Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Angry Boy!


Kelgs

Recommended Posts

jetiduncan Newbie

I certainly feel for everybody with a child with behavioral outbursts relating to Gluten Exposure.

Keep in mind also that it's not just from the gluten. Many of our children with Celiac Disease have major nutritional deficiencies that we need to find and fix. My 7 year old is very aggressive when gluten is involved and he has become somewhat aggressive w/out it too. We figured out that he had elevated histamines which can also cause aggressive behavior.

When we did his IgG this past August it was OVER 100. It is now down to 7!!!!! That is awesome and we are still working through other nutritional deficiencies. It is almost impossible in our neck of the woods to find a truly experienced pediatrician in the area of celiac disease. Our last one just decided that putting our child on an ADHD drug was the answer IT was FAR from the answer. IT was terrible and we reverted back to going with natural remedies.

We have really been striving to get him back to being non-aggressive through diet and supplements and we are seeing some good results. Just wish the school could see that having a gluten free environment would be a good thing all around. Instead, our child sits in a class with gluten all around him. So, he's bound to have some issues that come up and while I want to be supportive of his educators, they sure need a lesson in support of celiac disease kids.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ms Jan Rookie

Really feel with all of you struggling with food intolerant kids. I just have a niece with behavioral symptoms, but it's heart breaking to watch. Coming from a family ripe with schizofrenia and the like - and having struggled with my own share of problems before self diagnosing - I've become convinced about the connection between celiac/food intolerances and 'brain' symptoms.

Here're some interesting links:

Giving some scientific bacground -

Open Original Shared Link

For those for whom the gluten free diet isn't enough, Elaine Gottschall's 'Breaking the Vicious Cycle' on the Specific Carbohydrate Diet (SCD), developed ia, for autistic kids, might be useful -

Open Original Shared Link

And pecanbread is the site for the SCD particularly aimed at parents with autistic children (but can be helpful I believe for all 'food problem' children) -

Open Original Shared Link

In any case, it seems food sensitive kids are very often highly sensitive to most if not all carb's, to sugar as well as additives, so if you haven't already done so, it might be worth checking some of those items, maybe through an elimination diet.

We have a thread on the SCD going in the 'Other Food Intolerances, Leaky Gut etc' Forum. It's more aimed for adults, but some of you might find it useful, as it seems to be helping a lot of us celiac sufferers for whom going gluten free just isn't enough.

Hope you all find a workable path.

  • 1 month later...
ligeia Apprentice

Behavioral problems are one of my daughter's only symptoms. When she eats gluten she gets SO moody, irritable, and doesn't seem to be able to control her emotions/reactions very well at all. I picked up on it immediately because I feel the same way when I get glutened.

  • 6 months later...
2GirlsMom Newbie

Yeah, I hear ya! My daughter had BIPOLAR type of symptoms that actually went away imediately after stopping gluten. I was trying to help her behavior at daycare by providing my own snacks for her without any artificial colors, etc but I was loading her up with whole grain bars... uggg... lots of gluten. Then she's got removed from daycare due to her behavior. Going Gluten-Free changed her behavior within the first week.

I've even been able to STOP my Effexor and I was on 230 mg since getting off of gluten. I just did it because it was easier to eat what she eats.

Here's my and my daughter's story. So many people asked that I just put it on a webpage. It truly has been a complete life change (for the better).....

Open Original Shared Link

Hopefully our story can inspire others!

taweavmo3 Enthusiast

Don't have time to read all of the responses, so I'm probably repeating what everyone else said!

In a nutshell....my 5 year old's primary symptom is behavior. He had something a couple of weeks ago with gluten, and he was AWFUL. He became hateful, he was biting, hitting, screaming, name calling (bad names, saying terrible things). He honestly becomes like a psychotic child, which feels awful to say, but he does.

A week later, he is back to his angelic self. Saying "yes maam", being helpful, sharing, playing like normal.

It is honestly scary how mean he gets on gluten and milk, and I'm so thankful I knew to take those foods out of his diet, otherwise he probably would have ended up on some psych meds down the road. Trust your instinct......you aren't seeing things!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    3. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - Lkg5 replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.