Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Amino Acid Testing-vitamin Deficiencies-celiac


Isabella

Recommended Posts

Isabella Rookie

Oh, THIS was a good day with the medical field...( sorry had to vent a little) ,

In testing for celiac, I also asked to be tested for amino acids and vitamins.

Well, as I thought I was deficient in magnesium, vitamin D, and B12 ( by European standards). With that I was deficient in the amino acids , phosphoserine and threonine.

After visiting the gastroenterologist last week, he states " you're FINE!" yOU DO NOT HAVE CELIAC, THE TESTS WERE NORMAL. ( I remark that I had started back on gluten and I am having once again great pain inmy abdominal area.) Oh, NO... you are constipated. ( How can I be constipated if all that comes out is bright yellow liquid?) You need to take tablespoons of wheat bran each day"( I look at him in amazement, and say, I am ALREADY feeling quite sick with just a little gluten!??) No, no, take the wheat bran ...we won't even go into what happened to me the following week- I did nOT take the bran, only added some wheat to my diet , and HORROR!

I demanded tests...when they saw the results, here's the advise given:

My internist told me that "I had more time than he, and that I should look into it; AND by the way, I honestly do not know about amino acids and I know of no doctors who do"...on to the neurologist...

...her nurse told me that the doctor believes that whenever you test as many things as those, you are bound to have a few highs and lows and it's nothing. These two low acid values have NOTHING to do with my immense collection of neurological symptoms ( have they read any medical books on these two acids?)....to the rheumatologist,

"oh, you look GREAT! Just the D is a little low 25 ( 32+ is normal) ...nothing to worry about.

And the magnesium, you may want to take SOME."..

SOME?

I REALLY need to find out how to get in touch with a doctor very well versed in enzymes and amino acids!

has anyone else here has amino acid problems? How did you figure out the underlying cause and how much to take? Thanks again,

Isabella


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mellie Newbie

I have NOOOOOO idea of course....but just wanted to chime in and say it definately sounds like it's time to make a switch of Drs. I've learned in dealing with our infertility even that you so often have to be your own advocate. And I refuse...REFUSE to go to a Dr. that treats me like that and would even think to say things like 'you have more time YOU research it'!!!! I'm just amazed at how rude and insensitive people can be!!!! Hoping you find the right Dr. soon!!!!!! :(

Lymetoo Contributor

I see a dr in Missouri who does testing for both.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...