Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Research On Celiacs


kalanfan

Recommended Posts

Sweetfudge Community Regular

I suppose the 's' gets added because often we refer to ourselves as "Celiacs" meaning people who have Celiac Disease :)

Kalanfan, how did the paper turn out? I have a paper to write for my bio class, and I've been working on it, but was curious to know what sources you used, other than the people here :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



splain2me Newbie
Well im a nursing student and we have to do a research paper on a topic of our choice. Since ive been doing the gluten free thing for a couple of months now i decided to do mine on celiacs. For my primary research i need some questions answered by people with condition so i devised a survey...it would help me greatly if you guys could fill it out.....

What age were you diagnosed with celiac's/gluten intolerance?

33

What were your most common symptoms?

anemia

What are your symptoms when you eat gluten now?

headache, stomach pain, bloating

Do you consider yourself more sensitive to gluten now that you try to avoid it?

yes

Did you or your doctor come up with the celiacs/gluten intolerance diagnosis?

my doctor, via biopsy

Do you have any other food allergies/intolerances?

yes

If yes what?

allergic to brazil nuts

Does anyone else in your family have celiacs/gluten intolerance?

brother has dermatitis herpetiformis

Do you consider the world celiac/gluten free friendly?

no

Explain.

Other than the obvious "whole" foods, it's difficult to find foods that are "safe".

Do you think we need better food labelling laws?

yes

Explain.

To make it clearer what foods are really gluten-free.

Does the world in your opinion need to be more educated about celiacs and gluten?

yes, simply because we are not diagnosed effectively.

thanx in advance for your time...

georgie Enthusiast

What age were you diagnosed with celiac's/gluten intolerance?

47

What were your most common symptoms?

I wasn't aware of any, although I had always avoided bread products as they gave me bloating.

What are your symptoms when you eat gluten now?

cramping pain, fatigue, diarrohea

Do you consider yourself more sensitive to gluten now that you try to avoid it?

Yes

Did you or your doctor come up with the celiacs/gluten intolerance diagnosis?

Mr Dr did after I was dx with Hashis Thyroid , she did the testing.

Do you have any other food allergies/intolerances?

Not that I am aware.

Does anyone else in your family have celiacs/gluten intolerance?

I have 2 cousins that both have Hashis Thyroid and Celiac as well.

Do you consider the world celiac/gluten free friendly?

Its not too bad but you still feel a freak when eating out and asking for special menus.

Do you think we need better food labelling laws?

Pretty good here in Aust.

Does the world in your opinion need to be more educated about celiacs and gluten?

Yes!

kalanfan Explorer

hey sweetfudge....

My paper is still in the process...its due on monday.....most of my research had to be primary research and the secondary stuff had to be scholarly journal articles so i had to search through the databases at school.....it was a lot of fun...lol

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.