Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Rash Negative Blood Test

carolp

By carolp
in Dermatitis Herpetiformis

Recommended Posts

carolp Newbie
carolp
Posted

I am a celiac, my 23 year old son has been getting a severe red rash and flaky skin on his face also blisters on his hands he had been blood tested for celiac - came back negative - he went gluten free and after a few weeks he improved he also reacts to iodine.

He saw a dermatologist today he was not very reactive as has been gluten free ( he ate three slices of pizza yesterday his skin is rashing red and his face is flaking - the Doctor said it was eczyma and that since he didn't have diahrea it couldn't be celiac ( duh) .

Felt that he could be allergic to wheat instead.

I have not had skin problems so I am ignorant here.

Heat also makes his rash worse as does a moist climate ( only when he is reacting )

They are recommending cortizone shots-

Does any of this sound like celiac to you???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

My baby broke out in eczema that only cleared up when I went gluten free. Did he have celiac? Couldn't tell you, but he has at least one celiac gene. He is at least gluten intolerant.

As far as your son, if the eczema clears up gluten free then by all means keep him gluten free. I'm not sure how closely DH resembles eczema (or if it does), but that is the skin condition that leads to a celiac diagnosis. He could be at the beginnings of celiac (especially if you've been diagnosed since he'd have a gene). For his health it is best to continue on the gluten free diet.

  • 2 weeks later...
Isabella Rookie
Isabella
Posted

Oh wow, I went throught he same thing with my daughter and myself. About three months ago, when I had tried my 10 year old for DH blisters by applying a pinpoint amount of 3 percent iodine to her ankle, where she already had hypo pigmentation from an earlier bought of blisters she immediatly went unconscious as soon as we washed it off, she slowly can to. The dermatologist had us with skin prick testing for fod alergens. i told her about the iodine incindent .i warned the doctor, that i figured out she has breakouts whenever she has gluten and iodine foods. and i could make the blisters more or less severe depending on the combination. when i took the luten away, she could have iodine foods. not paying close enough attention, she put wheat at the top of inside the elbow, and proceeded to put more down her arm, and on the other arm. we where all happily talking about it, and then lastly, on the same arm as the wheat, she put down seafood. (as soon as the two connected in her blood, we concluded) she went again unconscious. the doctor told us she can not come in contact with iodine in any form except for foods and must remain gluten free. the doctor had never seen such a bizzare reaction before.

She does better if I keep her cool during the breakouts and they HAVE lessened greatly since she is gluten free. Now it only happenes when she gets gluten AND has dairy or seafood.

I use organic coconut oil on her blisters.

She used to become ill from new polyeurathane foam and would break out with whoppin big blisters in the summer, especially during swim team season.

Please don't give him cortizone shots if you don't have to. It is healthier for him to just stay gluten free. there are many risks with drugs and many side effects which you will have to deal with.

I and my daughter tested negative and the doctor said it was because we did not consume enough gluten before the test. MANY people who are severely gluten intolerant show up negative on the test.

And a little extra note- my daughter tested negative to seafood and shellfish.

Christine

  • 2 weeks later...
marfa62 Newbie
marfa62
Posted

Sound like my nighmare. My blood and biopsies were negative. Try the DNA test. That will not say you have celiac, but will tell if you carry it. My point is that these dumb dermatologists - like the ones at Mass General in Boston - couldn't diagnose a sun burn. So if you go to them and say it is on the genes, it helps them because it wasn't in there text books. OK, I have finished ranting.

If he goes gluten free and he is better, you have it- go for it. It is not excema. More to the point somewhere on celiac.com is an article about the 30 different types of skin diseases related to the disease. Dapsone and clobetasol propionate

cream .05% are what I get from my dermatologist. Iodine is involved somehow. I am really glad you mentioned that! It may be that there is some thyroid involvement, or more likely iodine and sulfer get "caught" in the leaky gut syndrome. I have gotten off soaps with sulfer- almost all of american soaps have it. I use Dermarest psoriasis for hair and body wash and Tide All Clear for washing clothes. Non iodized salt in the kitchen.

OOPS! almost forgot- two other skin items. Low grade Pellegra, from malabsorption or lack of B vitamins due to the gluten free diet can also degrade skin leaving it open to yeast infections. Us celiacs often get diarrhea and any discharge that hits poor skin can get a yeast infection. So when you mentioned heat and moisture, I remember trying a tube of vaginal yeast infection cream, and that helped. It is possible to have a combination of skin issues. A good sensible mutivitamin is essential.

Best wishes. M

I am a celiac, my 23 year old son has been getting a severe red rash and flaky skin on his face also blisters on his hands he had been blood tested for celiac - came back negative - he went gluten free and after a few weeks he improved he also reacts to iodine.

He saw a dermatologist today he was not very reactive as has been gluten free ( he ate three slices of pizza yesterday his skin is rashing red and his face is flaking - the Doctor said it was eczyma and that since he didn't have diahrea it couldn't be celiac ( duh) .

Felt that he could be allergic to wheat instead.

I have not had skin problems so I am ignorant here.

Heat also makes his rash worse as does a moist climate ( only when he is reacting )

They are recommending cortizone shots-

Does any of this sound like celiac to you???

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,109
    • Most Online (within 30 mins)
      7,748
    Kathy001
    Newest Member
    Kathy001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.