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I Saw My Dr. Today.....


JerryK

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JerryK Community Regular

O.K. it was my brain doctor :lol: Yep I have one and for some strange reason they want you to come back every once in a while, if they have you on a medication. I' ve been on a low dose of Lexapro for a few years now.

I got the courage to bring up my thoughts on Celiac with him....I listed it all out.

-Dental enamel hypoplasia....teeth all capped at age 40.

-Initially mentioned by dentist as remote possibility...but no symptoms.

-Diagnosed with "depression" in early 40s. Fed a number of medications with dubious effects.

-Diagnosed with "low testosterone" but untreated in mid 40s.

-Began having gastro symptoms in mid 40s, which could be consistent with Celiac.

-gluten-free diet appears to resolve most my gastro symptoms quickly.

At this point, maybe it was my imagination, but it seemed like a light bulb went off in this guys head.

(Could I be treating this guy with an antidepressant, when he really has Celiac?)

He says...um...how is your mood when you go Gluten Free? I said, "I feel more energetic AND my libido appears to be improved. I don't suddenly feel like superman, but I do feel better".

(Now let me tell you, I was actually impressed that this guy believed that Celiac can effect your mood. He has been paying attention. He's a good guy, but you don't expect your psychaitrist to make this connection)

So he sent an e-mail to my GP. Tells me I need to follow up on this. I'm guessing they will want me to go back on gluten for a few weeks or so, to do a blood test.

Then he sent me on my way, I must be well enough to exist in society :blink:


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Jestgar Rising Star

Good for you for being so involved in your own health! AND for educating a new doctor on Celiac!

Nancym Enthusiast
So he sent an e-mail to my GP. Tells me I need to follow up on this. I'm guessing they will want me to go back on gluten for a few weeks or so, to do a blood test.

That's not long enough for a good test. Celiac drs. advice about 3 months and the equivalent of about 4 slices a bread a day.

Grats on getting a doctor to take in your information and act on it. :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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