Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Dh Too?


Guest Kathy Ann

Recommended Posts

Guest Kathy Ann

I don't have a diagnosis of Dh. I AM celiac, however. And it never occurred to me that my skin issues might be gluten related as well.

Does dh have to manifest itself in visible bumps, welts, rashes, etc.? Does it ever do its dirty work "under" the skin?

I don't have any active rashes or oozing places or angry bumps. But my skin does have issues. Skin injuries heal very slowly and stay red a long time. And yet I've never been a sun worshipper or injured my skin in any way. I've actually been a very health oriented person. I've used only health food store cosmetics for 30 years. And yet my skin looks "damaged." It's very disappointing. I also have rosacea.

All my life I have been itchy and very sensitive. ALL clothing tags have to be removed and I can't tolerate synthetic fabrics at all. I can't wear wool, ramie or linen either because of their inherent scratchiness.

If I exercise at all, I begin to itch and my fingers swell. When I perspire, my skin itches from it.

Just wondering if this sounds familiar to anyone with Dh. Or is it likely unrelated?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



teebs in WV Apprentice

Hi Kathy. Doesn't sound like DH to me, but many celiacs on this board appear to have various skin issues. I have DH but I also have other skin issues.

DH is visible blisters - itchy, oozy, itchy, gross, and itchy (did I mention itchy?).

jerseyangel Proficient
I don't have a diagnosis of Dh. I AM celiac, however. And it never occurred to me that my skin issues might be gluten related as well.

Does dh have to manifest itself in visible bumps, welts, rashes, etc.? Does it ever do its dirty work "under" the skin?

I don't have any active rashes or oozing places or angry bumps. But my skin does have many moles, random freckles, raised permanent wartlike bumps, age spots and tags. Skin injuries heal very slowly and stay red a long time. And yet I've never been a sun worshipper or injured my skin in any way. I've actually been a very health oriented person. I've used only health food store cosmetics for 30 years. And yet my skin looks "damaged." It's very disappointing. I also have rosacea.

All my life I have been itchy and very sensitive. ALL clothing tags have to be removed and I can't tolerate synthetic fabrics at all. I can't wear wool, ramie or linen either because of their inherent scratchiness.

If I exercise at all, I begin to itch and my fingers swell. When I perspire, my skin itches from it.

Just wondering if this sounds familiar to anyone with Dh. Or is it likely unrelated?

Wow! Your whole post sounds familiar to me! Every bit of it.

I don't think it's DH, though. And since I've been gluten-free (16 months), the situation has gotten somewhat better. I kid you not, a mole I had on my forehead dried up around the edges recently and fell off while I was washing. A couple spots I had near my hairline have all but disappeared, too.

I never would have thought to mention it, but I wonder if it has something to do with Celiac and being gluten-free?

My itchiness was much better, too until I ate tomato sauce last week. I was intensely itchy and even had burning for several days. I don't doubt that there's some sort of skin connection.

Have you ever been "stung" by the water in the shower?

  • 3 months later...
givingthanx Newbie

Hi. I haven't been diagnosed yet, but I'm going through that process. I've got so many symptoms, and there are so many related conditions in my family (including thyroid issues, irritable bowel syndrome, loss of hair, lactose intolerance, fibromyalgia, lupus, diverticulitis), that I'll be extremely surprised if I don't have it. Plus, going gluten-free fixed me. And then I had a little gluten and experienced symptoms again.

Anyway, I itch when I run - especially the thighs and stomach. Actually, it usually happens when I haven't exercised for a while and then start back. The first few times I exercise, I'll itch. It gets so bad I have to stop. HAVE to stop. It just itches worse and worse and gets red.

If I continue to exercise on a daily basis, it goes away.

givingthanx Newbie

Hi. I did some more research on this (since I have the same itchy skin from exercise), and it turns out it can be more serious than I thought, and YES, it can be related to gluten.

It is called exercise-induced urticaria or anaphylaxis. Actually, the urticaria is the hives. The anaphylaxis means "a severe allergic reaction."

Don't trust my explanation. Do your own research, but this is my impression of what happens: When you reach a point past your physical conditioning, you itch. If you don't stop exercising when you feel the itch come on, it can even get so bad that you pass out from super-low blood pressure. It can even get so bad that you can die. So it's important to stop when the itching comes on.

This web page shows that there can be a gluten connection:

Open Original Shared Link

It can also be caused by other things - allergies, medications, etc.

Please do an Internet search on "exercise-induced urticaria."

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.