Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tummy Timer


mac3

Recommended Posts

mac3 Apprentice

My daughter, 10, was diagnosed almost a year ago with celiac disease. She's been gluten-free ever since. However, if she doesn't eat at EXACTLY the right time, she doubles up with a stomach ache and it seems to take her 30 minutes to recover once she does slowly start to eat. Is this a celiac-related thing or just the way her body works? Last night she was clutching her stomach at the dinner table at 7:00...we normally eat at 5:30/6:00.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2Boys4Me Enthusiast

It doesn't happen to my son (on diet for 1 yr 5 mo). Maybe it's just how she is.

Sophiekins Rookie

First off, on an aside. . .Linda, I am green with envy about the bread in your photo. . .makes me wish I could eat all of the lovely gluten-free grains that went into it. . .oh how I long for a slice of REAL bread. . .

Second, on topic for Mac3: I have similar problems to your daughter with regard to eating times. . .if I eat irregularly, I get horribly nauseous, and it seems that the solution would be to eat, but I can't because I'm so nauseous, and if I don't catch it in time, I often end up skipping the meal (usually dinner) and going to bed. The next day I eat more to make up for the missed meal. I can't say whether it's celiac related or just the way I'm set up, but I talked to my doctor about it a few years ago and she came to the conclusion that I'd been nutritionally deficient so long (although my BMI and blood panels were considered "healthy") that my body was panicking when food was not forthcoming at the expected interval, thinking that the "famine" was about to start again. I started calorie counting to ensure that I was getting roughly the same nutritional intake each day, and I never, ever, ever go anywhere without a quick snack in my bag, because regimented food intake is a fact of my life (I can push it by about half an hour now, but not several days in a week). It takes some adjusting to (and she may object to it when she becomes a teenager) but it really isn't that much of a hassle once you get the hang of it.

You may find that if you have to postpone a meal, you need to feed your daughter something extra (my staples are juice and rice crackers, or half an apple sliced and dipped in peanut butter) around the time that she would normally be eating. . .don't worry, it won't ruin her appetite for the later dinner. If she's been up longer than usual you'll need to feed her an extra snack as well. . .my rule of thumb is to eat something every four or five waking hours (even if it's just a glass of juice) with my largest meal of the day being the last one before I go to bed (because it has to last me eight or ten hours instead of five).

mac3 Apprentice

It's good to know I'm not alone! I have been carrying snacks for her in my purse 'cause when we're out shopping or something, then mealtimes usually differ. Your symptoms sound a lot like my daughters...glad someone out there understands...even if I'm not sure of the reasoning behind the problem.

And yes...ditto on the bread!

tarnalberry Community Regular

she may be having blood sugar issues. not necessarily diabetes, but hypoglycemia. it's most definitely worth talking to your doctor if you're confident that it's not just behavioral.

Cheri A Contributor

This happens with my daughter too!! I have also found that giving her a snack helps too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.