Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whole Grain Oats...


JerryK

Recommended Posts

JerryK Community Regular

I'm looking at a nature valley, Oats 'n Honey Gronola Bar here.

I know there seems to be some debate about oats in general. The indredients say:

"WHOLE GRAIN ROLLED OATS, SUGAR, CANOLA OIL, CRISP RICE WITH SOY PROTEIN (RICE FLOUR, SOY PROTIEN CONCENTRATE, SUGAR, MALT, SALT) HONEHY, BROWN SUGAR SYRUP, HIGH FRUCTOSE CORN SYRUP, SALT SOY LECITHIN, BAKING SODA, NATURAL FLAVOR, PEANUT FOUR, ALMOND FLOUR, PECAN FLOUR...

CONTAINS SOY, PEANUT, ALOMOND AND PECAN INGREDIENTS.

Bad...good? Any thoughts. Thanks, Jerry


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi Jerry, This is off limits regardless of the oats because it contains malt. Malt is derived from barley unless stated clearly otherwise. Malt is also the reason we can not eat most mainstream cereals even rice crispies or corn pops.

Atkins used to make a couple of breakfast type bars that were good and were safe although call to make sure they still are before you try them. The strawberry was real good IMHO. In addition Glutino makes a line of filled bars that are okay and there are others.

JerryK Community Regular
Hi Jerry, This is off limits regardless of the oats because it contains malt. Malt is derived from barley unless stated clearly otherwise. Malt is also the reason we can not eat most mainstream cereals even rice crispies or corn pops.

Thanks much. What about just plain oats..Quaker Oats, etc...if you find stuff without malt??

dlp252 Apprentice
Thanks much. What about just plain oats..Quaker Oats, etc...if you find stuff without malt??

I wouldn't do Quaker just because of cross-contamination issues. If you want to try oats, try the *real* Irish type oats, but just be forwarned that many people have a reaction to oats because I believe the structure of the protein is similar enough to gluten. (Could be wrong about that last half of the sentence though.)

Katie618 Apprentice

oats would normally be a "safe" food, it is considered unsafe because of how the oats are harvested and processed. equipment used to harvest wheat is also is used to harvest oats; then are processed on the same line as the wheat- therefore creating cross contamination (CC). some celiacs are not affected by this- i believe most just stay away for the risk. if you are looking for a breakfast bar, or a "power" bar there are some- Maya, Larabar, Boomi Bars... check out glutenfreemall.com, there is a whole section entitled "bars"

i would suggest printing out the safe and forbidden foods list on this website, they are very helpful- i've been gluten-free since the middle of june- and i still use the lists all of the time!!

tarnalberry Community Regular

Yep - those particular bars (and many like them) have malt, and the labeling laws don't require any further disclosure than what you see in the ingredients, as malt is usually barley derived, and barley is not one of the eight major allergens.

As for regular whole oats:

1) The Contamination Issue

There is a major cross contamination issue with oats. Given the growing, processing, and packaging conditions for oats, it's no surprise that a study of major brands, including Country Pride, McCanns, and Quaker, have shown *ALL* of those brands to be *CONSISTENTLY* contaminated at levels even above the European CODEX standard of 200ppm. Even Quaker tells Celiacs who call not to use their products due to contamination.

There are two companies in the US, and one in Canada, that produce oats that are managed in a way that is intended to keep them from being contaminated with wheat. Open Original Shared Link is one of them in the US, and Open Original Shared Link is the one in Canada.

2) The Cross Reactivity Issue

The main protein in oats - avenin - has a stretch of amino acids on it that is very similar, chemically and physically, to the stretch of 33 amino acids on the wheat protein - gliadin - that causes the autoimmune reaction. These two portions are less similar than the wheat protein and the barley or rye protein, but much more similar than the wheat protein and rice or corn protein.

Studies have shown that approximately 10% of celiacs react to pure, lab-grown oats with the same villi-damaging autoimmune reaction as with wheat. There is no seriologic test to find out if any particular person is one of this 10%, unfortunately.

kbtoyssni Contributor

There is a company in Canada that makes gluten-contamination free oats. If you do decide to try oats hoping that you're one of the 90% who won't react, you might be able to find them at a gluten-free/health food-type store. That's where I found mine (and I live in the USA).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Jerry, to summarize what everyone has already said, if you want to try oats, you have to get the ones that are labeled gluten-free. Some people will still react due to the similarity of the oat protein to the wheat protein.

Any oats not labeled gluten-free are most likely contaminated ... that especially includes Quaker ... I won't even eat their rice cakes!!

For other products, you don't necessarily have to look for a marking of "gluten-free", but for oats, you do.

Susanna Newbie
Thanks much. What about just plain oats..Quaker Oats, etc...if you find stuff without malt??

Good news--there is now a company (Gifts of Nature) providing the first certified gluten free oats. I read about this in Living Without Magazine. Evidently, these oats are grown in dedicated fields (as opposed to most oats, which may be grown in fields rotated with wheat crops), and they're processed in dedicated gluten free facilities. Most experts now seem to agree that oats are genetically enough different from wheat/barley/rye glutens that they are safe for celiacs. So, if indeed the cross contamination issue is addressed, like Gifts of Nature claims, their oats should be safe for us. Here's the info:

Open Original Shared Link

Personally, I've eaten the Irish steel cut oats, as well as Health Valley oatmeal cookies, and have not had problems.

Susanna

mtdawber Apprentice
As for regular whole oats:

1) The Contamination Issue

There is a major cross contamination issue with oats. Given the growing, processing, and packaging conditions for oats, it's no surprise that a study of major brands, including Country Pride, McCanns, and Quaker, have shown *ALL* of those brands to be *CONSISTENTLY* contaminated at levels even above the European CODEX standard of 200ppm. Even Quaker tells Celiacs who call not to use their products due to contamination.

There are two companies in the US, and one in Canada, that produce oats that are managed in a way that is intended to keep them from being contaminated with wheat. Open Original Shared Link is one of them in the US, and Open Original Shared Link is the one in Canada.

2) The Cross Reactivity Issue

The main protein in oats - avenin - has a stretch of amino acids on it that is very similar, chemically and physically, to the stretch of 33 amino acids on the wheat protein - gliadin - that causes the autoimmune reaction. These two portions are less similar than the wheat protein and the barley or rye protein, but much more similar than the wheat protein and rice or corn protein.

Studies have shown that approximately 10% of celiacs react to pure, lab-grown oats with the same villi-damaging autoimmune reaction as with wheat. There is no seriologic test to find out if any particular person is one of this 10%, unfortunately.

Thank you for this post - it helped me a lot as I am also new to this! :rolleyes:

  • 4 weeks later...
Guest LJannise

Been there, done that... it's a fire waiting to happen :ph34r::angry:

azmom Newbie

I've tried the Gifts of Nature oats..made granola w/ them and it was yummy!! The whole family loved it (2 gluten-free, 2 not). I bought them at a Wild Oats store.

Jennas-auntie Apprentice

I've heard that if you are wondering if you are part of the 10% that react, once your labs are good again, if you wish to try out oats (the noncontaminated kind) you can do so and then get retested labwise to see if your numbers go up or not. Some people who react to gluten or to oats don't show obvious signs. Maybe someone else on here will weigh in on this.

tarnalberry Community Regular
I've heard that if you are wondering if you are part of the 10% that react, once your labs are good again, if you wish to try out oats (the noncontaminated kind) you can do so and then get retested labwise to see if your numbers go up or not. Some people who react to gluten or to oats don't show obvious signs. Maybe someone else on here will weigh in on this.

That is an option, and how they determined the issue in the first place. But it's also why I suspect the number is actually higher than 10%. The results came from those who had intestinal damage after a few weeks on daily oats. We know from other studies, and our own experience, that it can take longer than a few weeks of gluten exposure, after having been gluten free, for damage to show up on a biopsy.

If you go this route, it would be similar to a gluten challenge - you would want to eat *a lot* of oats, every day, for a number of months prior to a thorough biopsy, and realize that it might still be a delayed reaction. (There are some reports that damage has not reoccured for years, though it did end up occuring again.)

mouth Enthusiast
I'm looking at a nature valley, Oats 'n Honey Gronola Bar here.

I know there seems to be some debate about oats in general. The indredients say:

"WHOLE GRAIN ROLLED OATS, SUGAR, CANOLA OIL, CRISP RICE WITH SOY PROTEIN (RICE FLOUR, SOY PROTIEN CONCENTRATE, SUGAR, MALT, SALT) HONEHY, BROWN SUGAR SYRUP, HIGH FRUCTOSE CORN SYRUP, SALT SOY LECITHIN, BAKING SODA, NATURAL FLAVOR, PEANUT FOUR, ALMOND FLOUR, PECAN FLOUR...

CONTAINS SOY, PEANUT, ALOMOND AND PECAN INGREDIENTS.

Bad...good? Any thoughts. Thanks, Jerry

Jerry,

I am very new to this, as my daughter was recently diagnosed. Acording to an article I read, this is really crazy, the FDA is sitting on the fence about oats. Outside the USA the guidelines for Celiac are different. Some countries say ok, some say no. Cereal? Believe it or not, at the moment TRIX is gluten free, I just called and bought a box for my daughter. The store I have been shopping at has alot of gluten-free foods. Adult cereal and kids. NO MALT.... If you go to a dietician, they can sometimes give you a list of stuff that are no=no's. and stuff that is ok, good to avoid.. i got that for my daughter. we take it shopping with us. Good luck..

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748

    Jem68
    Newest Member
    Jem68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.