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Temperature With Gluten?

Darlene

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Darlene Newbie
Darlene
Posted

I am fairly new here and would appreciate some advice. Has any-one else had a fever reaction in their little one after ingesting gluten? Our 3yr old runs fevers (a day or so after ) -we strongly suspect she is Celiac (G.I. symptoms) but the temperature seems to throw most Dr's who insist it cannot be related to food. We cannot get her to attempt a "gluten challenge" as this temp stops us each time!

We have battled this "unknown" fever thing that came and went as a baby (gluten-free from 15mths) putting it down to teething but we can now link it to "gluten". I have a theory that the gluten just weakens her overall and she may be having trouble fighting a underlying virus/reaction to vaccine?

Me- DQ2 & DQ8, blood test neg (whilst on gluten free), 4 miscarriages, "anticardiolipin syndrome", MTHFR gene mutation, mercury toxic (11 amalgams), osteopania, weight loss too severe to attempt challenge

DH - DQ2 & DQ, few symptoms, osteoarthritis, tiredness, dark circles around eyes (like Alice cooper), awaiting blood results on gluten challenge.

DS - Diagnosed "permanent gluten intolerant" from bloods while on "wheat free diet"

DD - Unable to diagnose, all celiac disease testing done while on gluten-free diet

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Ursa Major Collaborator
Ursa Major
Posted
I am fairly new here and would appreciate some advice. Has any-one else had a fever reaction in their little one after ingesting gluten? Our 3yr old runs fevers (a day or so after ) -we strongly suspect she is Celiac (G.I. symptoms) but the temperature seems to throw most Dr's who insist it cannot be related to food. We cannot get her to attempt a "gluten challenge" as this temp stops us each time!

We have battled this "unknown" fever thing that came and went as a baby (gluten-free from 15mths) putting it down to teething but we can now link it to "gluten". I have a theory that the gluten just weakens her overall and she may be having trouble fighting a underlying virus/reaction to vaccine?

Me- DQ2 & DQ8, blood test neg (whilst on gluten free), 4 miscarriages, "anticardiolipin syndrome", MTHFR gene mutation, mercury toxic (11 amalgams), osteopania, weight loss too severe to attempt challenge

DH - DQ2 & DQ, few symptoms, osteoarthritis, tiredness, dark circles around eyes (like Alice cooper), awaiting blood results on gluten challenge.

DS - Diagnosed "permanent gluten intolerant" from bloods while on "wheat free diet"

DD - Unable to diagnose, all celiac disease testing done while on gluten-free diet

Darlene, who is planning on doing a gluten challenge with all of you? If gluten is a problem, and you do have the genes, the gluten challenge would likely make you very ill, for no good reason at all. Especially since you would need to eat at least four slices of bread for six months to a year to even have a remote chance of testing positive, since you would have to cause severe damage to your intestines (purposely destroying your villi) for a positive biopsy (or positive bloodwork, for that matter).

How long was your husband eating gluten for his challenge? I suspect not long enough, and it will likely result in a false negative. Osteoarthritis has been proven to be linked to celiac disease, as is tiredness. And of course, dark circles under the eyes are typical for allergies/intolerances. So, he does have symptoms, even though they may not be gastrointestinal ones.

As for your baby, it is possible that gluten would cause a fever, I've heard that from others here. Is she eating gluten regularly, or are you talking about accidental glutenings? And I agree that vaccinations can be a huge problem.

Have you tried removing dairy and soy from your diets? Those could be posing additional problems/reactions. I hope you figure it all out, looking at your signature, you appear to be facing many challenges. I hope you will all feel better soon.

Darlene Newbie
Darlene
Posted
  • Author

Thx Ursula for your promt reply.

As you can probably tell I have been going round and round for quite a while with my whole family.

I believe we are all Celiac - the problem comes in here in Australia when sending your children to day-care or schools, they require a Dr's letter stating the medical reason for adapting diets. so we have been trying to work thru much conflicting advice re. a diagnosis. We are a member of Aust Celiac society who advocate the "Gold standard biospy for diagnosis of Celiac". We are very frowned on for adjusting our children's diets for "no medical reason".

I have accepted many of my symptoms over the years as being my "normal", not really even understanding what normal was (I'm sure my mother is Celiac too), so compared to her I was normal! It wasn;t until DD had problems going on to solids that things started really "clicking" in me. Dr's/allergy specialists were of no help.

1st child had "colic", bloated stomach, fussy eater, concentration problems, ear infections, - all "normal" childhood problems. when 2nd child came along with similar (but more severe) symptoms it was impossible to ignore. Wheat was very evident as causing her problems from intro of solids, but at Dr's insistence kept going causing her temperatures, sinus conjestion, cold like symptoms along side G.I. symptoms (poor little mite). Took a stand and stopped gluten when she was 15mth old. 5mth homeopathic treatment to clear her symptoms/rashes under the hope she would "grow out of it" .

We were very confused re wheat intolerance/gluten so to clarify concerns we found out about a Celiac gene test in Australia (fairly new). We both have exactly the same gene combination DQ2&8, so we know that we cannot exclude Celiac. Dr has asked us all to take bread challenge (Sep06), she said 6 weeks only, the Paeditrician said 3 mths

DD didn't get past 1/2 s/w before temp/pale etc. so Dr agreed she's not well enough (low iron) for challenge, has agreed "she has indications of wheat intolerance". DS is eating gluten now (awaiting 2nd blood test, 1st AGA IgA26) - Hubby was the only one not totally "gluten/wheat free prior" as he likes his beer and has been eating up to 4 slices bread for around 6 weeks - this is his 1st ever test so it will be interesting. I'm hoping even a small reading will be enough for him to accept that he needs to be totally "gluten free" and that his "minor" symptoms are a "real" problem. Its hard for him to believe he is not superman!!

After reading some posts on this site about the accuracy of biospies, I am seriously re-thinking the need. I can't help but think its only a matter of time before testing improves for those of us who instigated a gluten-free diet prior to "diagnosis" as just having the genes doesn't mean much to Drs, there still needs to be evidence those genes are "having an effect".

Very frustrating.....

kabowman Explorer
kabowman
Posted

I run a fever when I eat stuff with yeast. The docs never figured it out, ended up in the hospital, still couldn't find anything really wrong, and all my blood tests for infection were normal. I was finally released when the fever went away on its own because they kept running tests I couldn't eat before that I finally went back to normal.

I figured it out on my own just a few years ago.

Nikki2003 Contributor
Nikki2003
Posted
I am fairly new here and would appreciate some advice. Has any-one else had a fever reaction in their little one after ingesting gluten? Our 3yr old runs fevers (a day or so after ) -we strongly suspect she is Celiac (G.I. symptoms) but the temperature seems to throw most Dr's who insist it cannot be related to food. We cannot get her to attempt a "gluten challenge" as this temp stops us each time!

We have battled this "unknown" fever thing that came and went as a baby (gluten-free from 15mths) putting it down to teething but we can now link it to "gluten". I have a theory that the gluten just weakens her overall and she may be having trouble fighting a underlying virus/reaction to vaccine?

Me- DQ2 & DQ8, blood test neg (whilst on gluten free), 4 miscarriages, "anticardiolipin syndrome", MTHFR gene mutation, mercury toxic (11 amalgams), osteopania, weight loss too severe to attempt challenge

DH - DQ2 & DQ, few symptoms, osteoarthritis, tiredness, dark circles around eyes (like Alice cooper), awaiting blood results on gluten challenge.

DS - Diagnosed "permanent gluten intolerant" from bloods while on "wheat free diet"

DD - Unable to diagnose, all celiac disease testing done while on gluten-free diet

That is what happened to my 3 yr old daughter after she ate 3 cheerios she got a fever of 101 layed on the couch for the day and got bloated belly look./

my other daughter who we are waiting for her results has an allergy to grapes and some turkey she will get a splotchy red red on her cheeks that spreads to her chest and back and spikes a fever of 101-102.

The dr's think it is bizarre also that she gets a fever from that.

Celina

taweavmo3 Enthusiast
taweavmo3
Posted

My daughter tends to run a fever when glutened...the highest was 103. It must not be too unheard of, and it kind of makes sense to me, really. But I'm just a mom, not an MD, lol.

zachsmom Enthusiast
zachsmom
Posted

My baby ran a fever right after he vomited.... and then after 2 hours of 15 minute cycles of vominting he stopped and the fever diminished.

My baby ran a fever right after he vomited.... and then after 2 hours of 15 minute cycles of vominting he stopped and the fever diminished.
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Darlene Newbie
Darlene
Posted
  • Author

Thanks every-one, I am left in no doubt that gluten is the trigger for this temp cycle we go thru with DD (3) - its a "body fever" where her entire body is flaring hot. Fever symptoms go away while on gluten-free diet. We prefer natural approaches so are working on strengethening her constitution through a homeopath starting Friday.

I can now confidently tell her the connection and hopefully this will help in her "overall symptom" picture.

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