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Celiac And Dairy Products

suzven

By suzven
in Food Intolerance & Leaky Gut

Recommended Posts

suzven Newbie
suzven
Posted

I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

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dlp252 Apprentice
dlp252
Posted
I was diagnosed with Celiac Disease 2 1/2 years ago and have done pretty well with my diet since. Now it seems I'm having major problems with dairy. I am going to try to cut out the dairy for a while because I've heard that there may be a link between Celiac and Dairy intollerance. I was just wondering if anyone has had this problem and if the pills for lactaid intollerance work or not.

The pills for lactose digestion might help if your problem is with the milk sugar lactose, but won't if your problem is with the protein casein. I definitely have an intolerance to the casein so can't have dairy in any instance. Years ago I tried lactaid milk and pills and they helped a little, but I still had problems and never knew why until I tested last year and found the casein intolerance.

CarlaB Enthusiast
CarlaB
Posted

I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

suzven Newbie
suzven
Posted
  • Author
I'm also casein intolerant. It's much like gluten intolerance in both the symptoms and the fact that it's permanent.

I'm starting to consider an IV permanently hooked up to make my life easier... It's getting frustrating. Thanks for your help

tarnalberry Community Regular
tarnalberry
Posted

We can't tell you if lactase (the enzyme that is the main 'ingredient' in lactaid pills/drops) will help because we can't tell if the problem you have is with lactose (the milk sugar) and not producing enough of the enzyme internally to break it down, or if the problem is an intolerance to casein (the milk protein) and your immune system reacting to that protein. The only way to know is to test it. Try drinking some milk (you want something with both lactose and casein) AND taking lactaid (you could just test with the full strenght, store-bought lactaid milk; it's a little sweeter than regular milk), and seeing how you react, then comparing it to a regular glass of milk.

suzven Newbie
suzven
Posted
  • Author

you guys are all very helpful....I just joined this site figuring I'd try it out and it's great. I guess it's more trial and error. It just gets to the point that you start wondering if you're ever going to enjoy eating again.

Kody Rookie
Kody
Posted

I just recently started this diet and already feel like a different person... maybe I'd feel even better if I get off dairy too... at least for a while and see what happens.

Damn, I could be perfectly healthy if I lived off steak and apples. Maybe that's what I'll do. Never worry about food allergies again! :lol:

Oh, and lots and lots of vitamin/mineral supplements.

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Guest laydirain
Guest laydirain
Posted

I'm lactose intolerant & have been for 17 years. Check this site out: Open Original Shared Link. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

eKatherine Apprentice
eKatherine
Posted
I'm lactose intolerant & have been for 17 years. Check this site out: Open Original Shared Link. From what I read, i you might be able to try the lactaid milk with lactaid pills too (to ensure its not the lactose) and if you still get sick, then I would think it was the casein. I don't know, but that's what i would do. Id also ask the casein people if the symptoms are the same: nausea, bloating, gas, diahrea.

If you are lactose intolerant there are so many great substitues you can eat!

Oh and if you are sensitive to lactose, you would probably be sensitive to whey too (i think it depends on HOW sensitive you are).

ttfn

When I was only lactose intolerant, the symptoms were bloating, gas, and diarrhea, but it wasn't too bad for me as long as I kept my consumption down and didn't consume milk on an empty stomach. After I became sensitive to casein, I started to get edema, and I just gave it up right then and there. No need to have old lady legs at my age.

happygirl Collaborator
happygirl
Posted

Many people end up developing numerous food intolerances. Count me in the group. You also might want to try doing it first thing in the morning (so you haven't eaten anything else and you know its the milk/lactose/casein that is causing the reaction). It might be multiple foods, or may only be one. Good luck, and let us know what we can do.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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