Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Igg Positive

dmbaird1230

Recommended Posts

dmbaird1230 Apprentice
dmbaird1230
Posted

Back in 1998 I had bloodwork taken and my IGg antibodies were 17.1 (they should be <7) so I've been gluten free since then. I wanted to be 100% sure I have celiac so recently I went for bloodwork and it came back negative. I'm thinking of going for an endoscopy, but I wasn't sure if the positive IGg antibodies and the fact that the gluten free diet helps me is enough to diagnose me. The doctor doesn't seem to think that that's enough to diagnose, what does anyone else think?

Thank you.

~Denise

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GEF Explorer
GEF
Posted

Denise,

Probably not... but, you never know. The fact that you're on a gluten-free diet can alter your biospy and blood tests. Many here will tell you that your improvement on the gluten-free diet is enough proof that your body is intolerant and some doctors will accept that as diagnosis in itself.

But, if you feel you need that diagnosis you might need to go back on gluten for a while (the gluten challenge) for more accurate results.

Good luck!

Gretchen

dmbaird1230 Apprentice
dmbaird1230
Posted
  • Author

Another factor is that back in 1998 when I got that bloodwork done I also went to an allergist and they did a skin test and found out that I'm allergic to wheat.

GEF Explorer
GEF
Posted

An allergic reaction typically shows an IGE reaction, wheras intolerance.. the IGG & IGA. There are other's too, but I can't remember.

dmbaird1230 Apprentice
dmbaird1230
Posted
  • Author

what does that all mean then?

dmbaird1230 Apprentice
dmbaird1230
Posted
  • Author

what does that all mean then?

Guest gillian502
Guest gillian502
Posted

Elevated Igg levels can mean a variety of illnesses, not just Celiac Disease. celiac disease usually shows itself in elevated IgA and Ttg antibodies, as well as a few lesser known tests. If you are allergic to wheat, and feel better on this diet anyway, then stick with it. Couldn't hurt. If you were gluten-free for a long time before your test, though, your results are not going to be accurate, you 'd have to ingest gluten before the test to be sure of a reliable result.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted

You can be allergic to wheat AND be gluten intolerant. They are different reactions in your body, one in the immune system and one in the digestive system. But regardless, if you tested positive in the past, and improved on the diet, then you are most likely gluten intolerant. Whether it is severe enough to be called Celiac disease doesn't really matter, unless you have to have an actual doctors diagnosis. For that you would have to go back on gluten for at least 3-6 months and hope there has been enough damage done to your intestines to give accurate results. If you are gluten intolerant then going back on gluten will be torture for most people. Trust me, I had to do it and after two months I was so sick and the biopsy was still negative. I won't be doing that again! :blink: It was awful. Trust your instincts, and if you need to know if you have a genetic predisposition to gluten sensitivity you can get tested relatively inexpensively through Enterolab or ask a doctor for a gene test. Enterolab also tests for the lesser genes that are not considered Celiac genes, but cause gluten intolerance also. In my family we have both Celiac and non-celiac gluten intolerance. You can learn more about the gene test (that does not require you to go back on gluten) at Open Original Shared Link

God bless,

Mariann

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

It's up to you...I tested positive for IgG antibodies and my scope was negative...my GI said that I still have the disease, but I realize not all doctors are that open-minded.

Good Luck,

dmbaird1230 Apprentice
dmbaird1230
Posted
  • Author

well, I've tried to do my own "gluten challenge" and yesterday and today I've eaten some wheat and yesterday I had lots of gas and today I have integestion pretty bad. My husband just thinks it's b/c I'm introducing something new to my diet, but I'm pretty sure it's from the wheat.

It's just hard b/c I'd like to get some answers but I don't have an appt. w/ a GI until Oct. 4th.

dmbaird1230 Apprentice
dmbaird1230
Posted
  • Author

Marianne,

What's the difference btwn. being gluten intolerant and celiac?

~Denise

Alexolua Explorer
Alexolua
Posted
What's the difference btwn. being gluten intolerant and celiac?

Not much. Celiac Disease is just a gluten intolerance that has lead to damage of the lining of your small intestines. Both reguire you to do the same thing, aviod gluten. And some people, me included, can refer to a gluten intolerance, as Celiac Disease.

It's just hard b/c I'd like to get some answers but I don't have an appt. w/ a GI until Oct. 4th.

You can always call him to ask questions. Or more likely, leave a message with questions for him. And on another note, Oct 4th is my Birthday! =D

gf4life Enthusiast
gf4life
Posted

Alexolua is correct. There is not much difference at all between the two. They both require lifelong adherence to the gluten free diet, and really the only medically recognised difference is that Celiac damages the intestines rather severely and is caused by different genes than those that have non-celiac gluten intolerance. Most doctors don't diagnose gluten intolerance, they wait until it is severe Celiac and then barely notice unless you are half dead! My doctor even admited that the only people she diagnoses with Celiac are the ones who have total villous atrophy (that is visable with the naked eye during the endoscopy) and are so thin from chronic diarrhea that they can barely function. I prefered to get on the diet in the earlier stages and never get to the point of being that severely ill. And if you don't have either of the main genes for Celiac then you might be told that you will never be Celiac, but that doesn't rule out gluten intolerance and the treatment is the same.

It is a bit confusing and most American doctors are decades behind the times.

God bless,

Mariann

dmbaird1230 Apprentice
dmbaird1230
Posted
  • Author

Well, this past weekend I did my own "gluten challenge", I ate some stuff like pizza and wheat bread and I got my answer b/c both Sat. and Sunday I had gas and integestion/acid reflux, basically I felt the way I did before I went on the gluten free diet. So my husband and I just decided that I'll stay on the gluten free diet and forget about doing the endoscopy again. If I felt this bad eating gluten for 2 days I don't want to have to eat it for 3 months before the endoscopy!

So...on with the gluten-free diet!

GEF Explorer
GEF
Posted
So...on with the gluten-free diet!

Good for you, Denise! Hey, my Igg was the only thing elevated for a while (it was only 33 and normal was under 20) and I felt miserable and knew my body was telling me something was definitely wrong. I didn't do anything about it then, because well... because of lack of suport from my doctor(s) and because I was told not to worry. Let's see... a year later and the Igg is up and now I have a positive Iga. I think sometimes we've just got to do what we feel is best for our own body.

With no offense to the (3) doctors I've seen that think it's IBS.... I guess I can't expect them to do as much research as I do about it! :o

Good luck with everything and keep in touch!

Gretchen

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.