Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Children With Celiac

cdobbs

Recommended Posts

cdobbs Rookie
cdobbs
Posted

hi,

About 3 weeks ago I was diagnosed with celiac. My five year old came bACK WITH GLUTEN SENSITIVITY and I just received my 2 yr old results today. of course he has celiac. any advice with me being a full time working mom and providing meals for my son at daycare? I mean how can i keep him from feeling different or how do I know they arent cross contaminating the food? I am in a complete shock right now. Do I wait till he hits public scholl aged bc I can control his food better then? I dont have to worry about other kids giving him their food. well atleast not as much as 2 yr olds. Any advice with this would be great.

thanks

christi

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

You might also ask for help at the forum below. I know there are numerous people there who have faced this problem.

Open Original Shared Link

richard

tarnalberry Community Regular
tarnalberry
Posted

definitely don't wait to put him on a gluten-free diet. do investigate whether or not preschools need to follow regulations for dealing with the disabled (celiac falls under that label), and do get a bunch of research and go talk to the school. work with them, helping them understand what's going on and what needs to be done, and see how things go.

cdobbs Rookie
cdobbs
Posted
  • Author

thanks, its just frustrating when you really hoped the test would come back negative and they dont. i just wanted some posistive news. oh well. well get thru this as everyone else does.

thanks

christi

tarnalberry Community Regular
tarnalberry
Posted

you have positive news - you now know how to keep him healthy and feeling good! :-) (I'm one of those "find the bright side to everything" sort of people...) Seriously, with the way it affects the system, you could have been looking at far more frequent colds/flus/other illnesses, more upset stomachs and/or bowel problems, and problems with sleep/temper/mood. I know it's hard when starting out - it seems SO OVERWHELMING, but it will get better over time. Keep reading, keep learning, and keep cooking. I'm not a parent yet, so I'm not so helpful on the specific ideas, but between this board, and the delphiforums board, there are a lot of parents who'll be able to help you.

lesliewatts Newbie
lesliewatts
Posted

My daughter who has Celiac will be 2 in October, I am a housewife, so I don't deal with daycare, but I have friends whose kids have food allergies and have done fine. The big thing is to ALWAYS send his food and ask he be helped first. ALso ask for him to sit in the same cchair and space at the table to reduce contamination. Send his snacks and make sure they know he can't do play dough, fingerpaints and all other paints need to be checked.

Call me if you want to talk.

Leslie

919.852.0834

mpeel Newbie
mpeel
Posted

I discovered that my now 4 y/o probably has celiac just a month after returning to work fulltime. Talk about throwing you for a loop. Here is how I handle things:

1. I do NOT trust anyone to give her food I have not provided for her. Cross-contamination is too much of an issue.

2. I try to provide her with normal gluten-free food. She loves ham rolled around pickles (or cheese if your little one can handle that, we can't). Naturally gluten-free soups I make in my crock-pot while at work. Fruit, lots of fruit.

3. I cook/bake almost all weekend. I have a pretty good routine down and when it gets thrown off course, I am completely messed up for the week. I get up Saturday morning and get breakfast started (usually pancakes so they can be reheated all week or waffles). Then I start a load of laundry. I may also whip up some gluten-free muffins while cooking the pancakes. I have a great cookbook, well two actually, and bake lots from them so my girls do not feel left out. I can do gluten-free chocolate cupcakes, bread, brownies, muffins, chocolate chip cookies, etc. My girls never liked snadwiches much so I was accustomed to alternative lunches. :) Many potatoe chips are naturally gluten-free, same with corn chips.

4. We went nearly completely organic. The ingredient lists are so much easier to read. There is very little question about what this or that ingredient is. And, on the rare occasion there is, the product is often labeled gluten-free. My girls LOVE Envirokids cereals. Most are gluten-free and they have great old standbys -- KoalaKrisps are cocoa crispy type things. Panda Puffs are peanut butter like things, Gorilla munch is a lot like Kix and Amazon Flakes is a lot like Frosted Flakes. They are organic and gluten free and loved at my house. Plus, stuffed in a ziploc bag, their playmates never know they are not "normal" but healthy and safe.

5. Prepare prepare prepare. Get a freezer. Bake 5 batches of muffins on one weekend. Bake 4 batches of cupcakes the next. Get the idea. Then just pop them in containers and into the freezer. When packing a lunch, stick in an individual container and stick in their lunch box. It is thawed by lunch. If doing morning snack, you might want to stick it in the toaster oven for a couple of minutes to thaw it out some.

6. Mornings - I get up and hour and 15 minutes before the rest of the house. 1st I walk the dog (very relaxing) and then I make lunches. My girls are not old enough to do their own yet. Plus, I figure I am better able to handle the lack of sleep. My girls miss about 1/2 hour to 1 hour a day of the sleep they are supposed to be getting since we commute to school. I got fancy coolers for their lunches. There is a top semi-insulated compartment and a bottom very insulated compartment. Then there are a couple of pockets for utensils, napkins, etc.

I am sure I am forgeting something. This is so routine to me now, I barely think about it. Also, this has been a very stressful week for me. My mind is shot!

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Boojca Apprentice
Boojca
Posted

My son is 2 1/2 and was just diagnosed in June, he's in a daycare as well and I work full-time. I don't know what kind of daycare your son is in, mine is in a home so it's not a big center and he's been there since he was 8 weeks old and thankfully Debbie is maticulous about cleaning....she even cleaned out a whole crisper drawer just for his stuff!! My son doesn't have to be careful of dairy, though. So this may not help you if you do.

Anyway, here's what I send for his lunchs:

Hot Dogs (he can't get enough)

Ore-Ida French Fries (again, can't get enough)

Amy's Gluten-Free Cheese Pizza (I often make one for dinner then send the rest with him the next day for lunch, but I do leave a whole one in her freezer for "emergencies")

KinnikKinnick Bagels (cinnamon raisin are his favorite)

Bologna rolls or ham rolls with cheese

Pastito (?) Mac & Cheese (it's the gluten-free version of kraft, and it's pretty good)

Spaghetti

Chicken Nuggets (Homemade, the Welshire ones aren't available here)

I can't think of anything else, but maybe this will help??

hapi2bgf Contributor
hapi2bgf
Posted

My daughter has the peanut allergy, right now at least she is not a celaic - I am. I work full-time and she goes to day care full-time. I make extra portions for dinner and pack lunches with the leftovers right after dinner.

Most daycares are more than willing to help as long as you provide the info and the rules they need to work with. Just think of your child as money they DO NOT want to disappear. Mine goes to a peanut free school and they have all kinds of other food allergies there. I still had to teach them how to read the labels. I pack her party foods, but she can eat the regular meals. The teachers work with the kids to not grab and share foods and drinks. Also, leave a non-perishable snack bag in the classroom for the day that something comes up.

Provide whatever toys and supplies your child will need like play dough, paints, etc. Be very clear that the teacher and everyone understands the cross contamination problems.

Good luck

cdobbs Rookie
cdobbs
Posted
  • Author

thanks again. all the info given is extremely helpful. we are working on getting my kids gluten-free at school. its getting there slowly. my goal is to have the both of them totally gluten-free every where within a month. i think if i take it slow it will be alot easier on me than jumping straight into it like we did our home. if i could get some energy right now it would go faster but cant push myself to hard. anyways thank youll very much

christi

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    2. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    4. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748
    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.