Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How High Were Your Numbers?


jen2be2

Recommended Posts

jen2be2 Explorer

Hi there!

I just got the numbers from the kids lab work. I was curious to see what others numbers were and how severe the celiac disease was when digosed.

Shaylin (18 months) #169. She was severly sick.

Jiselle (4 years) #216. No symptoms. Tested because of Shaylin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Villanfam

If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

My Son 8yrs old 47lbs

Gliadin IgG = 173.9 H

Reference range 3yrs and older:

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

Gliadin IgA = 37.9 H

Reference range 3ys and older

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

My daughter 3yrs 23lbs

Gliadin IgG = 60.5 H

Reference range 0-2yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Gliadin IgA = 27.2 H

Reference range 0-2 yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Guest Villanfam

Oh yeah, my daughter was 2 at the time when the test was done. She will be 3 tomorrow!!!! :D

jen2be2 Explorer
If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

OK.

IgA testing scale that this lab(lab corp) used for both the girls tests are :

IgA~ 0-3 = Negative

4-10= Weak Positive

10 and over = Positive

Congrats to your DD on her birthday! Jiselle just turned 5 yesterday! :D

Shaylin's bio. came back + for celiac disease yesterday. I am just so glad that we finally got an answer to why she is so sick. She has been gluten-free since last Wednesday and she is doing so much better, but we still have a long way to go.

Guest Villanfam

Holy cow those are some high IgA's. Yeesh. No symptoms on Jiselle? I found out right a long with them that I have it. Well, I read about it in "Living gluten-free for Dummies" and found out for the 1st time that I couldn't eat pasta/bread/bagels/cookies/cakes/ect. because of a disease!!! And, I never would have thought that my kids had the same problem with wheat/gluten. They did not have any of my symptoms (GI related), but I read in that book ("Living gluten-free for Dummies") that celiac disease is linked to Autism-my Son, ADHD-my son again, Aches(bone/joint pain)-also my son, irritability-all 3 of my kids, short statue-all 3 of my kids, distended abdomen-my baby girl. I have since found out that there are several other neurological symptoms associated with celiac disease! A lot of which my kids and my self have. Check out this thread Open Original Shared Link. It's a really good read!

Oh, thank you, and congrats on your little girl turning 5! It's a fun age :P

Courtney

jen2be2 Explorer

Yeah, I thought the numbers were high too.

Jiselle really did not have any symptoms. I thought it was so strange that she had it. I thought for sure that my son would have it, but he came back less than 2.

I thought for sure that I would have it as well, since I have been anemic my whole life and the fact that I was dignosed with IBS with D in my early 20's, but my Celiac panel came back -. When I told my mom, she was so schocked that I did not have it too, that she could not say anything for a minute~ that is a truly rare thing for my mom to be speechless. :)

rez Apprentice

My son's tTG is only 8.4, but he's been on a gluten free diet for 4 months. Normal is below 7. We were given given the wrong blood test four months ago and went for a second opinion. I'm so frustrated since now I don't know if the biopsy will be accurate now. UUUUGG!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MomandDadtoOGS Newbie

When the Ig panels were run in August, our daughter's all came back within normal range. Our immunologist ran just about every one out there for us.

She had her ttg done on 10/27/06-- 480! Our Ped GI/lab uses anything under 20 as normal.

Her biopsy was done the same day and showed significant damage to the small intestine.

Her symptoms were: belly pain, gastroparesis, GERD, and frequently loss/gain of weight w/o diarrhea.

Nikki2003 Contributor

Nicole-- 80 Positive

Normal range

<20

Alivia--32.4 H

Normal range

<4

they were tested at 2 different labs at different times

had alivia tested because nicole was positive,no symptoms

but nicole was very sick

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.