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Living Gluten Free For Dummies

Sissy

By Sissy
in Publications & Publicity

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Sissy Rookie
Sissy
Posted

Yesterday I went to the book store to look for a Celiacs book and found this wonderful little manual..it is one of those yellow and black books that are written for so many different subjects, but the last thing I expected to find was "Living Gluten Free for Dummies". It is written by Danna Korn, her son was diagnosed in 1991 and as she said in the book, "I figured I had two options: Tyler could starve to death, or I could get busy trying to figure out what the heck gluten was all about. People probably frown on mommies who let kids starve to death." The book is not only humorous but it explains everything in a very easy to understand manner. She also included a section with some very tasty sounding recipes. I am a newbie and feel that I need to understand as much as I can about this disease and find some of the medical reports just too much to digest, if you will excuse the pun. :D Sissy

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mouse Enthusiast
mouse
Posted

I own two of the books to loan out to friends. I still have not read my copy, but I understand through this forum, that it is a wonderful book.

lorka150 Collaborator
lorka150
Posted

it's a very thorough book. i bought it, like mouse, to loan to my friends. i own a few books and it's a very easy read with the stuff that other are most interested in knowing as opposed to all of the science behind it.

Robina Contributor
Robina
Posted
it's a very thorough book. i bought it, like mouse, to loan to my friends. i own a few books and it's a very easy read with the stuff that other are most interested in knowing as opposed to all of the science behind it.

what exactly is the context of the book? I mean... is there info in the book that I can't find out on these boards etc?

BFreeman Explorer
BFreeman
Posted
what exactly is the context of the book? I mean... is there info in the book that I can't find out on these boards etc?

When my H was diagnosed with DH about six months ago, I bought this Dummies book for the practical stuff and Dr. Green's "epidemic" book (can't think of the name) for the scientific stuff. After I had read both books, I had a much better understanding of the whole thing and would highly recommend both of them.

I was glad I had Dr. Green's book one day when R made the comment (after he had been to the dermatologist two or three times and had his skin biopsy and had been to the general practitioner once) that "you could have either celiac disease or DH or both." (He has no GI symptoms.) I showed him the page in the book (where it was even helpfully bold-faced) where it said "If you have been diagnosed with DH you have celiac disease." (I knew when he came home from the GP and said the GP initially thought it was caused by the herpes virus that there was some learning to do. His dermatologist also told him that sometimes it goes into remission and that he had had a patient who had it for 17 years and it went away. I told him that if it does "go away," that means it went inside and is silently doing its damage there; that probably isn't accurate but close enough for the purpose. :)

  • 2 weeks later...
floridanative Community Regular
floridanative
Posted

I ditto BFreeman's post. Dr. Green's book helped when I was first dx'd but's it's not an entertaining book to read. Danna's book was not only helpful on learning the gluten free 'lifestyle', not just the diet, but it was also hilarious at times. I was reading it at the pool with my mini radio in my ears (not an IPOD, not hip enough for that) and I kept busting out laughing outloud and got some looks from the people around me.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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