Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Children With Celiac

cdobbs

Recommended Posts

cdobbs Rookie
cdobbs
Posted

hi,

About 3 weeks ago I was diagnosed with celiac. My five year old came bACK WITH GLUTEN SENSITIVITY and I just received my 2 yr old results today. of course he has celiac. any advice with me being a full time working mom and providing meals for my son at daycare? I mean how can i keep him from feeling different or how do I know they arent cross contaminating the food? I am in a complete shock right now. Do I wait till he hits public scholl aged bc I can control his food better then? I dont have to worry about other kids giving him their food. well atleast not as much as 2 yr olds. Any advice with this would be great.

thanks

christi

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lovegrov Collaborator
lovegrov
Posted

You might also ask for help at the forum below. I know there are numerous people there who have faced this problem.

Open Original Shared Link

richard

tarnalberry Community Regular
tarnalberry
Posted

definitely don't wait to put him on a gluten-free diet. do investigate whether or not preschools need to follow regulations for dealing with the disabled (celiac falls under that label), and do get a bunch of research and go talk to the school. work with them, helping them understand what's going on and what needs to be done, and see how things go.

cdobbs Rookie
cdobbs
Posted
  • Author

thanks, its just frustrating when you really hoped the test would come back negative and they dont. i just wanted some posistive news. oh well. well get thru this as everyone else does.

thanks

christi

tarnalberry Community Regular
tarnalberry
Posted

you have positive news - you now know how to keep him healthy and feeling good! :-) (I'm one of those "find the bright side to everything" sort of people...) Seriously, with the way it affects the system, you could have been looking at far more frequent colds/flus/other illnesses, more upset stomachs and/or bowel problems, and problems with sleep/temper/mood. I know it's hard when starting out - it seems SO OVERWHELMING, but it will get better over time. Keep reading, keep learning, and keep cooking. I'm not a parent yet, so I'm not so helpful on the specific ideas, but between this board, and the delphiforums board, there are a lot of parents who'll be able to help you.

lesliewatts Newbie
lesliewatts
Posted

My daughter who has Celiac will be 2 in October, I am a housewife, so I don't deal with daycare, but I have friends whose kids have food allergies and have done fine. The big thing is to ALWAYS send his food and ask he be helped first. ALso ask for him to sit in the same cchair and space at the table to reduce contamination. Send his snacks and make sure they know he can't do play dough, fingerpaints and all other paints need to be checked.

Call me if you want to talk.

Leslie

919.852.0834

mpeel Newbie
mpeel
Posted

I discovered that my now 4 y/o probably has celiac just a month after returning to work fulltime. Talk about throwing you for a loop. Here is how I handle things:

1. I do NOT trust anyone to give her food I have not provided for her. Cross-contamination is too much of an issue.

2. I try to provide her with normal gluten-free food. She loves ham rolled around pickles (or cheese if your little one can handle that, we can't). Naturally gluten-free soups I make in my crock-pot while at work. Fruit, lots of fruit.

3. I cook/bake almost all weekend. I have a pretty good routine down and when it gets thrown off course, I am completely messed up for the week. I get up Saturday morning and get breakfast started (usually pancakes so they can be reheated all week or waffles). Then I start a load of laundry. I may also whip up some gluten-free muffins while cooking the pancakes. I have a great cookbook, well two actually, and bake lots from them so my girls do not feel left out. I can do gluten-free chocolate cupcakes, bread, brownies, muffins, chocolate chip cookies, etc. My girls never liked snadwiches much so I was accustomed to alternative lunches. :) Many potatoe chips are naturally gluten-free, same with corn chips.

4. We went nearly completely organic. The ingredient lists are so much easier to read. There is very little question about what this or that ingredient is. And, on the rare occasion there is, the product is often labeled gluten-free. My girls LOVE Envirokids cereals. Most are gluten-free and they have great old standbys -- KoalaKrisps are cocoa crispy type things. Panda Puffs are peanut butter like things, Gorilla munch is a lot like Kix and Amazon Flakes is a lot like Frosted Flakes. They are organic and gluten free and loved at my house. Plus, stuffed in a ziploc bag, their playmates never know they are not "normal" but healthy and safe.

5. Prepare prepare prepare. Get a freezer. Bake 5 batches of muffins on one weekend. Bake 4 batches of cupcakes the next. Get the idea. Then just pop them in containers and into the freezer. When packing a lunch, stick in an individual container and stick in their lunch box. It is thawed by lunch. If doing morning snack, you might want to stick it in the toaster oven for a couple of minutes to thaw it out some.

6. Mornings - I get up and hour and 15 minutes before the rest of the house. 1st I walk the dog (very relaxing) and then I make lunches. My girls are not old enough to do their own yet. Plus, I figure I am better able to handle the lack of sleep. My girls miss about 1/2 hour to 1 hour a day of the sleep they are supposed to be getting since we commute to school. I got fancy coolers for their lunches. There is a top semi-insulated compartment and a bottom very insulated compartment. Then there are a couple of pockets for utensils, napkins, etc.

I am sure I am forgeting something. This is so routine to me now, I barely think about it. Also, this has been a very stressful week for me. My mind is shot!

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Boojca Apprentice
Boojca
Posted

My son is 2 1/2 and was just diagnosed in June, he's in a daycare as well and I work full-time. I don't know what kind of daycare your son is in, mine is in a home so it's not a big center and he's been there since he was 8 weeks old and thankfully Debbie is maticulous about cleaning....she even cleaned out a whole crisper drawer just for his stuff!! My son doesn't have to be careful of dairy, though. So this may not help you if you do.

Anyway, here's what I send for his lunchs:

Hot Dogs (he can't get enough)

Ore-Ida French Fries (again, can't get enough)

Amy's Gluten-Free Cheese Pizza (I often make one for dinner then send the rest with him the next day for lunch, but I do leave a whole one in her freezer for "emergencies")

KinnikKinnick Bagels (cinnamon raisin are his favorite)

Bologna rolls or ham rolls with cheese

Pastito (?) Mac & Cheese (it's the gluten-free version of kraft, and it's pretty good)

Spaghetti

Chicken Nuggets (Homemade, the Welshire ones aren't available here)

I can't think of anything else, but maybe this will help??

hapi2bgf Contributor
hapi2bgf
Posted

My daughter has the peanut allergy, right now at least she is not a celaic - I am. I work full-time and she goes to day care full-time. I make extra portions for dinner and pack lunches with the leftovers right after dinner.

Most daycares are more than willing to help as long as you provide the info and the rules they need to work with. Just think of your child as money they DO NOT want to disappear. Mine goes to a peanut free school and they have all kinds of other food allergies there. I still had to teach them how to read the labels. I pack her party foods, but she can eat the regular meals. The teachers work with the kids to not grab and share foods and drinks. Also, leave a non-perishable snack bag in the classroom for the day that something comes up.

Provide whatever toys and supplies your child will need like play dough, paints, etc. Be very clear that the teacher and everyone understands the cross contamination problems.

Good luck

cdobbs Rookie
cdobbs
Posted
  • Author

thanks again. all the info given is extremely helpful. we are working on getting my kids gluten-free at school. its getting there slowly. my goal is to have the both of them totally gluten-free every where within a month. i think if i take it slow it will be alot easier on me than jumping straight into it like we did our home. if i could get some energy right now it would go faster but cant push myself to hard. anyways thank youll very much

christi

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,904
    • Most Online (within 30 mins)
      7,748
    AnneSN
    Newest Member
    AnneSN
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.