Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Okay, Now I've Just Been Careless


eleep

Recommended Posts

eleep Enthusiast

Well, I ate a piece of eel sushi -- wasn't thinking. First time eating out in 4 months -- at a place with confirmed packets of gluten-free soy sauce, where they were great with my Triumph card and everything, but I'm pretty sure this eel wasn't "safe" -- and I, stupidly, didn't question it or do any research before I ordered. I guess I just got overenthusiastic or something -- I've been terribly relaxed and happy lately (acupuncture has been working wonders) and my guard was a little down, I guess.

How could I have not checked up on the eel before I went out and ordered it? I'm a cook -- how could I not have been aware of the possibility of wheat-containing soy sauce in the eel? I've been so cautious and haven't been glutened since May except for one episode of cc:ing.

I was just falling in love with feeling healthy!

eleep


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kody Rookie

why'd you do that? :angry:

just kidding... that really sucks tho. I'm constantly afraid that I'll accidently gluten myself. It sucks. <_<

gfp Enthusiast

I don't know what it is this week but you are not alone!

I did exactly the same thing as you over a juicy set of pork ribs ... even my friend who was with me said I was stupid and did everything he could to stop me ... although I was already glutened elsewhere through a roast chicken.....

I don't know if its something in the water or what but we all seem to be acting rather strange this week!

Guest nini

me... I ate m&m's at a baby shower out of a bowl that was RIGHT NEXT TO the bread and spinach dip and of course I'm sure there were crumbs in it... I spent most of the night in the bathroom and am still in pain, why oh why... I even saw people getting their bread and spinach dip with their fingers and THEN putting their fingers in the m&m bowl... why was I so careless? I was starving, that's why...

eKatherine Apprentice

It contains soy sauce, mirin (sweet rice wine), and sugar. The good news is that next time you can make some up to bring with you in a little squirt bottle.

loraleena Contributor

My boyfriend is Japanese and he says that eel is always marinated in a sauce (unsafe usually). He said it is really hard to find unmarinated eel, except in certain markets in Japan.

eKatherine Apprentice

I know I've bought unseasoned frozen eel, but I think it was a Chinese brand. I've never read the label on the Japanese ones.

Of course you could buy a whole live eel, the season's coming up. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mahee34 Enthusiast

no worries...you aren't alone, i can't tell you the amount of times i've just grabbed something quick forgetting and either JUST caught myself before biting a pretzel or spit it out...not that that helps...it's hard to remember and be careful all the time, but hey at least you're eating out!!! I won't even do that anymore. hope you feel ok!

eleep Enthusiast
Of course you could buy a whole live eel, the season's coming up. :blink:

Actually, that sounds like fun to me, but I'm kind of an adventure-freak when I'm not feeling ill! I think I might need a friend to help me wrangle it, though.

I honestly can't tell whether I'm having/will have/have had a reaction to that eel last night or not -- I did take charcoal about an hour after leaving the restaurant and had some insomnia last night, but today has mostly been a good, solid-feeling day. I have been kind of worried, but I've got a lot of stuff to worry about these days, and it hasn't been overwhelming. Dunno. It could also be that my body's done a lot of healing between the quitting smoking and the acupuncture so the reactions aren't as strong. Or, I could just be feeling the calm before the storm -- come to think of it, I have been a bit gassy for the past hour or so...........

eleep

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,217
    • Most Online (within 30 mins)
      7,748

    Sutto
    Newest Member
    Sutto
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.