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Irregular Cycle

Alison

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Alison Rookie
Alison
Posted

Has anyone experienced really long menstrual cycles? I was on the pill for many years and then was diagnosed with celiac. I went gluten free and then a few months later went off the pill. I didn't have my period for a few months and had to take progesterone to get it started. Now I get it only about every 37 days (sometimes longer, sometimes shorter) and it is barely there. I am curious if this happened to anyone and if you ever got regular and/or pregnant?

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shelagh-e Newbie
shelagh-e
Posted

have you tended to be anemic along with being celiac? I am- and once I started taking daily iron supplements, everything straightened out....

healthy1 Newbie
healthy1
Posted

I have the opposite problem, I get it 2x a month for about 9 days each time, I was always regular until my last child, it took about 16 months to become regular again, then when I went gluten-free, it is all crazy again, I don't even know when to expect it anymore, or how long it will last, and when I do have it, it comes and goes 2 days here, then gone a day or 2, for about 9 days. I haven't asked my dr. about it yet, but will next time I see him. anyone experience this before?

gf4life Enthusiast
gf4life
Posted

Alison, I was wondering how long you have been gluten-free, as well as off the pill? I took birth control pills for about 5 years and then stopped taking them. I didn't have a period for about 6 months and then had one about every two months and then they slowly worked their way to somewhere around a month(give or take a week). I got pregnant about two years after I stopped taking the pill, and after I resumed mentruation following the pregnancy I have been regular (every 27-29 days). This was all before I knew I had celiac disease and before I even knew what gluten was. I have heard that gluten can mess with your cycle, and I think it did for me, until after my first pregnancy, now I think it just makes my headaches and cramps worse during my period. Gluten free is the best way to live! And although I feel tired all the time on gluten I have never once tested anemic, only borderline, when I'm pregnant.

Mariann

tarnalberry Community Regular
tarnalberry
Posted

I do FAM, so I chart, and know when I ovulate. Honestly, if I accidentally ingest much gluten in the few days before I ovulate, my body goes "hey, there, I don't like poison" and holds off on the ovulation - thus delaying my period. (Kinda annoying... really...)

Tiffany

  • 3 weeks later...
njlawtonuk Newbie
njlawtonuk
Posted

hello

:rolleyes:

i'm new to this board. when reading your comments a question popped into my head.

are you sure your pill is gluten free? have you checked the ingredients? i phoned the company in the end to absolutely be sure before i started taking it.

hope this helps. n.

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  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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