Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Question For The Veterans


emcmaster

Recommended Posts

emcmaster Collaborator

When you were first gluten-free, did you have random days where you had some glutening symptoms but not all? I ask this because I've been gluten-free for 6 months and occasionally will have a day or two where I have the bloating and pain, but not the other symptoms. And since it only lasts for a day or two, I know I haven't been glutened or had a reaction from my other intolerances.

Am I just healing and having a few bad days because of that?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LKelly8 Rookie

It could be from something else; another food intolerance, transient virus, GERD, PMS, etc.

Or you have :ph34r: hidden gluten in your diet somewhere.

Matilda Enthusiast

...

aikiducky Apprentice

At six months I think I was more or less bloated all the time. :) Yes it was very much up and down and not always because of a glutening. Bloating is still the last thing to go away after I have been glutened, it's the most stubborn of my symptoms. But nowadays I'm not bloated all that often (two years on the diet).

Pauliina

emcmaster Collaborator

Thank you for the replies! I suspected other intolerances, went on an elimination diet and still had the random bad days. I added back all the foods I suspected and most weeks, have 1 or 2 bad days a week unless I've for sure been glutened or consumed one of my other off-limits foods.

It makes me feel a lot better to know that you were experiencing bad days sometimes at 6 months in. (Not that I'm happy you were feeling badly, just happy to know I'm not abnormal!)

Rikki Tikki Explorer

Hi Elizabeth:

It took me a couple of years to feel really well. But I would suspect hidden gluten or cross contamination. It was so overwhelming for me for a while, just trying to find out what all contained gluten. Watch your medications, they use gluten in some,.

Best of luck and good to meet you! :D

Guest nini

It took me about 2 years to feel almost human, but I'm still having bad days 3 1/2 years into this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

After 17 years I can't remember how long it took me to feel human again. But, there will always be ups and downs, although not so many over the years. Bloating is a problem with almost all of us and I'm not so sure that it is always caused by gluten. I seem to get it sometimes when I'm simply under stress and not eating a proper balanced diet. Sometimes salads will cause it and sometimes an over abundance of fruit. I know we tend to jump on a gluten contamination as soon as we start feeling uncomfortable, but there are times when that is not the cause.

Hang in there, the fact that we feel better over all is a good thing! :D

emcmaster Collaborator

A big thanks to all you who replied!

I'm undiagnosed and am keeping my fingers crossed that this is it and that I won't go back to feeling badly all the time!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748

    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.