Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long?

bonnieboo

Recommended Posts

bonnieboo Apprentice
bonnieboo
Posted

after you went gluten free?

Thanks!

b...day 1 without gluten...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Honestly, it may vary person to person. It was a week or so in and there were positive effects I noticed. It all depends how damaged your body is.

It is a change when you start feeling better, and when you spirits start lifting it motivates you to stay on the diet. The longer you are on the diet it gets easier.

Plus, the food has come along way from where it was when I went gluten-free. I feel I have more options and some products even got revamped and taste better.

Good Luck!!! :):):):)

abc Rookie
abc
Posted
after you went gluten free?

Thanks!

b...day 1 without gluten...

I felt great about a week in - and then felt worse...who knows if it was cross contamination, other problems (lack of sleep and a cold) or just a withdrawal process. After I started feeling poorly again, I went dairy free...and now, about 6weeks in have gone soy free (1 week off that) and now feel AWESOME! So, either it took the 6 weeks, or I finally hit the magic combination. I also found that in the first month, I experimented with gluten-free packaged foods a lot...and now am eating just cleanly (fruits, veggies, meats, rice, some gluten-free pasta). I think the amount of packaged foods was still hurting my system - so keep that in mind as you go forward.

super-sally888 Contributor
super-sally888
Posted

Hi,

I felt much better from the second day.... am only up to Day 6 now. Had chicken with some soy sauce last night (soy sauce has Wheat!) because I was so hungry and that's what was in my fridge. I was itching like crazy afterwards... still itching today, but improving - tummy seems reasonable... touch wood!

Lesson learned! Better to go hungry than purposely eat something with gluten in it.... I haven't looked at eliminating soy or dairy.... I don't take much dairy and enjoy my morning coffee (with milk) too much to give it up just now.

:)

Have bought snacks - raisins and nuts, (what else is ok?)so that I can avoid getting into the "I am so hungry I will eat anything without thinking" trap again...

Hang in there - you will feel better soon... your journey to being well has begun.

Sally

dlp252 Apprentice
dlp252
Posted

I started seeing some small changes within a month or two...try to notice the small things. For instance, I haven't had a sense of smell in years, and shortly after going gluten/casein free I started catching wiffs of things I never would have before. That was kind of fun, lol. There were other things too...very small, but still improvements. I started seeing color in my cheeks again too within those first couple of months. There were other things too, but I just can't think straight right now (had lots of dental work done today, lol).

Here's an old thread I started not long after I went gluten/casein free...lots of people responded with the little improvements they were seeing:

Open Original Shared Link

I also wanted to add that I have had a return of a couple of the symptoms listed there, so I'm betting those are the things that weren't helped by gluten/casein free.

bonnieboo Apprentice
bonnieboo
Posted
  • Author
I started seeing color in my cheeks again too within those first couple of months.

Now that would be exciting! It's been literally decades since I've had color in my cheeks, lol!

Thanks, all, for your encouragement.

Guest AutumnE
Guest AutumnE
Posted

I felt a difference within the first few days but at almost 9 months out, I'm still not totally healed. I have had a few setbacks regarding other food intolerances coming out after I could actually absorb food again but Im feeling alot better than I used too and my hair is filling in some so I know that my vitamin deficiencies are getting better. It can be a slow road but it is well worth it :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest cassidy
Guest cassidy
Posted

I felt better after 2 weeks. I could then tell when I glutened myself because I actually had periods of feeling better. It took me about 2 months to get to the point where I wasn't glutening myself regularly so I had some good periods.

My normal gluten reaction lasts for up to 3 weeks. I feel better and better during that time but I still don't feel 100%. That being said it would make sense that the first couple of weeks could still be tough because your body is trying to recover.

par18 Apprentice
par18
Posted

For me it was the day after the first full day gluten free. No one told me it "could" be this fast. The most common timeframe I was given was 6 months to 2 years. Now that was depressing! As a result I kept thinking I would experience reoccurance of my symptoms from time to time in the beginning. Because I was so diligent and careful I never did. The longer I went without any return of my orginial symptoms the more comfortable I became. The best advice I can give you is to be careful and don't be surprised if it is quick and don't be discouraged if it isn't. Either way keep at it. Good luck.

Tom

julie5914 Contributor
julie5914
Posted

In a couple of weeks I felt better, and then I felt bad for several weeks, but in a different way. I guess I was adjusting. I started feeling completely better after about 6 months or so.

dionnek Enthusiast
dionnek
Posted

I am still not feeling any better (been 6 months) and my follow up biopsy still showed significant damage (my villi were flat), however, that being said, people were telling me after a few weeks into the gluten-free diet that I looked better (color in face, etc.), and just recenlty I noticed that I have not had as many unexplained bruises on my legs (and my last blood tests showed my iron was normal - yeah!!!!), so I think something is happening even though I don't "feel" it. <_<

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.