The other testing- such as measuring antibodies in stool, eg tTG, is also not widely studied. I did see an Italian study from 2002 that measured anti-EMA antibodies in stool samples and suggested this could be useful for diagnosis.

I expect it will take a number of years for things to change- research by other GI's who are not associated with Enterolab would be beneficial. If additional groups found similar results that support Dr. Fine's research, than there might be greater acceptance of this new testing method. If other researchers didn't find supporting evidence for this method, than it is unlikely that this testing will be accepted by the medical community.

However, what the medical community endorses or doesn't endorse is not the most important thing. How do you feel? Is the gluten-free diet making any difference to your symptoms?

Suzie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,015
    • Most Online (within 30 mins)
      7,748

    Rockette47
    Newest Member
    Rockette47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.