Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question


mbg98

Recommended Posts

mbg98 Contributor

since going gluten free about 7 1/2 months ago I have not been taking any vitamins/supplements it was not something my doc even brought up. I am now reading on alot of these posts and articles about Celiac that there are vitamins/supplements that some people take that assist in the issues us celiacs have. I am going to a new Celiac doc on monday that has done a few write ups on Celiac in local papers and I wanted to discuss this with him but I wanted to see what types of things you all are taking and what they are for so I have a better idea as to what I am asking him about, if that makes any sense. Any input?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmandaD Community Regular

You should definitely be on a good gluten free vitamin like Viactiv chewables, Freeda, or Pioneer. My doc also PRESCRIBED Vit D 400 IU 2x daily.

Guest Kathy Ann

Thorne is another good company which makes vits/mins and other supplements pretty free from most allergens including gluten.

LKelly8 Rookie

Mgb98, there are many very good gluten-free supplements out there. Your doctor can tell you better what vitamin or mineral deficiencies you may have and how much you should be supplementing. :)

BRUMI1968 Collaborator

I have not been sold on the idea of taking supplements - I eat REALLY well, so I didn't see why I should need supplementation.

I started taking a prenatal (just because they're so good) a week or two ago, though, because my fingernails were so weak they were bending back when I pulled up my socks.

My fingernails are better.

I don't think we should have to take vitamins our whole lives; but maybe we're playing catch-up. i don't know.

I use Rainbow Light brand.

mbg98 Contributor

Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

RiceGuy Collaborator
Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

Well for what it's worth I'm gonna take sublingual B12. So far the methylcobalamin form appears to be the best overall. It's cheap enough to give it a try and as long as it doesn't have other vitamins with it, no known toxicity level, so practically no chance of overdose. Side effects from whatever sweeteners they use, such as sorbitol might be something to watch out for. But taken in moderate doses two or three times daily rather than the mega-sized ones all at once should avoid such problems. Besides, B12 is assimilated better in small amounts, so large doses just waste more.

Certainly the magnesium is a common deficiency among Celiacs too, though I think the average American could use more of that as well. Knowing what you are deficient in can help you to focus on the ones you need most, thus avoiding overdosing on stuff you already have in good quantities.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

If you take sublingual B 12 it's a good idea to also take B-complex. The B vitamins all work together and work in your nervous system, if your taking one, you don't want to be out of balance with the others.

The reason we need vitamins now when we didn't need them years ago has a lot to do with our farming methods used today. Our food simply does not have the nutritional value it used to.

I take a good multiple, B-Complex 100, B 12 sublingual, cal/mag/zinc, vitamin C, vitamin E, and iron. There are other herbs and supplements I take on my doc's recommendation (like thyroid, etc.), but those are the vitamins. I take various brands. I particularly like Wild Oats brand as they're clearly labeled whether they're gluten-free. Don't just go take a cheap drug store vitamin -- most of them are 100% of the RDA, which is the minimum you should be getting, not the optimum.

AmandaD Community Regular

Bully 4 You - I think you have to be careful with the Rainbow Light Prenatals - they have barley and wheat grass in them - I remember my obgyn warning me about them...

BRUMI1968 Collaborator

You're right. I noticed that last night. I know that THEORETICALLY, barley and wheat grass does not have gluten in it. But that is theoretically.

Thus far no bad side effects -- but to be on the safe side, I'll go back to the ones without that. Thanks for reminding me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.