Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did Anyone's Constipation Get Worse?


Anonymousgurl

Recommended Posts

Anonymousgurl Contributor

deleted


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Have you ever been tested for low thyroid? That can cause your whole system to slow down, including your intestines. And even if your blood tests appear to show that your thyroid function is normal, temperature is a much better indicator. If your body temperature is consistently below normal, you have a problem with your thyroid.

plantime Contributor

You also might not be getting enough fiber in your diet. If there isn't enough bulk, the muscles won't be able to push it through.

Anonymousgurl Contributor
Have you ever been tested for low thyroid? That can cause your whole system to slow down, including your intestines. And even if your blood tests appear to show that your thyroid function is normal, temperature is a much better indicator. If your body temperature is consistently below normal, you have a problem with your thyroid.

Funny that you say that about body temperature...My hands are always ice cold and I can never get warm. My poor family has to walk around the house sweating because I turn the heat up so high. But I have been tested for low thyroid and I dont think they found my thyroid to be a problem....is there anything I can do about it?

Ursa Major Collaborator

Check out these links, to see if any of that fits.

Open Original Shared Link

Open Original Shared Link

Jestgar Rising Star

Exercise might help. Or coffee. Or getting really scared (adrenaline rush). Vitamin C is a laxative if you take a lot (be careful, the reaction is delayed).

I'm confused. If you don't go for a couple weeks, how could it not be hard?

Nancym Enthusiast

Seeds, like raw sunflower seeds, pumpkin seeds, do the trick for me. Too dang well...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



key Contributor

I have the same problem. If I am gluttened, I have the same problem. The only thing that helps some is to take Citrucel. Fiber doesn't do any good and makes my stomach hurt. Try citrucel twice a day and make sure you are gluten free. You become more sensitive the longer you are gluten free. AT least that was the case for me.

Monica

Rachel--24 Collaborator
Funny that you say that about body temperature...My hands are always ice cold and I can never get warm. My poor family has to walk around the house sweating because I turn the heat up so high. But I have been tested for low thyroid and I dont think they found my thyroid to be a problem....is there anything I can do about it?

I have the same problem and it seems like most of the people with Lyme experience it as well. My Dr. said the bacteria likes a cold environment....all pathogens do....so the Babesia would also prefer a low body temp. He told me to make sure I always stay warm beacuse it will help my body fight the infection. He also said that the lower my body temp gets the worse my allergies will be. I'm suppossed to never eat anything cold....everything I eat or drink should be heated or at least room temp. I've been doing it and its actually helped because I dont get as many chills.

Many Lyme Disease patients have routinely subnormal body temperatures so that the appearance of a temperature of 98.6 degrees F may be compatible with a low grade fever analogous to diabetics.
Increasingly, I am encountering thyroid disease in Lyme Disease. A local endocrinologist has remarked to me privately that the incidence of thyroid involvement in LD may be greater than expected from the normal population. A final judgement awaits formal statistical analysis. In many of these patients, the thyroid dysfunction was seen to originate in the pituitary or hypothalmus. Remaining alert to the possibility of thyroid disease is essential because there can be considerable clinical overlap with LD. Subacute thyroiditis is the most prevalent thyroid phenomenon I see in LD. Hypoadrenalism can uncommonly develop. Uncorrected hormonal aberrations can vitiate otherwise effective LD therapy. Like any infection, LD can provoke the onset of hyperglycemia and alter the facility with which diabetes is managed.

From all that I've read about Lyme and thyroid issues....they kind of go hand-in-hand. Its probably why I got Graves Disease to begin with. Lyme can have a big impact on the endocrine system as a whole. Treatment of Lyme ususally corrects the problem but in the meantime you need to make sure if your numbers are ok. People with Lyme feel better with their TSH in 1-2 range....anything above that and you might want to add some T4/T3.

I read that Lyme patients *need* T3 added in. I take Armour which contains both T4 and T3. My numbers are good and I have no fatigue or other Hypo symptoms except for the low body temp. I dont think that gets better until the infection gets better. :(

Interestingly, a low body temp causes the body's enzyme systems to work inefficiently because enzyme function is very temperature sensitive. Enzymes are essential for digestion so this could account for alot of the food intolerances we get.

I would really look into your thyroid levels since you also have the sluggish digestive system. I had that really bad earlier in the year and I believe at that time I had switched thyroid meds and my TSH went up over 6. Around that time I had a colonoscopy and had been constipated for about 2 weeks. The GI said I had large amounts of impacted stool and that my digestion was extremely slow.

Constipation severe enough to cause fecal impaction can occur. Many LD patients will experience a spastic (irritable) colon and that diagnosis should spark a search for LD.

Funny thing is I had an ultrasound in the summer (for ovarian cyst) and the OBGYN couldnt even *see* my ovaries because my intestines were "all over the place". She showed me the monitor and told me that the movement that was going on was something she had never seen before. She said whatever was going on was not normal and shouldnt be occurring. :huh:

I wonder if that would have been the same as a spastic colon?? She said it looked to her like my intestines were overactive....maybe trying to digest.

Maybe something similar is going on with you with the motitlity problems?? I think its worth looking into. Matter of fact after reading all this I'm gonna get my thyroid levels checked next week to make sure they're still good. Heck...if my numbers arent good it sounds like that could really affect enzyme function and digestion.....which could definately cause more food intolerances (although I think I'm pretty maxed out in that area :P ).

This is the site where the quotes came from. "When to look for Lyme" The article is long but one of the best I've read as far as mentioning all of the associated conditions and symptoms caused by Lyme.

Open Original Shared Link

Anonymousgurl Contributor

Rachel-

Wow, you are an amazing researcher. LoL. Now you have convinced me that I have a thyroid issue! I mean, it makes perfect sense...plus I think that everytime I get checked through BioSET my thyroid is off. So what did you do through that period of time when your bowels were slow? Did they improve when you switched thyroid medication?

Kassie Apprentice

being at a very low body weight can cause you to have constipation and also prevent you from keeping your body tempt. up causing you to be cold all the time. i dont know if your are but thats just a possibility

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    2. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748

    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.