Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr. Guandalini?


rez

Recommended Posts

alamaz Collaborator

Gayle & Angel: are both of you still seeing Dr. Ehrenpresis? I'm in Arlington heights and I actually visited that practice and saw another doctor there. I was so irritated at how busy they were and the fact that they lost my x-rays I never went back. Maybe a diff. doctor would be a diff. experience? I'd love to not have to travel into chicago for appts. Also, do you guys know of any groups in the area? Wheaton is really too far for me as I work long hours and driving is usually the LAST thing I want to do in my free time.

Thanks!

Amy

  • 1 year later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dawn235 Newbie

Kandi, Dr. Guandalini is wonderful and very friendly. I also live in Bettendorf and there are no competent doctors in the Quad Cities, that I can find, that know anything about Celiac Disease. I had to go to Iowa City, although the hematologist told me to "have a good life and just do what the Davenport hematologist is doing which was getting intravenous iron one hour one day per week. Then Iowa City called me 2 months later to tell me I had Celiac Disease. I told them I was suppose to have a good life and they had the wrong person. Anyway, I had both of my children tested at our family doctor and my son's bloodwork came back very strong positive. I took him to the only peds GI doctor in Davenport, he had a biopsy that came back negative and the doctor wanted him on a gluten free diet. I refused and took him to Dr. Guandalini and he did genetic testing on both me and my son. My son does not have Celiac in his genes. I then took my daughter to get genetic testing and she does have Celiac in her genes. I now am doing research for my sister that is very sick, 5'7" and 104 lbs and still loosing weight. She has an appt with the University of Chicago in May but in the meantime had bloodwork for celiac that came back negative...but was missing one of the tests that should have been given. Then she had a biopsy last Thursday and the doctor walked into the room and said, "She does not have Celiac Sprue". I was floored!! I know he can not see celiac. I then asked him what about her anemia. He said she is not anemic. I told him it was on the bloodwork he did. He had to go and check and said oh yeah she is a little anemic. But was more concerned with her thyroid being off and recommended her to see a endocrinolgist. We should receive the biopsy results this week but I am not expecting anything to come up. Anyway, ANGEL BENDER, I am curious of the doctor in Geneva, il that you saw. This doctor my sister saw was in Geneva and I am wondering if it is the same doctor. Could you let me know. His name abbreviated was Dr. S. Please let me know. Thanks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,880
    • Most Online (within 30 mins)
      7,748

    Loveruss
    Newest Member
    Loveruss
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.