Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question


mbg98

Recommended Posts

mbg98 Contributor

since going gluten free about 7 1/2 months ago I have not been taking any vitamins/supplements it was not something my doc even brought up. I am now reading on alot of these posts and articles about Celiac that there are vitamins/supplements that some people take that assist in the issues us celiacs have. I am going to a new Celiac doc on monday that has done a few write ups on Celiac in local papers and I wanted to discuss this with him but I wanted to see what types of things you all are taking and what they are for so I have a better idea as to what I am asking him about, if that makes any sense. Any input?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmandaD Community Regular

You should definitely be on a good gluten free vitamin like Viactiv chewables, Freeda, or Pioneer. My doc also PRESCRIBED Vit D 400 IU 2x daily.

Guest Kathy Ann

Thorne is another good company which makes vits/mins and other supplements pretty free from most allergens including gluten.

LKelly8 Rookie

Mgb98, there are many very good gluten-free supplements out there. Your doctor can tell you better what vitamin or mineral deficiencies you may have and how much you should be supplementing. :)

BRUMI1968 Collaborator

I have not been sold on the idea of taking supplements - I eat REALLY well, so I didn't see why I should need supplementation.

I started taking a prenatal (just because they're so good) a week or two ago, though, because my fingernails were so weak they were bending back when I pulled up my socks.

My fingernails are better.

I don't think we should have to take vitamins our whole lives; but maybe we're playing catch-up. i don't know.

I use Rainbow Light brand.

mbg98 Contributor

Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

RiceGuy Collaborator
Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

Well for what it's worth I'm gonna take sublingual B12. So far the methylcobalamin form appears to be the best overall. It's cheap enough to give it a try and as long as it doesn't have other vitamins with it, no known toxicity level, so practically no chance of overdose. Side effects from whatever sweeteners they use, such as sorbitol might be something to watch out for. But taken in moderate doses two or three times daily rather than the mega-sized ones all at once should avoid such problems. Besides, B12 is assimilated better in small amounts, so large doses just waste more.

Certainly the magnesium is a common deficiency among Celiacs too, though I think the average American could use more of that as well. Knowing what you are deficient in can help you to focus on the ones you need most, thus avoiding overdosing on stuff you already have in good quantities.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast
Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

If you take sublingual B 12 it's a good idea to also take B-complex. The B vitamins all work together and work in your nervous system, if your taking one, you don't want to be out of balance with the others.

The reason we need vitamins now when we didn't need them years ago has a lot to do with our farming methods used today. Our food simply does not have the nutritional value it used to.

I take a good multiple, B-Complex 100, B 12 sublingual, cal/mag/zinc, vitamin C, vitamin E, and iron. There are other herbs and supplements I take on my doc's recommendation (like thyroid, etc.), but those are the vitamins. I take various brands. I particularly like Wild Oats brand as they're clearly labeled whether they're gluten-free. Don't just go take a cheap drug store vitamin -- most of them are 100% of the RDA, which is the minimum you should be getting, not the optimum.

AmandaD Community Regular

Bully 4 You - I think you have to be careful with the Rainbow Light Prenatals - they have barley and wheat grass in them - I remember my obgyn warning me about them...

BRUMI1968 Collaborator

You're right. I noticed that last night. I know that THEORETICALLY, barley and wheat grass does not have gluten in it. But that is theoretically.

Thus far no bad side effects -- but to be on the safe side, I'll go back to the ones without that. Thanks for reminding me.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.