Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question

mbg98

Recommended Posts

mbg98 Contributor
mbg98
Posted

since going gluten free about 7 1/2 months ago I have not been taking any vitamins/supplements it was not something my doc even brought up. I am now reading on alot of these posts and articles about Celiac that there are vitamins/supplements that some people take that assist in the issues us celiacs have. I am going to a new Celiac doc on monday that has done a few write ups on Celiac in local papers and I wanted to discuss this with him but I wanted to see what types of things you all are taking and what they are for so I have a better idea as to what I am asking him about, if that makes any sense. Any input?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AmandaD Community Regular
AmandaD
Posted

You should definitely be on a good gluten free vitamin like Viactiv chewables, Freeda, or Pioneer. My doc also PRESCRIBED Vit D 400 IU 2x daily.

Guest Kathy Ann
Guest Kathy Ann
Posted

Thorne is another good company which makes vits/mins and other supplements pretty free from most allergens including gluten.

LKelly8 Rookie
LKelly8
Posted

Mgb98, there are many very good gluten-free supplements out there. Your doctor can tell you better what vitamin or mineral deficiencies you may have and how much you should be supplementing. :)

BRUMI1968 Collaborator
BRUMI1968
Posted

I have not been sold on the idea of taking supplements - I eat REALLY well, so I didn't see why I should need supplementation.

I started taking a prenatal (just because they're so good) a week or two ago, though, because my fingernails were so weak they were bending back when I pulled up my socks.

My fingernails are better.

I don't think we should have to take vitamins our whole lives; but maybe we're playing catch-up. i don't know.

I use Rainbow Light brand.

mbg98 Contributor
mbg98
Posted
  • Author

Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

RiceGuy Collaborator
RiceGuy
Posted
Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

Well for what it's worth I'm gonna take sublingual B12. So far the methylcobalamin form appears to be the best overall. It's cheap enough to give it a try and as long as it doesn't have other vitamins with it, no known toxicity level, so practically no chance of overdose. Side effects from whatever sweeteners they use, such as sorbitol might be something to watch out for. But taken in moderate doses two or three times daily rather than the mega-sized ones all at once should avoid such problems. Besides, B12 is assimilated better in small amounts, so large doses just waste more.

Certainly the magnesium is a common deficiency among Celiacs too, though I think the average American could use more of that as well. Knowing what you are deficient in can help you to focus on the ones you need most, thus avoiding overdosing on stuff you already have in good quantities.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted
Thanks everyone! I just read that some people take magnisum others b12 and some just everyday vitamins and since it was never brought up to me by my oh so helpful doc (ha) I wanted to see if it is something i should look into.

If you take sublingual B 12 it's a good idea to also take B-complex. The B vitamins all work together and work in your nervous system, if your taking one, you don't want to be out of balance with the others.

The reason we need vitamins now when we didn't need them years ago has a lot to do with our farming methods used today. Our food simply does not have the nutritional value it used to.

I take a good multiple, B-Complex 100, B 12 sublingual, cal/mag/zinc, vitamin C, vitamin E, and iron. There are other herbs and supplements I take on my doc's recommendation (like thyroid, etc.), but those are the vitamins. I take various brands. I particularly like Wild Oats brand as they're clearly labeled whether they're gluten-free. Don't just go take a cheap drug store vitamin -- most of them are 100% of the RDA, which is the minimum you should be getting, not the optimum.

AmandaD Community Regular
AmandaD
Posted

Bully 4 You - I think you have to be careful with the Rainbow Light Prenatals - they have barley and wheat grass in them - I remember my obgyn warning me about them...

BRUMI1968 Collaborator
BRUMI1968
Posted

You're right. I noticed that last night. I know that THEORETICALLY, barley and wheat grass does not have gluten in it. But that is theoretically.

Thus far no bad side effects -- but to be on the safe side, I'll go back to the ones without that. Thanks for reminding me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.