Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Guard - Tried It?

Piesmom

Recommended Posts

Piesmom Apprentice
Piesmom
Posted

Hi everyone!

I was wondering if anyone has tried this software. My husband was diagnosed Celiac almost a year ago. The way we found out was that his throat was "closing" and he was having difficulty swallowing. It ends up he had these rings in his esophagus as a result of gluten. I have been policing everywhere possible and educating all our friends and family as to what he can and can't have. Bit I am doing SOMETHING wrong!!!!! Now he is having a hard time swallowing milk (can you imagine?). I've begged him to go back to the doctor...but of course...he hasn't made an appointment.

I really want to get this program. There must be something he is eating or using that is not gluten-free. I have a dedicated toaster, his own butter dish, etc., etc. I just don't know what to do and am so thoroughly frustrated I can't stand it.

If anyone has some advice on weather to buy this product or not...I would really appreciate it!

Thanks so much!

Kelly

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Hi Kelly, and welcome to this board.

It sounds to me that, rather than being glutened, he might be intolerant to dairy as well. A lot of people with celiac disease can't tolerate dairy or soy either.

Try eliminating dairy and soy for a while, to see if it improves things. But I hear the gluten guard is an excellent program, that really helps with shopping.

Piesmom Apprentice
Piesmom
Posted
  • Author

Thank you Ursa Major. I never thought about the dairy thing. He just called me and is scheduled for another EGD. How I would LOVE to hear that it is something else and maybe he doesn't really have celiac disease? But...I need to be careful what I wish for. What is that something was worse!

I am going to ask his doc about the dairy probability. Thank you for posting!

Kelly

Ursa Major Collaborator
Ursa Major
Posted

Kelly, just be aware that most doctors still mistakenly believe that milk and soy are healthy, and that most people are fine with it. Which is a far cry from the truth. Your doctor may just tell him that it couldn't be the dairy.

Really, eliminating it to see what happens is the best test.

Also, I didn't think about this earlier. But have you really made sure there is no cross contamination? Does your husband have his own gluten-free toaster, have you checked all his personal care products (toothpaste, soap, shampoo, conditioner, lotion etc.) for gluten, and replaced the ones that contain gluten?

floridanative Community Regular
floridanative
Posted

www.clanthompson.com has the best program I think. You can try it online for free.

Piesmom Apprentice
Piesmom
Posted
  • Author

Ursa -

Yes, he has a dedicated toaster, a dedicated butter dish and 2 dedicated shelves in the pantry (which I first washed with bleach) to try and stop the CC. I know his toothpaste, shampoo and deodorant are gluten-free. I would have to check the hand lotion I suppose. The non-food thing has just started to interest me. I'd never really though about it before. I will keep searching. We'll have to see what his next EGD shows as well I guess.

Floirdanative: thanks for the site listing. I looked at it a little last night and plan to check it out more in full this weekend. Can't seem to stop putting Christmas decorations away right now...

Thanks again everyone!

Kelly

Lisa Mentor
Lisa
Posted

Regarding Gluten Guard, please remember that companies frequently change their ingredients. Relying on information for too long may not be wise.

I found the best reliable information that I have found is learning to read labels and contacting companies frequently.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,271
    • Most Online (within 30 mins)
      7,748
    Trisha Waller
    Newest Member
    Trisha Waller
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...