Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Dairy Products


suzven

Recommended Posts

suzven Newbie

I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice
I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

The pills for lactose digestion might help if your problem is with the milk sugar lactose, but won't if your problem is with the protein casein. I definitely have an intolerance to the casein so can't have dairy in any instance. Years ago I tried lactaid milk and pills and they helped a little, but I still had problems and never knew why until I tested last year and found the casein intolerance.

CarlaB Enthusiast

I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

suzven Newbie
I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

I'm starting to consider an IV permanently hooked up to make my life easier... It's getting frustrating. Thanks for your help

tarnalberry Community Regular

We can't tell you if lactase (the enzyme that is the main 'ingredient' in lactaid pills/drops) will help because we can't tell if the problem you have is with lactose (the milk sugar) and not producing enough of the enzyme internally to break it down, or if the problem is an intolerance to casein (the milk protein) and your immune system reacting to that protein. The only way to know is to test it. Try drinking some milk (you want something with both lactose and casein) AND taking lactaid (you could just test with the full strenght, store-bought lactaid milk; it's a little sweeter than regular milk), and seeing how you react, then comparing it to a regular glass of milk.

suzven Newbie

you guys are all very helpful....I just joined this site figuring I'd try it out and it's great. I guess it's more trial and error. It just gets to the point that you start wondering if you're ever going to enjoy eating again.

Kody Rookie

I just recently started this diet and already feel like a different person... maybe I'd feel even better if I get off dairy too... at least for a while and see what happens.

Damn, I could be perfectly healthy if I lived off steak and apples. Maybe that's what I'll do. Never worry about food allergies again! :lol:

Oh, and lots and lots of vitamin/mineral supplements.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest laydirain

I'm lactose intolerant & have been for 17 years. Check this site out: Open Original Shared Link. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

eKatherine Apprentice
I'm lactose intolerant & have been for 17 years. Check this site out: Open Original Shared Link. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

When I was only lactose intolerant, the symptoms were bloating, gas, and diarrhea, but it wasn't too bad for me as long as I kept my consumption down and didn't consume milk on an empty stomach. After I became sensitive to casein, I started to get edema, and I just gave it up right then and there. No need to have old lady legs at my age.

happygirl Collaborator

Many people end up developing numerous food intolerances. Count me in the group. You also might want to try doing it first thing in the morning (so you haven't eaten anything else and you know its the milk/lactose/casein that is causing the reaction). It might be multiple foods, or may only be one. Good luck, and let us know what we can do.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748

    Barrie S
    Newest Member
    Barrie S
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.