Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovery Set Back? Tired And Headaches Again


imagine22

Recommended Posts

imagine22 Contributor

Hi,

I have been gluten free for 8 weeks. for the first 2 weeks i didnt feel that much better but between weeks 2-6 I felt amazing, so much more energy and no gastro complaints and I am no longer lactose intollerant.

Problem is for the last 2 weeks i have felt much worse again - have had occaisional dioreah (i dont think related to gluten consumption ie after a gluten free cake i made myself and had eaten on other occaisions without issue), I also feel really tired, vauge, and have terrible headaches every day.

I have been glutened about every forntight since trying to be gluten free and my reaction got much worse since being gluten free and is so obvious now (dioreah and stomach ache for 2 days) that im pretty sure im not accidently getting glutened, but i just dont understand why i feel so tired all over agian, and the headaches are all day long.

any ideas?

thanks,

k


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Here are my thoughts: I don't believe that your dairy intolerance can be gone this quickly, it usually takes much longer. Your symptoms are quite typical of dairy intolerance.

I also felt a ton better within two weeks of starting the gluten-free diet (and after a couple of weeks I eliminated all the other lectins besides gluten as well). All my aches and pains (which were so bad that I was on codeine 24 hours a day) had disappeared. But then after three months the terrible muscle pains came back.

I believe that once the villi heal, your body will absorb other foods again that cause problems. Once I eliminated salicylates, the pain went away again.

So, you might now need to do an elimination diet to figure out your other intolerances. I really think dairy is a likely culprit. The other foods that could be causing those symptoms are corn and soy, as well as possibly MSG.

imagine22 Contributor

thanks for your reply. I thhought i had a lactose intollerance as milk had always made me feel sick in the stomach and often get dioreah (but i was fine with cheese, custard etc?). Since being gluten free i can drink heaps of milk without feeling sick at all so i assumed i wasnt actually lactose intollerant it had just been a side effect of the villi damage.

If i am reacting to a dairy or other food intollerence or allergy can the skin prick tests pick this up or is an elimination diet the only method?

thanks for your help im reallly lost as to what to do next as my Dr and dietician seem to know less about celiac than i do!

Here are my thoughts: I don't believe that your dairy intolerance can be gone this quickly, it usually takes much longer. Your symptoms are quite typical of dairy intolerance.

I also felt a ton better within two weeks of starting the gluten-free diet (and after a couple of weeks I eliminated all the other lectins besides gluten as well). All my aches and pains (which were so bad that I was on codeine 24 hours a day) had disappeared. But then after three months the terrible muscle pains came back.

I believe that once the villi heal, your body will absorb other foods again that cause problems. Once I eliminated salicylates, the pain went away again.

So, you might now need to do an elimination diet to figure out your other intolerances. I really think dairy is a likely culprit. The other foods that could be causing those symptoms are corn and soy, as well as possibly MSG.

Lisa Mentor

Maker sure that you are checking your shampoos, conditioners, toothpaste, mouth wash, lipsticks (gender related), or anything that can get into your mouth.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,891
    • Most Online (within 30 mins)
      7,748

    RyanDunn
    Newest Member
    RyanDunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JulieRe
      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.