Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Possible Celiac Needs Our Help


Nantzie

Recommended Posts

Nantzie Collaborator

I've been going to Yahoo Answers for a while now, answering questions that come up about celiac and related issues.

Today I saw something that scared me to death (emphasis mine):

"My SIS imagines her nose runs when she eats gluten or dairy food, and it keeps her awake.?

I have watched her closely, especially when she has given in and eaten something containing gluten and/or dairy products (usually cake, unfortunately) and the only time she had this symptom was when she had a cold. She is 84 and has starved herself so badly she looks like a skeleton covered in skin. Is she suffering from hypochondria or some sort of food phobia? Sometimes when I've managed to get a reasonably decent meal into her she has brought it up. She tends to make light of this problem and concentrate on the imagined symptoms. When we visited a friend suffering from hay fever she told us she had woken up with sore eyes as well as a runny nose, yet that morning she had assured me she slept very soundly. She certainly had no sign of a runny nose. "

The only other two answers other than mine are one person saying to get her doctor to tell this woman's sister to eat dairy and gluten, and another person just saying it was somatic.

There's no way to know of course if this poor woman has celiac just by reading this, but it really sounds likely to me. She should at least be tested for it. Just that an 84 year old woman knows the word gluten is a big sign that something is going on.

I'm hoping that some other people here can go to this Yahoo Answers question and post answers encouraging this woman to take her sister to a doctor and insist on being evaluated for celiac.

Please help ... :(

Open Original Shared Link

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Good idea, I did it. I'm sixgoofykids.

Mtndog Collaborator

thank you for letting us know about this. I answered too!

Nantzie Collaborator

Thanks guys. :)

Nancy

Nantzie Collaborator

An update, from the sister -

"Please understand my sister-in-law DOESN'T suffer from the symptoms she complains of. The only time she was sniffly was when she caught a cold. I would guess she brings up her meals (which is only occasionally, not all the time) because her years of self-starvation have made a decent meal difficult to keep down. I just want to know why someone would put herself through all this agony for no reason. When she DOES eat gluten and dairy food they seem to do her no harm at all."

I'm SO mad I'm shaking. I mean, take your sister to the DOCTOR and stop "guessing" as to why she's so sick.

If anyone wants to go back and try to talk some sense into this woman, at the end of your answer theres an edit button and you can add more information to the end of your answer.

Nancy

Riayn Newbie

The sister may be right. It almost sounds to me like this poor lady is in the early stages of dementia.

Yes, she should be checked for signs of food intolerances, but she should also talk to a doctor who is experienced in geriatric health.

Nantzie Collaborator

She posted again today, and it turns out that it's the SIL who refuses to go to the doctor (which she didn't mention before). Her SIL will only go to a naturopath-type doctor.

So it's a whole different situation. If I had known that it was the SIL not wanting to go, and not the person posting the question not wanting to take her, I would have answered it much differently.

I told her that she might want to contact the department of social services to see if they either could talk to her SIL and see if they could convince her to at leasted be evaluated by an MD, or maybe there was some sort of program she qualified for like home health or something.

Like you said, the important thing is that she be evaluated. There's no way to know if her problems have anything to do with food intolerances, but it's one of many things that needs to be looked at by an MD. At her age and frailty, with who knows how many years it's been since she's been to a doctor, it's probably a combination of at least a few things going on.

Very frustrating for all involved I'm sure.

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DaCat Rookie

So, does the sister-in-law refuse to take her to "any" doctor, or only her own naturopathic doctor? If it's the latter, please know that in many cases a naturopathic doctor can be of more help than a traditional doctor. I don't think it's fair for the sister-in-law to refuse to let "traditional" doctors help (if needed), but a naturopathic doctor (if well qualified) could be a world of help to this poor lady - even if it's dementia. They tend to go after the source of the problem, not just treat symptoms. Just my 2 cents.

~Shelly

Nantzie Collaborator

I agree about the naturopathic doctor to a point. I have a naturopathic doctor who is just wonderful who I admire and trust. I've seriously considered becoming an alternative medicine practitioner of some sort someday.

But at age 84, my concern would be that she's not getting the diagnostic workup that she needs. It could be a food intolerance and/or dementia, or it could be many other things. If this were my relative, who was very set on only being treated by a naturopath, I'd try and convince her to get some diagnostic work by an MD to see exactly what we're dealing with, find out from the MD what his/her recommendation would be as far as treatment, and then go to the naturopath. I'd then do as much as humanly possible naturopathically because that was what the sick person wanted.

My concern from the patient's point of view in this situation, which is probably why she won't go to the MD in the first place, is that the family would pressure her into doing whatever treatment the MD recommended and they wouldn't take her to the naturopath at that point. And it seems like the family isn't going to want to do anything in the way of special food needs. So I can't even imagine how that must be do deal with when you're the one who's sick.

If I ever became an alternative med practitioner it would be to work somehow along with MD's. Because there are serious limitations to both branches of medicine.

Nancy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      Insomnia help

    2. - wellthatsfun posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      nothing has changed

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      48

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,103
    • Most Online (within 30 mins)
      7,748

    Sandy the Celiac Mom
    Newest Member
    Sandy the Celiac Mom
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
    • Charlie1946
      Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless!
    • Charlie1946
      @trents thank you! I have only been taking 20mg 1x a day. Maybe I need to increase it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.