Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Guandalini?

rez

By rez
in Doctors

Recommended Posts

alamaz Collaborator
alamaz
Posted

Gayle & Angel: are both of you still seeing Dr. Ehrenpresis? I'm in Arlington heights and I actually visited that practice and saw another doctor there. I was so irritated at how busy they were and the fact that they lost my x-rays I never went back. Maybe a diff. doctor would be a diff. experience? I'd love to not have to travel into chicago for appts. Also, do you guys know of any groups in the area? Wheaton is really too far for me as I work long hours and driving is usually the LAST thing I want to do in my free time.

Thanks!

Amy

  • 1 year later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dawn235 Newbie
Dawn235
Posted

Kandi, Dr. Guandalini is wonderful and very friendly. I also live in Bettendorf and there are no competent doctors in the Quad Cities, that I can find, that know anything about Celiac Disease. I had to go to Iowa City, although the hematologist told me to "have a good life and just do what the Davenport hematologist is doing which was getting intravenous iron one hour one day per week. Then Iowa City called me 2 months later to tell me I had Celiac Disease. I told them I was suppose to have a good life and they had the wrong person. Anyway, I had both of my children tested at our family doctor and my son's bloodwork came back very strong positive. I took him to the only peds GI doctor in Davenport, he had a biopsy that came back negative and the doctor wanted him on a gluten free diet. I refused and took him to Dr. Guandalini and he did genetic testing on both me and my son. My son does not have Celiac in his genes. I then took my daughter to get genetic testing and she does have Celiac in her genes. I now am doing research for my sister that is very sick, 5'7" and 104 lbs and still loosing weight. She has an appt with the University of Chicago in May but in the meantime had bloodwork for celiac that came back negative...but was missing one of the tests that should have been given. Then she had a biopsy last Thursday and the doctor walked into the room and said, "She does not have Celiac Sprue". I was floored!! I know he can not see celiac. I then asked him what about her anemia. He said she is not anemic. I told him it was on the bloodwork he did. He had to go and check and said oh yeah she is a little anemic. But was more concerned with her thyroid being off and recommended her to see a endocrinolgist. We should receive the biopsy results this week but I am not expecting anything to come up. Anyway, ANGEL BENDER, I am curious of the doctor in Geneva, il that you saw. This doctor my sister saw was in Geneva and I am wondering if it is the same doctor. Could you let me know. His name abbreviated was Dr. S. Please let me know. Thanks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or...
    2. Scott Adams
      - Scott Adams replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain...
    3. trents
      - trents replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    4. Scott Adams
      - Scott Adams replied to Skydawg's topic in Related Issues & Disorders
      2

      Gluten exposure when trying to conceive

      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response...
    5. Celiacpartner
      - Celiacpartner replied to Celiacpartner's topic in Food Intolerance & Leaky Gut
      5

      Could this be a new intolerance

      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,349
    • Most Online (within 30 mins)
      7,748
    WLynne
    Newest Member
    WLynne
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Could this be a new intolerance

      By Rogol72 · Posted

      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      Could this be a new intolerance

      By Scott Adams · Posted

      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
    • trents
      Could this be a new intolerance

      By trents · Posted

      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    • Scott Adams
      Gluten exposure when trying to conceive

      By Scott Adams · Posted

      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response and for your gut to fully heal, ensuring you are in the best possible nutritional health for conception and pregnancy. In the meantime, focus on hydrating, eating nourishing, easily digestible foods, and resting—your body needs time to recover. It's a frustrating delay, but it's the best step for a healthy pregnancy.
    • Celiacpartner
      Could this be a new intolerance

      By Celiacpartner · Posted

      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
×
×
  • Create New...