Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help...


linds

Recommended Posts

linds Apprentice

I am having a great deal of trouble actually gaining weight. I know I have been told over and over that it takes time to put on weight. but i am under 95lbs now. and my pants which are a size zero are falling off of me. Everyone else seems to think i should be greatful to be skinny but when i am buying skirts that are a size 10-12 in little girls when i am 21. i feel its definately time to put on weight no matter how i have to do it. any ideas would be great. thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Drama-Queen Rookie

Question is how long has it taken for you to get diagnosed? How long have you been gluten-free? I am now going on 2 months of being gluten-free and I am still losing weight, lost 26 pound in 2 months and am still losing. My doctor says it takes 6 months to a year for your intestine to start working properly again and actually absorbing what you take in. Talk to your doctor about your concern.....maybe they can help you, also look at how much vitamins and fiber you are taking in.....I am actually overdoing the amount of vitamins I get in my food. This is helping my energy at least. I have lost alot of bone density and alot of muscle according to my doctor.

Main conern, how much of it is muscle that you are losing? How much of it is bone density? and How much is fat? Is there another underlying condition that has made your weight so low?

Excellent questions for the doc and dietician.....

Don't despair...you are not unusual.

:unsure::(

Hang in there :)

  • 2 weeks later...
Robina Contributor
I am having a great deal of trouble actually gaining weight. I know I have been told over and over that it takes time to put on weight. but i am under 95lbs now. and my pants which are a size zero are falling off of me. Everyone else seems to think i should be greatful to be skinny but when i am buying skirts that are a size 10-12 in little girls when i am 21. i feel its definately time to put on weight no matter how i have to do it. any ideas would be great. thanks.

Okay... I'm a personal trainer... not a nutritionist... but... I did go through nutritional training when getting certified... and I have worked with many exerienced nutritionists past/present... so... a few thoughts...

Supplement your diet with protein shakes... this will help preserve lean muscle tissue... I have tried allllllll sorts of shakes... and the best, most natural and nutritious ones that are gluten free that I have found come from Open Original Shared Link plus they taste fantastic (I use the egg white protein shakes w/ Almond milk bc I'm trying to cut out dairy). Now when I say supplement your diet with these... I do not mean replace... I mean add to...

Also... try getting on a good resistance training program (weights or machines)... if you're already doing this... change it up... your body gets used to what you're doing very fast... and if you're doing any cardio... keep doing it for the cardiovascular benefits but do less of it... e.g. 20 minutes 4 times per week instead of 30 minutes a day...

PM me and we can talk about your current diet and exercise so I can try to help you make some changes... I normally charge for this sort of stuff since that is my business... but... I have no problem giving some advice here and there for free as long as people don't take advantage of me... know what I mean?

CarlaB Enthusiast

Look at the big picture -- how to get healthy again, rather than just gaining weight. Eat several small meals per day (some can be protein shakes), and be sure to include protein in each meal. Also focus on veggies. Eliminate sugar, alcohol and caffeine. Get lots of rest. This will enable your body to have the energy it needs to heal. As you heal, you should gain weight.

Also, when you exercise, don't push it right now. Weight training or some other strengthening exercise (even pilates or yoga), will help. Don't overdo it right now. If you put too much exercise on top of illness and stress, you risk fatiguing your adrenal glands ... this is what I did. I'm not saying exercise alone will do this, but once you fatigue the adrenals, then your exercise is very limited for a long time!

Again, make your whole lifestyle focused on getting healthy again and the weight will come. Don't just focus on the weight itself.

Robina Contributor
Look at the big picture -- how to get healthy again, rather than just gaining weight. Eat several small meals per day (some can be protein shakes), and be sure to include protein in each meal. Also focus on veggies. Eliminate sugar, alcohol and caffeine. Get lots of rest. This will enable your body to have the energy it needs to heal. As you heal, you should gain weight.

Also, when you exercise, don't push it right now. Weight training or some other strengthening exercise (even pilates or yoga), will help. Don't overdo it right now. If you put too much exercise on top of illness and stress, you risk fatiguing your adrenal glands ... this is what I did. I'm not saying exercise alone will do this, but once you fatigue the adrenals, then your exercise is very limited for a long time!

Again, make your whole lifestyle focused on getting healthy again and the weight will come. Don't just focus on the weight itself.

Couldn't have said it better Carla... except for the adrenal part... didn't even think about that...

CarlaB Enthusiast
Couldn't have said it better Carla... except for the adrenal part... didn't even think about that...

Thank you. I wish I could forget about the adrenal part!! I used to be really into fitness till about two months ago ... exercise was invigorating, when I was done I'd get a cup of coffee! What I was doing was stimulating my adrenals, and I didn't even know it. I have to say, between the illness and the excessive stress we've had in our lives, it was too much for me to handle. Since I've stopped working out, I've lost 5 pounds. I started doing some yoga (totally different for a weight-lifter!!!). I'm going to keep it up because it requires a lot more stregth than I thought it would and it's relaxing, which is helpful for the adrenals, but I was just thinking that this week I might start going to the gym for no more than 30 minutes, eat a while before I go, then eat again as soon as I return, that should help lower the release of cortisol so it doesn't put any stress on my adrenal glands ... it takes at least a year to recover from adrenal fatigue. It's been a very difficult process trying to recover from this.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.