Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How High Were Your Numbers?


jen2be2

Recommended Posts

jen2be2 Explorer

Hi there!

I just got the numbers from the kids lab work. I was curious to see what others numbers were and how severe the celiac disease was when digosed.

Shaylin (18 months) #169. She was severly sick.

Jiselle (4 years) #216. No symptoms. Tested because of Shaylin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Villanfam

If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

My Son 8yrs old 47lbs

Gliadin IgG = 173.9 H

Reference range 3yrs and older:

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

Gliadin IgA = 37.9 H

Reference range 3ys and older

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

My daughter 3yrs 23lbs

Gliadin IgG = 60.5 H

Reference range 0-2yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Gliadin IgA = 27.2 H

Reference range 0-2 yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Guest Villanfam

Oh yeah, my daughter was 2 at the time when the test was done. She will be 3 tomorrow!!!! :D

jen2be2 Explorer
If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

OK.

IgA testing scale that this lab(lab corp) used for both the girls tests are :

IgA~ 0-3 = Negative

4-10= Weak Positive

10 and over = Positive

Congrats to your DD on her birthday! Jiselle just turned 5 yesterday! :D

Shaylin's bio. came back + for celiac disease yesterday. I am just so glad that we finally got an answer to why she is so sick. She has been gluten-free since last Wednesday and she is doing so much better, but we still have a long way to go.

Guest Villanfam

Holy cow those are some high IgA's. Yeesh. No symptoms on Jiselle? I found out right a long with them that I have it. Well, I read about it in "Living gluten-free for Dummies" and found out for the 1st time that I couldn't eat pasta/bread/bagels/cookies/cakes/ect. because of a disease!!! And, I never would have thought that my kids had the same problem with wheat/gluten. They did not have any of my symptoms (GI related), but I read in that book ("Living gluten-free for Dummies") that celiac disease is linked to Autism-my Son, ADHD-my son again, Aches(bone/joint pain)-also my son, irritability-all 3 of my kids, short statue-all 3 of my kids, distended abdomen-my baby girl. I have since found out that there are several other neurological symptoms associated with celiac disease! A lot of which my kids and my self have. Check out this thread Open Original Shared Link. It's a really good read!

Oh, thank you, and congrats on your little girl turning 5! It's a fun age :P

Courtney

jen2be2 Explorer

Yeah, I thought the numbers were high too.

Jiselle really did not have any symptoms. I thought it was so strange that she had it. I thought for sure that my son would have it, but he came back less than 2.

I thought for sure that I would have it as well, since I have been anemic my whole life and the fact that I was dignosed with IBS with D in my early 20's, but my Celiac panel came back -. When I told my mom, she was so schocked that I did not have it too, that she could not say anything for a minute~ that is a truly rare thing for my mom to be speechless. :)

rez Apprentice

My son's tTG is only 8.4, but he's been on a gluten free diet for 4 months. Normal is below 7. We were given given the wrong blood test four months ago and went for a second opinion. I'm so frustrated since now I don't know if the biopsy will be accurate now. UUUUGG!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MomandDadtoOGS Newbie

When the Ig panels were run in August, our daughter's all came back within normal range. Our immunologist ran just about every one out there for us.

She had her ttg done on 10/27/06-- 480! Our Ped GI/lab uses anything under 20 as normal.

Her biopsy was done the same day and showed significant damage to the small intestine.

Her symptoms were: belly pain, gastroparesis, GERD, and frequently loss/gain of weight w/o diarrhea.

Nikki2003 Contributor

Nicole-- 80 Positive

Normal range

<20

Alivia--32.4 H

Normal range

<4

they were tested at 2 different labs at different times

had alivia tested because nicole was positive,no symptoms

but nicole was very sick

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.