Poll: Official Diagnosis Or ?

[par18]

Here! Here!!

Though, I'm finding that without an "official" diagnosis, some people (other doctors, hospital staff, etc) don't take ya seriously. When are they going to WAKE UP????

I hear what you are saying. To tell you the truth though even with my "official" diagnosis most people don't take my condition seriously. As far as doctors are concerned most don't understand Celiac to begin with so they could not help you if they tried. I make sure that I have a medical alert tag (bracelet or necklace) with me at all times when away from home. I think anyone could get or wear one. The main responsibility for our safety is unfortunately ourselves. I think the awareness is getting there but the support (resturants, hospitals etc.) is still lagging. The more of us (official or unofficial) who continue to request gluten free as part of our lifestyle the sooner this will happen. A good first step is to get the rest of the approximately 95% of us on board any way we can.

Tom

[emcmaster]

Here! Here!!

Though, I'm finding that without an "official" diagnosis, some people (other doctors, hospital staff, etc) don't take ya seriously. When are they going to WAKE UP????

I don't tell new doctors that I haven't been tested. I tell them I have Celiac and no one really asks questions after that. Don't doctors that are knowledgeable about celiac say that positive dietary response is often enough "proof" that someone has Celiac/gluten intolerance? IMO, it's enough for me.

[ryebaby0]

My son was diagnosed via staggeringly positive bloodtests followed by blindingly obvious biopsy; my husband was diagnosed via equivocal ttg, amazing dietary response, and no biopsy. (So I just didn't know which button to choose!)

joanna

[corinne]

Not sure how to answer this one. I was diagnosed with collagenous colitis by a biopsy. A gluten free diet often works for this disease so I tried it and was successful after eliminating dairy and some other foods.