Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Careful Do You Really Need To Be ?

Mamato2boys

By Mamato2boys
in Coping with Celiac Disease

Recommended Posts

Mamato2boys Contributor
Mamato2boys
Posted

As I've mention in my other post, we're pretty new to this. :) I see a lot of you talking about avoiding products such as shampoos, play-doh, etc. that have gluten in them. I read on here that getting glutened through skin contact is pretty rare, but it seems many, if not most of you avoid even skin contact. Is this something that's common enough that I should have my son avoid gluten-containing non-edicble products like shampoo ? He also has eczema and it seems the only shampoo/body wash that didn't bother him was Aveeno, which is made from oats. Should I look for something else ? He's about to turn 3, so one of his favorite things in daycare is play-doh...they also paint quite a bit too. :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

The reason most of us avoid those things is because most things eventually make it into your mouth, especially if you're 3!!! I know I still routinely get shampoo in my mouth. I know I can still smell it on my hair after it's rinsed, so I wouldn't want to touch it then eat something if my shampoo had gluten.

I don't know about you, but I know what playdough tastes like :blink: Apparently it made it into my mouth at one time in my life!!! :lol:

It's very possible that his excema will clear up when he's gluten-free for a while. My rashes are just starting to go away.

Personally, I do not use anything with gluten, and I don't usually touch anything with gluten, just to be safe. It is poison for me, and I know I wouldn't wash my hair or body in, or play with poison. I'm not exaggerating, with gluten my reactions last 8 days from a slight crumb ... I'd bet a slight crumb of rat poison would not make me ill for quite that long (not that I'm willing to test my theory!!!).

VydorScope Proficient
VydorScope
Posted
As I've mention in my other post, we're pretty new to this. :) I see a lot of you talking about avoiding products such as shampoos, play-doh, etc. that have gluten in them. I read on here that getting glutened through skin contact is pretty rare, but it seems many, if not most of you avoid even skin contact. Is this something that's common enough that I should have my son avoid gluten-containing non-edicble products like shampoo ? He also has eczema and it seems the only shampoo/body wash that didn't bother him was Aveeno, which is made from oats. Should I look for something else ? He's about to turn 3, so one of his favorite things in daycare is play-doh...they also paint quite a bit too. :unsure:

As for playdough, you can get gluten-free playdough from Discount School Supply that works just like he real thing.

ALL KIDS, ESPLY BOYS will eat some playdough at some point. Plus it gets everywhere, in every crack it can find, eplsy places like under finger nails.

As for the rest... you boy is 3... is there anything he does not put in his mouth? I caught mine several times drink from the dogs water! :lol::angry::lol:

We aviod all known/knowable sources of gluten at all times. It only makes sense, think about it this way... how much battery acid do you want on your skin/in your mouth? Sounds extreme, but it realy does help to think of it that way.

Mamato2boys Contributor
Mamato2boys
Posted
  • Author
As for the rest... you boy is 3... is there anything he does not put in his mouth? I caught mine several times drink from the dogs water! :lol::angry::lol:

:lol:

His favorite snack for a while was the cat's food. :blink:

I hope you guys didn't think I was being critical... :( I was just unsure how far I really need to go with this. Anybody have any good suggestions for a mild shampoo/body wash that's safe ?

VydorScope Proficient
VydorScope
Posted
:lol:

His favorite snack for a while was the cat's food. :blink:

I hope you guys didn't think I was being critical... :( I was just unsure how far I really need to go with this. Anybody have any good suggestions for a mild shampoo/body wash that's safe ?

Critical? I did not get that at all from your post... maybe I need more coffee :lol:

My wife using one called Baby Magic or somthing like that on my son. Sorry, but she is the clean one. :lol:

Gluten Free Playdough:

FIVE AND HALF POUND BUCKET : Open Original Shared Link

Works great. You could make your own, some here do.. I have... this stuff worked better for us. :)

celiacgirls Apprentice
celiacgirls
Posted

I avoid shampoo and hair products with gluten because it makes me itchy to use them. I don't know if this is a secondary allergy or if it is still gluten intolerance. I always had an itchy head until I discovered my gluten problem and avoided it in shampoo. Because of that, I now avoid it in all of our skincare products.

I think you should talk to the preschool about their art supplies. I've never looked into this because my girls have not seemed to have problems yet. This is their first year at school to need to be gluten-free. They are older so they (hopefully) understand the need to wash their hands thoroughly afterwards and to keep their hands out of their mouths. They only have art once per week. I know this is not the ideal situation. I think many of the things they will have will already by gluten-free or they can use a readily available brand. For play dough, I think some moms make gluten-free playdough for the whole class.

Mamato2boys Contributor
Mamato2boys
Posted
  • Author
My wife using one called Baby Magic or somthing like that on my son. Sorry, but she is the clean one. :lol:

Gluten Free Playdough:

FIVE AND HALF POUND BUCKET : Open Original Shared Link

Works great. You could make your own, some here do.. I have... this stuff worked better for us. :)

Thanks so much for that ! I saved it in my favorites and will talk to the daycare about it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Matilda Enthusiast
Matilda
Posted

..

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,021
    • Most Online (within 30 mins)
      7,748
    Jen Arch
    Newest Member
    Jen Arch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Diana Swales
      Recently qualified Nutritionist looking for support

      By Diana Swales · Posted

      After years of living with Celiac Disease, learning through every bump and breakthrough, and guiding others through the gluten-free maze — I've officially qualified as a **Nutrition Coach** with Precision Nutrition. Now I’m ready to take this journey deeper… but I need your help. To complete my final certification hours, I’m offering **a limited number of FREE spots** (yes, completely free!) to work with me over the next few weeks. I’m looking for **5 people** who: Are newly diagnosed with Celiac Disease or gluten-intolerant Feel overwhelmed, confused, or frustrated with food Want support from someone who truly understands Are ready to build confidence and calm in their daily eating We’ll work together on what matters to *you*: Your food choices Your mindset Your kitchen habits Your ability to speak up for your needs This isn’t just about avoiding gluten — it’s about reclaiming ease, joy, and nourishment. If you're interested, comment below or DM me the word **"Ready"** and I’ll send you the info to get started. Let’s make food feel safe again. With care, **Diana**
    • Dora77
      Possible cross-contamination – concerned about symptoms

      By Dora77 · Posted

      Hi everyone, I have celiac disease and I’m asymptomatic, which makes things more stressful because I don’t know when I’ve been glutened. That’s why I try to be really careful with cross-contamination. For almost a year, I’ve been having yellow/orange floating stools consistently. I’m not sure if it’s related to gluten exposure or something else going on. I’ve been trying to identify any possible mistakes in my routine. Today, I made myself some gluten-free bread with cheese. Normally, I’m very careful: I use one hand to handle the cheese packaging (which could be contaminated, since it’s from the supermarket and was probably sitting on a checkout belt that had flour residue), and the other hand to touch my gluten-free bread and plate. But today I accidentally touched the bread with the same hand I used to grab the cheese pack from the fridge. The fridge handle might also have traces of gluten since I live in a shared household where gluten is used. I’m worried this mistake could have contaminated my bread. There were no visible crumbs or flour, but I know even trace amounts can be a problem. Has anyone had similar experiences or symptoms from this level of contact? Could this kind of exposure be enough to trigger symptoms or cause intestinal damage? Thanks for reading.
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      So eight days in a row of gluten on top of gluten on top of gluten, I just had to resort to the EpiPen. I wish I could post a picture because you wouldn’t believe how enormous my gut is! It makes my head look like a pinhead.Ahhhgggsahhhhh!!!! I have discovered that I have to read the ingredients when I use a product up that I’ve been able to use without getting a reaction, because they can change the ingredients and bam my toothpaste now has gluten!!! my doctor told me gluten free means it has 20 ppm which someone with a severe a celiac as I’ve got that thing there kills me. I try to find certified gluten-free in everything. I can’t eat any oats unless it’s Bob’s red mill certified gluten-free. Good luck everybody this autoimmune disease is wicked wicked
    • Mswena
      Lubriderm-gluten-free?

      By Mswena · Posted

      I have been using a little bit of Lubriderm when I wash my hands because it’s the lotion offered at a place I frequent once a week. Assuming it was gluten-free I bought a bottle. I couldn’t figure out why I was getting gluten EVERY night. I use a little of the lotion in the morning on my neck, with no reaction, but at night, I use it on my arms and legs and face and get gluten gut pretty bad. After eight nights of having to have diphenhydramine injections for severe gluten, I googled “is Lubriderm gluten-free” and it led me to this forum. I am going to go back to olive oil as I have been gut sick sooooooo bad with a huge gut and pain eight days in a row now. Sick of feeling sick.
    • ShariW
      Latent celiac, need to go gluten free, advice on kitchen "reset?"

      By ShariW · Posted

      These look great!  I follow several people who frequently post gluten-free recipes online (plus they sell their cookbooks). "Gluten Free on a Shoestring" and "Erin's Meaningful Eats>"
×
×
  • Create New...