Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Can' Keep Any Food In Me For 5 Days

Anne AMP

By Anne AMP
in Coping with Celiac Disease

Recommended Posts

Anne AMP Apprentice
Anne AMP
Posted

Have not kept any food in me for 5 days. All comes out in diahrrea undigested. I have been avoiding gluten for 2 weeks and in the past 2 days have gone to eating only boiled beef, boiled chicken, and mushy cooked carrots to reduce the lectins. Cannot keep it in. Down to 102lbs. Very weak. No longer having stomach pain or back pain. Been to ER x 3 in the past week. They give me IV fluids and send me home. Are the IV fluids (Normal Saline) making me sick?

Please help, I want to live.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StrongerToday Enthusiast
StrongerToday
Posted

Anne, can you make an appointment with your doctor? When I was very ill and could keep nothing in, my doctor put me on a clear liquids only diet for 48 hours to get my GI tract to settle down. Then I moved up to soups, etc. I can't beleive boiled meat would be good for your tummy right now! Better to stay with liquids to keep you hydrated.

Feel better soon!

Anne AMP Apprentice
Anne AMP
Posted
  • Author
Anne, can you make an appointment with your doctor? When I was very ill and could keep nothing in, my doctor put me on a clear liquids only diet for 48 hours to get my GI tract to settle down. Then I moved up to soups, etc. I can't beleive boiled meat would be good for your tummy right now! Better to stay with liquids to keep you hydrated.

Feel better soon!

My doctor doesn't come back until tomorrow. What kind of soup do you use? Did you have D constanly? My stomach goes inward. Its concaved! My legs are like sticks. I have had very loose stool for 2 months and now it is all water. I am scared.

Carriefaith Enthusiast
Carriefaith
Posted

A lot of people don't start feeling better until 3-4 months on the gluten-free diet. When I was really ill with celiac disease, almost any food made me sick.

You are doing the right thing by eating foods that are easy to digest. Try staying away from complex carbohydrates like potatoes and try avoiding dairy products for a while. Try eating lots of protein and vegetables. And drink lots of water! Maybe ask your doctor about taking a vitamin supplement.

Also, have you been tested for celiac disease? You should be eating gluten if you want a celiac disease blood test or a biopsy. If you are gluten-free, you could get false negative test results. If going back on gluten is out of the question, there is a celiac gene test that you can get and you can be on a gluten-free diet.

StrongerToday Enthusiast
StrongerToday
Posted
My doctor doesn't come back until tomorrow. What kind of soup do you use? Did you have D constanly? My stomach goes inward. Its concaved! My legs are like sticks. I have had very loose stool for 2 months and now it is all water. I am scared.

Progresso Chicken and Wild Rice soup is gluten-free, also Imagine brand soups and you should be able to find gluten-free chicken stock by several companies.

Carriefaith Enthusiast
Carriefaith
Posted

McCormick makes a gluten-free chicken flavour bouillon.

Anne AMP Apprentice
Anne AMP
Posted
  • Author

McCormick makes a gluten-free chicken flavour bouillon.

[/quoteThanks all.

Thanks all. Do you know if Ensure or Pedialyte or some suppliment like that is OK?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Anne,

Can you get some Cream of Rice hot cereal? When I was at my sickest, right before I was diagnosed, that's all I could keep in my system for any amount of time. I would think the meats are too rich for you right now.

I hope you get into your doctor as soon as he gets back--and that you get this under control.

mouse Enthusiast
mouse
Posted

Saline is gluten free. I posted on another of your threads about the pedialyte and Ensure. I was where you are at before I got diagnosed. I was also in a fetal position because of the dehydration. You need to see your doctor ASAP. The dehydration is not something to mess with. Keep us informed.

Mtndog Collaborator
Mtndog
Posted

Welcome Anne and hang in there- I would start with pedialyte and work your way up to other stuff. I'm so sorry you're suffering so much. Just keep replenishing the fluids no matter how they come out. and call your doctor ASAP. Most doctors have aan emergency line with someone covered and THIS is an emergency.

Anne AMP Apprentice
Anne AMP
Posted
  • Author
Welcome Anne and hang in there- I would start with pedialyte and work your way up to other stuff. I'm so sorry you're suffering so much. Just keep replenishing the fluids no matter how they come out. and call your doctor ASAP. Most doctors have aan emergency line with someone covered and THIS is an emergency.

Is pedialyte ok if I am unable to eat corn or rice products?

Mtndog Collaborator
Mtndog
Posted
Is pedialyte ok if I am unable to eat corn or rice products?

Pedialyte: Each bottle contains: water, dextrose, potassium citrate, sodium chloride and sodium citrate. Nonmedicinal ingredients: FD&C Blue #1 and Red #40 (grape flavor) and FD&C Red #40 (bubblegum flavor). Bottles of 1 000 mL (unflavored, fruit and bubble-gum flavored).

I'd say you're OK on rice there but not sure about corn. Hopefully someone knows. You could call the pharmacy and have them check.

Are you doing any better?

Anne AMP Apprentice
Anne AMP
Posted
  • Author
Pedialyte: Each bottle contains: water, dextrose, potassium citrate, sodium chloride and sodium citrate. Nonmedicinal ingredients: FD&C Blue #1 and Red #40 (grape flavor) and FD&C Red #40 (bubblegum flavor). Bottles of 1 000 mL (unflavored, fruit and bubble-gum flavored).

I'd say you're OK on rice there but not sure about corn. Hopefully someone knows. You could call the pharmacy and have them check.

Are you doing any better?

Called the pharmacy. They didn't know for sure. She thinks it is safe as long as it is the unflavored one. I kept some chicken soup in for a little while.. Still feel weak. Going to try some swiss chard soup to get some vitamins. I see my primary care doctor tomorrow morning. Thanks for all your help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.