Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet More Bad News....


Guest ~jules~

Recommended Posts

Guest ~jules~

So my liver enzymes weren't going down, the gi did more bloodwork, and a liver ultrasound. Well aparently now my bloodwork is showing signs of possible autoimmune hepatitis, which can only be posatively diagnosed through a liver biopsy. If I don't rule that out due to what the bloodwork shows, it could continue to get progressively worse, even ending in liver failure. So I'm having the stupid test done. Holly **** one day you are fine and the next your just sick what the heck is going on with my friggin body! :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest marshlakemom
So my liver enzymes weren't going down, the gi did more bloodwork, and a liver ultrasound. Well aparently now my bloodwork is showing signs of possible autoimmune hepatitis, which can only be posatively diagnosed through a liver biopsy. If I don't rule that out due to what the bloodwork shows, it could continue to get progressively worse, even ending in liver failure. So I'm having the stupid test done. Holly **** one day you are fine and the next your just sick what the heck is going on with my friggin body! :blink:

Hi Julie

So sorry to hear of your issues, frustrating isn't it. I know I need to have a bunch of testing done, as I just feel like crap all the time. I really want to have some adrenal testing done, but my doctor doesn't seem to feel there is a need. Darn doctors sometimes....I mean all they have to do is write out the darn test..nothing to them.

Does your doctor think your liver problems are caused by the Celiac Disease, just curious?????

Tell me what is going on with you health wise, how and what your feeling that brought on the need for the bloodwork? I've been away from the forum for many months and just back on and trying to catch up.

Try to keep a positive attitude my girl, things may not be as bad as you think/or have been told.

Hang in,

Deb

Guhlia Rising Star

*******HUGS*******

jerseyangel Proficient

Hi Julie,

I'm sorry this is all coming down on you :( I'll think positive thoughts for you. Keep us posted on your procedure :)

ravenwoodglass Mentor

Julie, I am so sorry to hear this. Celiac autoimmune reactions can attack any area of the body. It chose to attack my twins liver. For him this was found too late so I am glad that your doctor is staying on top of this. Until you know what is causing this be sure you avoid alcohol in all forms and any meds that are metabolized by the liver like Tylenol. And be sure not to use any type of liver or other internal cleansing product without talking to you doctor first. The biopsy is not a difficult procedure and I hope it gives you some answers. ((((((((hugs)))))))

Guest ~jules~
Julie, I am so sorry to hear this. Celiac autoimmune reactions can attack any area of the body. It chose to attack my twins liver. For him this was found too late so I am glad that your doctor is staying on top of this. Until you know what is causing this be sure you avoid alcohol in all forms and any meds that are metabolized by the liver like Tylenol. And be sure not to use any type of liver or other internal cleansing product without talking to you doctor first. The biopsy is not a difficult procedure and I hope it gives you some answers. ((((((((hugs)))))))

Thanks for the advice. :D Since the celiac diagnosis I have pretty much quit drinking. I'm not taking a single thing until I find out if I have liver problems, even though I get some pretty nasty stress headaches somedays. Yet another biopsy though jeez, I'm beggining to feel like the disected frog in junior high.

ravenwoodglass Mentor
Thanks for the advice. :D Since the celiac diagnosis I have pretty much quit drinking. I'm not taking a single thing until I find out if I have liver problems, even though I get some pretty nasty stress headaches somedays. Yet another biopsy though jeez, I'm beggining to feel like the disected frog in junior high.

I just noticed you have not been diagnosed for very long. It can take a while for the liver to get back on track. I am glad your doc is checking this out but the elevation may come down after you have been gluten-free for a bit longer. Headaches can be associated with gluten CC so if you notice a lot of them double check everything you come in contact with. I hope everything turns out well, for now try not worry. There have been a few other threads on elevated liver enzymes so you might want to do a search and check those out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~
I just noticed you have not been diagnosed for very long. It can take a while for the liver to get back on track. I am glad your doc is checking this out but the elevation may come down after you have been gluten-free for a bit longer. Headaches can be associated with gluten CC so if you notice a lot of them double check everything you come in contact with. I hope everything turns out well, for now try not worry. There have been a few other threads on elevated liver enzymes so you might want to do a search and check those out.

Thats just it. The bloodwork showed signs of autoimmune hepatitis, or it could be the celiac. So just to be sure I think I should get the tests done, because I used to be a heavy drinker/partier...it worries me. :unsure:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.