Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's Going On> He's Not Hungry Any More? Is This Good Or Bad?


ARK

Recommended Posts

ARK Apprentice

I THINK, I HOPE that this is a good sign.

Ever since Saturday my 14 yr old has stopped being ravenous from the second he wakes up until he goes to bed.

It has been 4 full days and he has eaten 3 small meals each day with one healthy smoothie for a snack, but only because I wanted him to. I think that even though he isnt hungry, his body needs the nutrition after being sick for so long.

What do yall think?

I m in SHOCK!!

This is the kid who has always been desperately/anxiously hunger - some even though he had a food obsession. If you did ANYTHING in the morning to delay him gettting his cereal (like run out of milk) then there would be utter panic!

Does this mean his intestines are healing? He is feeling better and better each day. We have been gluten free for a week, minus a few slip ups. Gluten lite for a week or so before that. Today he felt SO good! His depression has lifted, and he even played a board game with us at supper which is something he hasnt done in AGES. He never could play without thinking we were all ganging up on him. :blink: Serously, he was so foggy, and depressed, and upset with life that he couldnt play games.

We still dont have our test results by the way!

ARK


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

That's exactly what happened to me after I went gluten-free. I had been constantly hungry for years. After I went gluten-free, my appetite just disappeared. It was actually kind of difficult to eat, so you may need to remind him to eat. Small meals is okay, work with him to keep it balanced. He may forget to eat because he won't be driven by hunger signals like he was used to.

I've been gluten-free since last January, and I still don't have a big appetite, although it has improved. For a while there I was actually getting nauseous when I ate, which was so odd. Nothing sounded good or tasted especially good. I really didn't have much of an opinion about food at all. I started drinking ginger tea and that really helped stimulate my appetite. It helped me get from nauseated to just having a small appetite. So if he ends up just not wanting to eat that may help. Doesn't need to be much. I think I drank one cup of it for three or four days and it helped a lot.

I'm glad he's feeling so much better. It sounds like he's doing great. It's amazing how quick and dramatic the change is isn't it?

Nancy

Kaycee Collaborator

Same thing happened to me too.

Felt so hungry for the last few years, but more or less within a week of being gluten free, the hunger just disappeared. Hunger does not rule my life anymore.

Cathy

ARK Apprentice
Same thing happened to me too.

Felt so hungry for the last few years, but more or less within a week of being gluten free, the hunger just disappeared. Hunger does not rule my life anymore.

Cathy

Thanks so much to everyone who answered - I am so relieved!

That is one of they results of being gluten free that I NEVER EXPECTED.

We've lived with a ravenous kid for 14 years and we were so used to it that we did not realize how bad it really was, and that it was not normal. That is NOT one of the symptoms for which we took him to the doctor.

The very FIRST problem we noticed was depression/irritability/confusion. And that just came on gradually - I wish we had figured it out sooner so he could be happy and healthy sooner.

BUT, I am thankful that our doctor figured it out so fast! We use a homeopathic doctor occasionally, and that is who we went to. If we had gone to our regular MD all he would have done is give us depression pills!

e&j0304 Enthusiast

That is exactly what happened with my dd. That is actually what we did take her to the dr for. She was only 2 years old and was eating CONSTANTLY. She would not play with friends, particiapte in little classes or really do much of anything because she was sad/anxious about when she could eat next. It was a nightmare and before she was diagnosed (by us and ONE helpful dr.) the medical community at a University hospital told us that she had mental problems and needed to be seen by a psychiatrist. Don't forget that my dd was 2-years-old.

I do believe that she had many of the mood problems, depression, anxiety, etc that you describe in your son. I am so very happy that you found your answer. I hope that he is able to live a long healthy life!

Shannon

ARK Apprentice
That is exactly what happened with my dd. That is actually what we did take her to the dr for. She was only 2 years old and was eating CONSTANTLY. She would not play with friends, particiapte in little classes or really do much of anything because she was sad/anxious about when she could eat next. It was a nightmare and before she was diagnosed (by us and ONE helpful dr.) the medical community at a University hospital told us that she had mental problems and needed to be seen by a psychiatrist. Don't forget that my dd was 2-years-old.

I do believe that she had many of the mood problems, depression, anxiety, etc that you describe in your son. I am so very happy that you found your answer. I hope that he is able to live a long healthy life!

Shannon

That IS a nightmare! I'm so sorry you had to go through this with your daughter, and I hope she is feeling lots better now! I believe that our son's problems would have come to a head MUCH sooner had we not been homeschooling him. Simply because he would have been eating way more junk food! The teachers would have pressured us to put him on Ritalin - several doctors told me he had ADHD and we "should" medicate him. We never did though. I wonder if that was all because of the gluten intolerance too?

Ursa Major Collaborator

Sure, ADHD is a known symptom of celiac disease! I wonder how many kids are on Ritalin, that should be on a gluten-free diet instead.

I think one reason your son doesn't feel like eating is, that he was addicted to gluten. It was the addiction that kept him wanting to eat all the time, not normal hunger pangs.

Now that his 'drug' (gluten) is gone, he doesn't know when he is hungry. He has forgotten what normal hunger pangs mean.

The same thing happened to me. When I eliminated gluten a little over a year ago, for a long time I had to remind myself to eat, because I had no idea when I was hungry. Sometimes I'd remember in the late afternoon that I should eat something. By then I'd be feeling sick with hunger, but didn't know why I was sick.

It is somewhat better now, but I still have to pay attention to needing to eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sophiekins Rookie

My family never really noticed that I was eating vast quantities of food - as both of my sisters have hyperactive metabolisms and eat positively enormous quantities of food though they are both slim and healthy. . .with the two of them at home we go through eight loaves of bread, two pounds of cheese and at least ten litres of milk in a week - but they did notice that I virtually stopped eating after I was diagnosed celiac. Six years later, I still have to eat to a timetable because I don't notice my body's hunger signals. Large meals make me feel mildly unwell, but if I don't eat regularly enough, I get vicious migraines. So I started calorie counting (me! never-on-a-diet-in-my-life me counts calories!) and took a nutrition class to make sure that the meals I am eating are large enough and properly balanced. I still make mistakes - particularly after I've been glutened (remember that any meal with enough gluten to make you sick is a meal you might as well not have eaten for all the benefit your body got, so you have to eat more the next couple of days), but I find that an apple and a couple of small squares of chocolate (or raisins) is a good catch if I'm about to lose it. When I've forgotten to eat for too long, I don't want to eat and can become nauseous if I try and force it, so I start with a glass of diluted apple juice (one part juice to three parts water) or, in a pinch, a teaspoon of sugar dissolved in hot water, and after about half an hour, I follow it up with something plain, like brown rice with milk, peanut butter and celery, or baked/boiled/mashed potato with broccoli or sweet pepper.

Speaking of which, I'd probably better go and eat. . .as I think my last meal was lunch, and it is well past dinnertime!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,595
    • Most Online (within 30 mins)
      7,748

    AnnikaZ
    Newest Member
    AnnikaZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.