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Feet Trouble Could It Be Gluten Related?


lilmama

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lilmama Apprentice

For the last week I have been feeling like pins are in my toes and a burning feeling in my feet when I walk or just slight pressure is applied to my feet. Is this normal? Will it go away. The burning feeling is different then what I had 1 1/2 yrs ago . That was dx as perphial neuropathy(killed the spellng on that) This is so different also my feet bottoms actually have a grey look to them.


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darlindeb25 Collaborator

Could still be periphreal neuropathy--it changes. The feelings may last a short time and go away or they may stay with you. I have a new feeling in my feet, it's like I am standing on a vibrating cellphone. Some tell me it may be nerves finally healing, I guess they tend to vibrate like that. I hope it is healing!

sparkles Contributor

I have peripheral neuropathy in feet, legs, arms, hands. The burning sensation and the tingling are not signs of healing... at least in my understanding.... but rather the symptoms of the neuropathy. I see a neurologist and though I am diabetic she feels that the my neuropathy is also caused from malabsorbtion of vitamins and minerals specifically the B complex. I am on B complex supplements and B12 shots. From what I have read, the neuropathy most likely will not heal. The neurological damage caused from the celiac disease is permanent. The neuropathy drugs do not help. My neurologist suggested acupuncture and aquatic therapy. Nothing has helped the pain, tingling, numbness, etc. Right now I am beginning to experience more pain and tingling in the toes and the top of my foot. I saw the neurologist the other day and she said that it is just the neuropathy going to other parts of my foot. It is all rather discouraging. I hope that in your case that the destruction is not permanent. Be sure to have your vitamin and mineral levels checked on a regular basis. That can make a difference. Good luck!

RiceGuy Collaborator

Two thing I found had contributed to this type of symptom for me. One was nightshade foods, and the other seems to have been a bit of a lack in B12. The way I understand it, the more permeable gut lets the alkalies in nightshades get into the bloodstream in higher amounts than it otherwise would, and the weakened digestive ability means we tend to get less nutrients from our food. I've read magnesium is another common deficiency, and that it further contributes to the malabsorption.

For the B12, I have been taking a sublingual type of methylcobalamin, which studies show is the best kind to take.

darlindeb25 Collaborator

You're right Sparkles, tingling and burning are symptoms of neuropathy. What I mentioned is buzzing, like a vibration in my feet--in the neuropathy forum, I was told this can be a sign of healing, especially since it is a new sensation for me. I have had neuropathy for 9 years now and have had so many different feelings, the water running down my leg, the cold spots, bugs crawling on me, the tingling, the burning, swelling, pinched nerve feeling in my neck and shoulders, carpal tunnel in my hands. My neuropathy is in my arms, shoulders, neck, feet, legs, hips, and sometime skin surface is involved. I can't stand clothes touching me at times, hate shoes, etc.

I didn't mean to sound misleading--sorry.

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    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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