Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Intolerances


Katie618

Recommended Posts

Katie618 Apprentice

can any one help explain to me what a casein intolerance is...symptoms, what needs to be avoided, etc? thanks!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gadgetgirl Newbie

Casein is one of the proteins found in milk. Thus most everything derived from milk with have casein protein in it - sour cream, butter, cheese, etc.

I am also intolerant of casein - originally thought lactose was my real problem with dairy but even with the lactose-free milk I was still having some gas and bloating - just not as bad as with the regular milk. Over the years, I hadn't been consuming much dairy - except for my daily ice cream binge in the summer :huh: but once I got diagnosed both with Enterolabs and ELISA testing, I've stayed away from all forms of dairy and feel much better.

Hope this helps!

ArtGirl Enthusiast

Hi Katie

I dragged out the results of an Lame Advertisement food sensitivity test from several years ago and here's the list of things to avoid acording to them:

all milk products (obviously)

all cheeses (of course)

imitation milk products

lactaid milk

chocolate*

guar gum**

*chocolate: that's because most candy bars and chocolate chips are a milk chocolate. I have found a sweet dark chocolate bar that is very good and has no milk (or corn) - Newman's Own brand - have only seen it in health-food stores. It's really good chocolate, too.

**guar gum: I was puzzled by this and did a google search on it - here's the article from wickipedia

Open Original Shared Link

It does mention that it can be mixed with casein, so that's probably the reason. I have some NOW guar gum that lists all the things it doesn't have, and dairy/milk is not on this list, so will probably email them to find out if casein is in this product. Although, my milk sensitivity is not at all severe so will probably use it now and then anyway.

dlp252 Apprentice

I also have a casein intolerance. I think my main symptoms are nasal/sinus issues. I used to get sinus infections about every six weeks, and until last week, hadn't had a single one in a year! (I went gluten/casein free last December.) If I cheat with casein (which I don't do frequently, but have on ocassion), I feel the sinus issues worsening almost immediately. I've been glutened twice in the last year, and my symptoms from that seem to be more digestive in nature, so I'm fairly positive the casein was responsible for my infections.

RiceGuy Collaborator
Hi Katie

I dragged out the results of an Lame Advertisement food sensitivity test from several years ago and here's the list of things to avoid acording to them:

all milk products (obviously)

all cheeses (of course)

imitation milk products

lactaid milk

chocolate*

guar gum**

*chocolate: that's because most candy bars and chocolate chips are a milk chocolate. I have found a sweet dark chocolate bar that is very good and has no milk (or corn) - Newman's Own brand - have only seen it in health-food stores. It's really good chocolate, too.

**guar gum: I was puzzled by this and did a google search on it - here's the article from wickipedia

Open Original Shared Link

It does mention that it can be mixed with casein, so that's probably the reason. I have some NOW guar gum that lists all the things it doesn't have, and dairy/milk is not on this list, so will probably email them to find out if casein is in this product. Although, my milk sensitivity is not at all severe so will probably use it now and then anyway.

Thanks for pointing this out. I just got that same brand of guar gum, never imagining it might be mixed with other stuff. To me, when a product is also a specific substance, it shouldn't be labeled as that substance if it contains other things. I keep finding this concept doesn't seem to hold true very often :angry: I will also email them and ask, and perhaps at least one of us will receive a response. Although the trouble I was seeing might have been caused by other stuff, I am still avoiding casein for awhile just in case. I figure better safe than sorry.

RiceGuy Collaborator

I emailed Now Foods about the guar gum, and they actually answered in an incredibly short time, like they are right there taking messages!

Anyway, here's what they said:

"This product is 100% pure guar gum. It has no other added ingredients."

The product description on their site does say "Derived entirely from guar beans.", so perhaps this is meant to indicate no other ingredients. I hope they update the Free Of list though, just to make it clear.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

    2. - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    4. - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

    5. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748

    Joyce B
    Newest Member
    Joyce B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.