Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How High Were Your Numbers?


jen2be2

Recommended Posts

jen2be2 Explorer

Hi there!

I just got the numbers from the kids lab work. I was curious to see what others numbers were and how severe the celiac disease was when digosed.

Shaylin (18 months) #169. She was severly sick.

Jiselle (4 years) #216. No symptoms. Tested because of Shaylin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Villanfam

If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

My Son 8yrs old 47lbs

Gliadin IgG = 173.9 H

Reference range 3yrs and older:

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

Gliadin IgA = 37.9 H

Reference range 3ys and older

25.0 EU or less........negative

25.1 - 29.9 EU.........equivocal

30.0 EU or greater...positive

My daughter 3yrs 23lbs

Gliadin IgG = 60.5 H

Reference range 0-2yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Gliadin IgA = 27.2 H

Reference range 0-2 yrs:

20.0 EU or less........negative

20.1 - 24.9 EU.........equivocal

25.0 EU or greater...positive

Guest Villanfam

Oh yeah, my daughter was 2 at the time when the test was done. She will be 3 tomorrow!!!! :D

jen2be2 Explorer
If you can post the reference ranges, it would make it easier to compare. Here are my kiddos :)

OK.

IgA testing scale that this lab(lab corp) used for both the girls tests are :

IgA~ 0-3 = Negative

4-10= Weak Positive

10 and over = Positive

Congrats to your DD on her birthday! Jiselle just turned 5 yesterday! :D

Shaylin's bio. came back + for celiac disease yesterday. I am just so glad that we finally got an answer to why she is so sick. She has been gluten-free since last Wednesday and she is doing so much better, but we still have a long way to go.

Guest Villanfam

Holy cow those are some high IgA's. Yeesh. No symptoms on Jiselle? I found out right a long with them that I have it. Well, I read about it in "Living gluten-free for Dummies" and found out for the 1st time that I couldn't eat pasta/bread/bagels/cookies/cakes/ect. because of a disease!!! And, I never would have thought that my kids had the same problem with wheat/gluten. They did not have any of my symptoms (GI related), but I read in that book ("Living gluten-free for Dummies") that celiac disease is linked to Autism-my Son, ADHD-my son again, Aches(bone/joint pain)-also my son, irritability-all 3 of my kids, short statue-all 3 of my kids, distended abdomen-my baby girl. I have since found out that there are several other neurological symptoms associated with celiac disease! A lot of which my kids and my self have. Check out this thread Open Original Shared Link. It's a really good read!

Oh, thank you, and congrats on your little girl turning 5! It's a fun age :P

Courtney

jen2be2 Explorer

Yeah, I thought the numbers were high too.

Jiselle really did not have any symptoms. I thought it was so strange that she had it. I thought for sure that my son would have it, but he came back less than 2.

I thought for sure that I would have it as well, since I have been anemic my whole life and the fact that I was dignosed with IBS with D in my early 20's, but my Celiac panel came back -. When I told my mom, she was so schocked that I did not have it too, that she could not say anything for a minute~ that is a truly rare thing for my mom to be speechless. :)

rez Apprentice

My son's tTG is only 8.4, but he's been on a gluten free diet for 4 months. Normal is below 7. We were given given the wrong blood test four months ago and went for a second opinion. I'm so frustrated since now I don't know if the biopsy will be accurate now. UUUUGG!!!!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MomandDadtoOGS Newbie

When the Ig panels were run in August, our daughter's all came back within normal range. Our immunologist ran just about every one out there for us.

She had her ttg done on 10/27/06-- 480! Our Ped GI/lab uses anything under 20 as normal.

Her biopsy was done the same day and showed significant damage to the small intestine.

Her symptoms were: belly pain, gastroparesis, GERD, and frequently loss/gain of weight w/o diarrhea.

Nikki2003 Contributor

Nicole-- 80 Positive

Normal range

<20

Alivia--32.4 H

Normal range

<4

they were tested at 2 different labs at different times

had alivia tested because nicole was positive,no symptoms

but nicole was very sick

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,236
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.