Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Angry Boy!


Kelgs

Recommended Posts

jetiduncan Newbie

I certainly feel for everybody with a child with behavioral outbursts relating to Gluten Exposure.

Keep in mind also that it's not just from the gluten. Many of our children with Celiac Disease have major nutritional deficiencies that we need to find and fix. My 7 year old is very aggressive when gluten is involved and he has become somewhat aggressive w/out it too. We figured out that he had elevated histamines which can also cause aggressive behavior.

When we did his IgG this past August it was OVER 100. It is now down to 7!!!!! That is awesome and we are still working through other nutritional deficiencies. It is almost impossible in our neck of the woods to find a truly experienced pediatrician in the area of celiac disease. Our last one just decided that putting our child on an ADHD drug was the answer IT was FAR from the answer. IT was terrible and we reverted back to going with natural remedies.

We have really been striving to get him back to being non-aggressive through diet and supplements and we are seeing some good results. Just wish the school could see that having a gluten free environment would be a good thing all around. Instead, our child sits in a class with gluten all around him. So, he's bound to have some issues that come up and while I want to be supportive of his educators, they sure need a lesson in support of celiac disease kids.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ms Jan Rookie

Really feel with all of you struggling with food intolerant kids. I just have a niece with behavioral symptoms, but it's heart breaking to watch. Coming from a family ripe with schizofrenia and the like - and having struggled with my own share of problems before self diagnosing - I've become convinced about the connection between celiac/food intolerances and 'brain' symptoms.

Here're some interesting links:

Giving some scientific bacground -

Open Original Shared Link

For those for whom the gluten free diet isn't enough, Elaine Gottschall's 'Breaking the Vicious Cycle' on the Specific Carbohydrate Diet (SCD), developed ia, for autistic kids, might be useful -

Open Original Shared Link

And pecanbread is the site for the SCD particularly aimed at parents with autistic children (but can be helpful I believe for all 'food problem' children) -

Open Original Shared Link

In any case, it seems food sensitive kids are very often highly sensitive to most if not all carb's, to sugar as well as additives, so if you haven't already done so, it might be worth checking some of those items, maybe through an elimination diet.

We have a thread on the SCD going in the 'Other Food Intolerances, Leaky Gut etc' Forum. It's more aimed for adults, but some of you might find it useful, as it seems to be helping a lot of us celiac sufferers for whom going gluten free just isn't enough.

Hope you all find a workable path.

  • 1 month later...
ligeia Apprentice

Behavioral problems are one of my daughter's only symptoms. When she eats gluten she gets SO moody, irritable, and doesn't seem to be able to control her emotions/reactions very well at all. I picked up on it immediately because I feel the same way when I get glutened.

  • 6 months later...
2GirlsMom Newbie

Yeah, I hear ya! My daughter had BIPOLAR type of symptoms that actually went away imediately after stopping gluten. I was trying to help her behavior at daycare by providing my own snacks for her without any artificial colors, etc but I was loading her up with whole grain bars... uggg... lots of gluten. Then she's got removed from daycare due to her behavior. Going Gluten-Free changed her behavior within the first week.

I've even been able to STOP my Effexor and I was on 230 mg since getting off of gluten. I just did it because it was easier to eat what she eats.

Here's my and my daughter's story. So many people asked that I just put it on a webpage. It truly has been a complete life change (for the better).....

Open Original Shared Link

Hopefully our story can inspire others!

taweavmo3 Enthusiast

Don't have time to read all of the responses, so I'm probably repeating what everyone else said!

In a nutshell....my 5 year old's primary symptom is behavior. He had something a couple of weeks ago with gluten, and he was AWFUL. He became hateful, he was biting, hitting, screaming, name calling (bad names, saying terrible things). He honestly becomes like a psychotic child, which feels awful to say, but he does.

A week later, he is back to his angelic self. Saying "yes maam", being helpful, sharing, playing like normal.

It is honestly scary how mean he gets on gluten and milk, and I'm so thankful I knew to take those foods out of his diet, otherwise he probably would have ended up on some psych meds down the road. Trust your instinct......you aren't seeing things!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.