Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Brother Has Celiacs, Too.

MySuicidalTurtle

Recommended Posts

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

So, my brother, Matthew, started getting ill like I used to be a few weeks ago. Of course when he went to our doctor she said go on a gluten-free diet and we will do tests. The call cam today and he has it. It's a bit weird but it's good to know what's wrong. I told him he should check this place out so I think he will register and all that jazz.

Kristina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest jhmom
Guest jhmom
Posted

Kristina:

Awww man, I hate to hear that! At least you know he likes some of the gluten-free food, eh?

burdee Enthusiast
burdee
Posted

Hey Kristina: Now you have to share ALL your gluten-free homebaked cookies with your brother. :o Maybe the gluten-free diet will help his ADHD symptoms. That's very logical that your brother would have celiac disease, since it's a hereditary disease. Do either of your parents have symptoms? Wouldn't it be ironic, if your dad who won't touch your gluten-free homemade cookies, tested positive for celiac disease. :lol: I can't wait to tell my husband (who's had lifelong ADHD and insists he can eat ANYTHING) about your brother's diagnosis. Fortunately, my husband loves ENER-G Foods gluten-free breads and cookies. I sure would like to get him on a gluten-free diet to help his ADHD symptoms. ;)

BURDEE

celiac3270 Collaborator
celiac3270
Posted

How's he taking it? Anyway, welcome to the board, Matthew!.........hope the diet helps with his symptoms.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted
  • Author

I don't wanna share!

Yea, we'll see how the diet works for him.

He'll probably post here since he eats different food than me and I don't know about them.

GEF Explorer
GEF
Posted

Not that anyone would want someone to be celiac, but it's good that he's found out so early.

Even though you might eat different things... you might be of great support for each other throughout life.

Gretchen

Kathy-W Newbie
Kathy-W
Posted

Hi all. My name is Kathleen. I love this site and the forums that I have read so far. My twin sister has celiac disease really bad and is on a glutan free diet and has been on one for several years. This is weird, but I have SLE (Systemic Lupus Erythmetosis). Anyway for years I have had this horrible blistery itchy nasty rash on the palms of my hands and fingers and on the bottems of my feet and between my toes and on my toes. I have serious bathroom problems for example terrible bouts of diarrhea and gas etc. It is really bad for sure. She lives in Florida and I live in Georgia and she came up for a visit. She talked with me about my problems that I am having and the several trips to the doctor that sees me for my Lupus. She told me that I should be tested immediately for glutan intolerance since we are twins and I most likely have celiac disease. Well it turns out that I do definitely have it and have to go on a gluten-free diet. I am very new and this is really hard. She had been trying to tell me for several years and I unfortunately would not listen until it became very severe. When I told her the news she said see I have been telling your for years that you may have celiac disease and you would not listen to me. I guess I was in a terrible state of denial, because man I love cookies, cakes, breads etc. Thanks for letting me share. I am going to check out the recipes in this site and buy me a bread making machine. Feel free to email me if you like.

Kathleen W.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

Kathleen: There are MANY gluten free bakeries/retailers which produce a WIDE variety of great gluten free breads, muffins, bagels, cookies, cakes, pastas, etc. So you don't have to bake your own bread, unless you really enjoy that. I personally like Food for Life breads and almost anything from Ener-G Foods which is my local Seattle-based gluten-free bakery retailer. I'm not that familiar with this website, but I believe they list gluten free retailers somewhere here. If you try a gluten-free bread or cooky and don't like it, try another variety or brand. There are enough different brands and varieties to suit all kinds of gluten free tastes, that you are certain to find something if you keep looking. Ener-G Foods sells a bread sampler package with 2 slice packages of many of the breads they make. Perhaps other companies do something similar. Good luck with gluten sleuthing. ;)

BURDEE

  • 3 years later...
prettyXmuchXrad Newbie
prettyXmuchXrad
Posted

My little brother got diagnosed a few months before I did. It's nice to have somebody close that understands!

Daughter-of-TheLight Apprentice
Daughter-of-TheLight
Posted

My little bro has it too... And he eats my chocolate dounuts... <_< kinda annoying... He's not on here. Or I would be hiding from shame.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,914
    • Most Online (within 30 mins)
      7,748
    ChrisMary
    Newest Member
    ChrisMary
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.