Enterolab Results

[Yenni]

These are my test results. I can see I am intolerant to Casein/milk and Gluten.

What about the soy? I have a feeling my body do not like soy..so I am wondering if I should skip soy too? Do they recommend not to eat any egg, soy, yeast for a year even if they are negative?

Can anyone say anything about the gene I have? Did I have one or two..?

Sorry. That text is very rich to me and I know you are all so good with this stuff. I was hoping someone could tell me in plain english. (English is also my second language.)

Thanks!!

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 12 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 102 Units (Normal Range <300 Units)

Fecal anti-casein (cow’s milk) IgA antibody 11 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0201

HLA-DQB1 Molecular analysis, Allele 2 0502

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,5)

C) Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal anti-ovalbumin (chicken egg) IgA antibody 6 Units (Normal Range <10 Units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 6 Units (Normal Range <10 Units)

Fecal Anti-Soy IgA 9 Units (Normal Range <10 Units)

Interpretation of Fecal Antigliadin IgA: Intestinal antigliadin IgA antibody was elevated, indicating that you have active dietary gluten sensitivity. For optimal health, resolution of symptoms (if you have them), and prevention of small intestinal damage and malnutrition, osteoporosis, and damage to other tissues (like nerves, brain, joints, muscles, thyroid, pancreas, other glands, skin, liver, spleen, among others), it is recommended that you follow a strict and permanent gluten free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well.

Interpretation of Fecal Antitissue Transglutaminase IgA: The level of intestinal IgA antibodies to the human enzyme tissue transglutaminase was below the upper limit of normal, and hence, there is no evidence of a gluten-induced autoimmune reaction.

Interpretation of Quantitative Microscopic Fecal Fat Score: A fecal fat score less than 300 indicates there is no malabsorbed dietary fat in stool indicating that digestion and absorption of nutrients is currently normal.

Interpretation of Fecal anti-casein (cow’s milk) IgA antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Interpretation Of HLA-DQ Testing: HLA gene analysis reveals that you have one of the main genes that predisposes to gluten sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. Each of your offspring has a 50% chance of receiving this gene from you, and at least one of your parents passed it to you. You also have a non-celiac gene predisposing to gluten sensitivity (DQ1 or DQ3 not subtype 8). Having one celiac gene and one gluten sensitive gene, means that each of your parents, and all of your children (if you have them) will possess at least one copy of a gluten sensitive gene. Having two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and the resultant immunologic gluten sensitivity or celiac disease may be more severe.

Interpretation of Fecal anti-ovalbumin (chicken egg) IgA antibody: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Interpretation of Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

Interpretation of Fecal Anti-Soy IgA: Levels of fecal IgA antibody to a food antigen greater than or equal to 10 are indicative of an immune reaction, and hence immunologic “sensitivity” to that food. For any elevated fecal antibody level, it is recommended to remove that food from your diet. Values less than 10 indicate there currently is minimal or no reaction to that food and hence, no direct evidence of food sensitivity to that specific food. However, because 1 in 500 people cannot make IgA at all, and rarely, some people can still have clinically significant reactions to a food antigen despite the lack of a significant antibody reaction (because the reactions primarily involve T cells), if you have an immune syndrome or symptoms associated with food sensitivity, it is recommended that you try a strict removal of suspect foods from your diet for up to 12 months despite a negative test.

[CarlaB]

Basically, you are sensitive to both gluten and casein, but have no autoimmune reaction (you are the high end of normal). You have one celiac gene and one gluten intolerant gene.

The rest of the things you were tested for were negative. Your soy was at the upper limit of normal, so you could stay off it for a while, then later consume some for a test and see how it goes.

[Yenni]

Basically, you are sensitive to both gluten and casein, but have no autoimmune reaction (you are the high end of normal). You have one celiac gene and one gluten intolerant gene.

The rest of the things you were tested for were negative. Your soy was at the upper limit of normal, so you could stay off it for a while, then later consume some for a test and see how it goes.

Thanks so much!

[AndreaB]

My children tested at 9 with soy through enterolab. I just had allergy testing done for them. Should find out about that in a couple weeks. It was IgG testing, so I should say intolerance testing. I have the whole family soy free since my husband and I tested over 10 with enterolab. I tested moderately intolerant (IgG) through the ELISA test.

I would cut out all soy for at least 6 months and then if you consume any make sure it is minimal. Soy can damage the intestines too.

[Yenni]

I think I have a problem with soy. I got some soy into my system on Saturday and my stomach is bad today.

I know I feel nasty after drinking soy milk. I am gonna cut ot out and see what happend later.

What do you do with "butter" on a sandwich? Sems so much of that stuff has soy in it?

Thanks for the input Andrea.

So am I a celiac or a non celiac with those genes??

Can I maybe eat milk later when I have healed or is this for ever too?

[CarlaB]

With Enterolab you cannot tell definitively if you are celiac or not. Your absorption was good, so you may not have much intestinal damage. Celiac by definition is that they took a biopsy and it was positive. The rest of us are gluten intolerant because we haven't fit the definition (it's semantics). You do carry the celiac gene. Sometimes I say I'm celiac, others I'm gluten itolerant.

The natural butters don't have soy and they're better for you.

Casein intolerance is forever, sorry ...

[Yenni]

With Enterolab you cannot tell definitively if you are celiac or not. Your absorption was good, so you may not have much intestinal damage. Celiac by definition is that they took a biopsy and it was positive. The rest of us are gluten intolerant because we haven't fit the definition (it's semantics). You do carry the celiac gene. Sometimes I say I'm celiac, others I'm gluten itolerant.

The natural butters don't have soy and they're better for you.

Casein intolerance is forever, sorry ...

And they are casein free too then? Can you recommend a brand? I feel so lost about this. Would be great to get something to just look for.

I have been off gluten for 4-5 months now so I guess I might have healed some too. I have had a very long 4,5 years. I have been so sick. I feel today, when I got my results..well it is a big day. I finally know what it is, I got the power back, I know I can get better, I know I am not insane. I have seen so many doctors. It is a great day, and in some ways sad too, but mostly a very good day.

I will miss cheese....

[CarlaB]

Many of us around here have had a rough few years ... you're certainly not alone there! I'm still struggling with my health myself!

I just buy Kroger brand natural peanut butter. I also buy natural almond butter, it's so expensive, just whatever brand is least expensive -- I can't have peanuts. Just read the label, it should be nuts and salt.

I know how you feel having verification that you are not crazy!!!

[Yenni]

Many of us around here have had a rough few years ... you're certainly not alone there! I'm still struggling with my health myself!

I just buy Kroger brand natural peanut butter. I also buy natural almond butter, it's so expensive, just whatever brand is least expensive -- I can't have peanuts. Just read the label, it should be nuts and salt.

I know how you feel having verification that you are not crazy!!!

The fact that I am allergic to nuts/almonds, stone fruits and pears do not make this easier.

I used to be able to eat peanuts (which is a bean). I am gonna try it again. I felt sick from eating it a couple of years ago, but it could have been something else.

I am a nutritionally challenged person. I have problems with chemichals and stuff too (beauty products, detergents..). Some times I wonder what is left to eat?? But I know there is lots. It just needs to get figured out.

Luckely I have the most supportive and wonderful husband to help me. He is actually the one that started investigating trhe gluten intolerance thing.

Yeah, it feels so great to know your sane.

Thanks Carla!

[AndreaB]

What do you do with "butter" on a sandwich? Sems so much of that stuff has soy in it?

You could use plain coconut oil for butter or I have a recipe in the link I'll post below. I buy spectrum (I think that's it) canola mayonnaise. It's pretty good if you don't want to make your own. If you aren't ok with eggs then I have nut mayonnaise recipes.

I you don't do well with soy, I would definately leave it out. I'll try to keep in mind letting you know what my kids allergy/intolerance test reveals. We've been soy free since February. I'm thinking they would test low intolerant to midline moderate intolerant to soy since they were at 9 with enterolab.

The fact that I am allergic to nuts/almonds, stone fruits and pears do not make this easier.

I used to be able to eat peanuts (which is a bean). I am gonna try it again. I felt sick from eating it a couple of years ago, but it could have been something else.

Peanuts are related to soybeans so you want to be careful with those. Don't eat too much of it.

Have you had any other testing done to see if anything else is going on in addition to gluten intolerance?

[Yenni]

I was tested for allergies as a kid. It showed I am allergic to birch pollen, nuts, stone fruits. Pears I have figured out on my own.

I have been on regular doctors visits and they showed all of my blood stuff is okay.

I did a endoscopi 1993 and that showed nothing but they checked only because of sever heart burn.

My mom gets skin reactions to chemical sun blockers, nickel and latex. And some perfumes/detergens. I have noticed that I have started to react to the same stuff.

Is that what you mean with other stuff?

I haven't had much luck with doctors. They all just let me go home with my Protonix. Which didn't work all that well with my very sever heart burn anyways (the heart burn is almost gone now when I stopped with gluten). I asked my doctor about the Enterolab tests and they didnt wanna have anything to do with it at that office.

I saw a gastro specialist 2 years ago and he just left me hanging with possible gall bladder problems. It showed I had thicker "fluid" in it but no stones and I have never felt anything from it. Well, so they all just left me hanging.

Not sure where to turn now.

[AndreaB]

I just realized I didn't post that link.

Open Original Shared Link

It seems a lot of allergies are environmental. But could there be anything else like mercury toxicity (if you have amalgams). Just wondering, doesn't mean there is actually any other cause. My intolerances my doctor thinks is linked to my amalgams.

[Yenni]

I just realized I didn't post that link.

Open Original Shared Link

It seems a lot of allergies are environmental. But could there be anything else like mercury toxicity (if you have amalgams). Just wondering, doesn't mean there is actually any other cause. My intolerances my doctor thinks is linked to my amalgams.

Thanks for the link.

I don't have any amalgams so it can't be that.

I think this stuff runs in my family. My grandma had massive amounts of problems with her stomach and my aunt has problems too.

Mom seems to have some problems sometimes, but not enough to bother her.

Many of us around here have had a rough few years ... you're certainly not alone there! I'm still struggling with my health myself!

What stuff are you struggling with? I seem to have this tired feeling that I can't get rid of. Lots of things have changed already from not eating gluten, but I still feel I have a long way to go before I can feel normal again.

I still have slight diarrea too every day.

I also feel I am more worried that I used to be, feeling down. Like I am not me.

Nausea too.

[tarnalberry]

If soy bothers you, then I'd say to avoid it. At least give it a good test.

[CarlaB]

What stuff are you struggling with? I seem to have this tired feeling that I can't get rid of. Lots of things have changed already from not eating gluten, but I still feel I have a long way to go before I can feel normal again.

I still have slight diarrea too every day.

I also feel I am more worried that I used to be, feeling down. Like I am not me.

Nausea too.

I have adrenal fatigue, or adrenal burnout. I was under a lot of stress in addition to the inflammation from this illness, and it just wore out my system. So, I'm on a special diet and supplements. I'm getting better, but it's a very slow process. Google it, some of the suggestions would help anyone who's struggling to heal. I think most people in our society suffer from this at some level, which is why we're so dependent on sugar and caffeine to keep us going!

There is a book I've read that I really liked, Tired of Being Tired by Jesse Lynn Hanley, MD.

[Yenni]

I have adrenal fatigue, or adrenal burnout. I was under a lot of stress in addition to the inflammation from this illness, and it just wore out my system. So, I'm on a special diet and supplements. I'm getting better, but it's a very slow process. Google it, some of the suggestions would help anyone who's struggling to heal. I think most people in our society suffer from this at some level, which is why we're so dependent on sugar and caffeine to keep us going!

There is a book I've read that I really liked, Tired of Being Tired by Jesse Lynn Hanley, MD.

I will have to check that book out and Google that adrenal fatigue.