Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long?


bonnieboo

Recommended Posts

bonnieboo Apprentice

after you went gluten free?

Thanks!

b...day 1 without gluten...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Honestly, it may vary person to person. It was a week or so in and there were positive effects I noticed. It all depends how damaged your body is.

It is a change when you start feeling better, and when you spirits start lifting it motivates you to stay on the diet. The longer you are on the diet it gets easier.

Plus, the food has come along way from where it was when I went gluten-free. I feel I have more options and some products even got revamped and taste better.

Good Luck!!! :):):):)

abc Rookie
after you went gluten free?

Thanks!

b...day 1 without gluten...

I felt great about a week in - and then felt worse...who knows if it was cross contamination, other problems (lack of sleep and a cold) or just a withdrawal process. After I started feeling poorly again, I went dairy free...and now, about 6weeks in have gone soy free (1 week off that) and now feel AWESOME! So, either it took the 6 weeks, or I finally hit the magic combination. I also found that in the first month, I experimented with gluten-free packaged foods a lot...and now am eating just cleanly (fruits, veggies, meats, rice, some gluten-free pasta). I think the amount of packaged foods was still hurting my system - so keep that in mind as you go forward.

super-sally888 Contributor

Hi,

I felt much better from the second day.... am only up to Day 6 now. Had chicken with some soy sauce last night (soy sauce has Wheat!) because I was so hungry and that's what was in my fridge. I was itching like crazy afterwards... still itching today, but improving - tummy seems reasonable... touch wood!

Lesson learned! Better to go hungry than purposely eat something with gluten in it.... I haven't looked at eliminating soy or dairy.... I don't take much dairy and enjoy my morning coffee (with milk) too much to give it up just now.

:)

Have bought snacks - raisins and nuts, (what else is ok?)so that I can avoid getting into the "I am so hungry I will eat anything without thinking" trap again...

Hang in there - you will feel better soon... your journey to being well has begun.

Sally

dlp252 Apprentice

I started seeing some small changes within a month or two...try to notice the small things. For instance, I haven't had a sense of smell in years, and shortly after going gluten/casein free I started catching wiffs of things I never would have before. That was kind of fun, lol. There were other things too...very small, but still improvements. I started seeing color in my cheeks again too within those first couple of months. There were other things too, but I just can't think straight right now (had lots of dental work done today, lol).

Here's an old thread I started not long after I went gluten/casein free...lots of people responded with the little improvements they were seeing:

Open Original Shared Link

I also wanted to add that I have had a return of a couple of the symptoms listed there, so I'm betting those are the things that weren't helped by gluten/casein free.

bonnieboo Apprentice
I started seeing color in my cheeks again too within those first couple of months.

Now that would be exciting! It's been literally decades since I've had color in my cheeks, lol!

Thanks, all, for your encouragement.

Guest AutumnE

I felt a difference within the first few days but at almost 9 months out, I'm still not totally healed. I have had a few setbacks regarding other food intolerances coming out after I could actually absorb food again but Im feeling alot better than I used too and my hair is filling in some so I know that my vitamin deficiencies are getting better. It can be a slow road but it is well worth it :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

I felt better after 2 weeks. I could then tell when I glutened myself because I actually had periods of feeling better. It took me about 2 months to get to the point where I wasn't glutening myself regularly so I had some good periods.

My normal gluten reaction lasts for up to 3 weeks. I feel better and better during that time but I still don't feel 100%. That being said it would make sense that the first couple of weeks could still be tough because your body is trying to recover.

par18 Apprentice

For me it was the day after the first full day gluten free. No one told me it "could" be this fast. The most common timeframe I was given was 6 months to 2 years. Now that was depressing! As a result I kept thinking I would experience reoccurance of my symptoms from time to time in the beginning. Because I was so diligent and careful I never did. The longer I went without any return of my orginial symptoms the more comfortable I became. The best advice I can give you is to be careful and don't be surprised if it is quick and don't be discouraged if it isn't. Either way keep at it. Good luck.

Tom

julie5914 Contributor

In a couple of weeks I felt better, and then I felt bad for several weeks, but in a different way. I guess I was adjusting. I started feeling completely better after about 6 months or so.

dionnek Enthusiast

I am still not feeling any better (been 6 months) and my follow up biopsy still showed significant damage (my villi were flat), however, that being said, people were telling me after a few weeks into the gluten-free diet that I looked better (color in face, etc.), and just recenlty I noticed that I have not had as many unexplained bruises on my legs (and my last blood tests showed my iron was normal - yeah!!!!), so I think something is happening even though I don't "feel" it. <_<

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,191
    • Most Online (within 30 mins)
      7,748

    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.