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Bad Breath?

Peta

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Peta
Posted

My 10 year old son is awaiting a bowel biopsy. His celiac test for antibodies came back negative so I'm not expecting his bowel biopsy to show anything...even though I still think he is celiac. He came back positive for both DQ8 genes and both DQ2 genes so he is still a candidate for celiac which is why the dr has ordered a biopsy.

My question is whether a bad breath (talking VERY offensive, smells like faeces) on many occasions is a symptom of celiac? I have even taken him to the doctor about his breath a few years ago as I thought it was not right in a young child with a healthy diet, good teeth and oral hygene. My doctor just looked at me like I was weird.

I remember saying to my husband...I bet one day there will be a reason for his breath.

His symptoms over the years have been...

diarreah (although he does not have it now)

underweight, despite being a good eater

Stomach pains

Low white cell count

Low lymphocytes

Sore joints on occasion

Bruises quite easily

My sister and nephew have celiac

What are the chances anything will show up on his biopsy if his antibodies are negative?

MANY THANKS

Peta

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      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
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      Test interpretations

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      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
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