Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So I Have A Twin Brother Right....


JerryK

Recommended Posts

JerryK Community Regular

Probably some of you remember my discussion about my tooth enamel loss. Brother has that also and had to have all his teeth capped. His gums and teeth were in terrible shape.

Now I've had a difficult time convincing my brother that our tooth enamel loss, is clearly something genetic and could be consistent with Celiac. He complains frequently that he hurts all over, is tired all the time..he's on an antidepressant, he takes Xanax...etc....AND he weighs about 30 lbs more than my

170.

Now I think, just because he doesn't have glaring gastro symptoms, he's still displaying a lot of

symptoms of Celiac and it could well be the cause of his pain/fatigue/depression.

I sent him a list of symptoms and he mentioned that he gets mouth ulcers all the time....

Any thoughts on this....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rusla Enthusiast

Yup, it sounds like some of my symptoms and yes Celiac can cause all of that and more.

Now some people don't want to know because they believe if they hide their head in the sand and they can't see you then you can't see them. So he figures if he ignores it and does nothing about it then it will go away. He is so wrong, it will only get worse. He should get tested because not just being your brother but your twin makes him highly probable to being Celiac.

Tell him not to be such a chicken and get something done before this disease leaves him with as little teeth as I have or worse, kills him.

covsooze Enthusiast

I feel for you - me and my sister both have coeliac and we are convinced our father does because of his symptoms, but he had a negative blood test (he didn't have the full panel) and is not willing to take it any further, despite us telling him he could end up feeling so much better. it's a really difficult one.

Guhlia Rising Star

Jerry, perhaps when you get a positive diagnosis it will motivate him to seek help. If not, just make sure he KNOWS exactly how GREAT you feel after going gluten free. You could mention that you're much less tired, have more energy, etc... Focus on his symptoms that you share... Perhaps this will motivate him.

mommida Enthusiast

My sister has some obvious symptoms of celiac disease. i.e. vomiting after some meals and always anemic. :huh:

She is very happy to be thin and be able to eat anything she wants and will not get tested until..... Well I really don't know what would make her ever get tested. :blink:

L.

If your brother is at least looking at the information, listening to you, and asking questions he is doing more than any of my siblings. :ph34r:

eleep Enthusiast

I also have a twin brother! He's also got symptoms that look a lot like celiac -- worse anxiety than I've ever experienced, however, and also a tendency to be pigheaded (okay -- I do that too sometimes). He's actually been to the hospital a number of times for what they thought were thyroid issues, but no clear diagnosis ever seems to have surfaced from that.

I sent him my Enterolab results and talked with him about what they meant a couple of times, but I don't think I got anywhere -- as my other brother pointed out, we don't know how my twin could ever handle going gluten free since he seems not to know how to cook at all and lives off of hot pocket-type things.

Frustrating, but all I can do is provide the information, discuss the risks of being an untreated, undiagnosed celiac, and strongly recommend that he see a doctor about this. It's nice to hear about people with siblings who are a little more able to accept their influence!

Kody Rookie
Probably some of you remember my discussion about my tooth enamel loss. Brother has that also and had to have all his teeth capped. His gums and teeth were in terrible shape.

Now I've had a difficult time convincing my brother that our tooth enamel loss, is clearly something genetic and could be consistent with Celiac. He complains frequently that he hurts all over, is tired all the time..he's on an antidepressant, he takes Xanax...etc....AND he weighs about 30 lbs more than my

170.

Now I think, just because he doesn't have glaring gastro symptoms, he's still displaying a lot of

symptoms of Celiac and it could well be the cause of his pain/fatigue/depression.

I sent him a list of symptoms and he mentioned that he gets mouth ulcers all the time....

Any thoughts on this....

Sounds like me... err, except the denial part.

Uh oh, typo... I mean to say sounds like he could be a Celiac :D (Celiac causes all of those symptoms).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.