Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Services Personnel


Guest ~wAvE WeT sAnD~

Recommended Posts

Guest ~wAvE WeT sAnD~

Hi everyone. Since I go to lunch in five minutes, I figured that I'd take the time to vent before I left. I'm just frustrated and annoyed when it comes to pretending to have the patience that I've lacked since the beginning of time.

I have distributed celiac disease literature to two of the Food Service workers at my college. Only a selective few have received copies of the paperwork, so they are still asking basic questions. One was so distraught when she packed my lunch for my cross country meet that she gave me A SALAD WITHOUT DRESSING. No drink-- but when I was handed Powerade, I saw, to my dismay, that it contains MODIFIED FOOD STARCH. I then ate an orange with my naked salad.

I'm sticking to communicating exclusively with the Food Services director. People keep asking me if I'm a transfer student, etc. etc. Some of them don't even know who I am or have seen my dietary restrictions papers that are plastered all over the kitchen. There is so much more to this story, but I have to eat and go to class now.

It sometimes bothers me that people cannot remember basic information (when it's constantly repeated), and don't even know how long I've been here on a tiny campus of 1100 students.

I hate explaining things.

Please help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Talk with the director about your concerns that people don't know what's going on? Direct them to the signs posted everywhere?

Remember that they may have been dealing with celiac disease - and not even as something they have - for only the length of time you've been there. And you're a very small part of their day. In five minutes a day (and that's giving, on this scale of things, a LOT of time to one person), they're not going to get it any time quickly.

I'd vote for keeping up with the director and letting him know that you aren't getting adequately fed!

celiac3270 Collaborator

I have years before I deal with this, but just to let you know, all flavors of both Powerade and Gatorade are gluten-free.

Guest ~wAvE WeT sAnD~

Thanks celiac3270! So Powerade has corn starch?

angel-jd1 Community Regular

I'm not sure what group your college uses as their catering services. I contacted Sodhoux and they sounded like an awesome group. Possibly you can try contacting the main company they are contracted with and try to get some results that way.

When they give you food that isn't appropriate bring it to their attention and then they can learn. If you don't bring it up, they think everything is fine.

celiac3270 is right, powerade and gatorade are both gluten-free. :)

I hope things get easier.

-Jessica :rolleyes:

Guest ~wAvE WeT sAnD~

*Sigh* An update on the rest of the day...

I went to lunch. It was awful in the beginning, because no one had received my message telling them I'd be there. So I stood there, way too PMSed (sorry celiac3270--Tiffany will understand) to ask. I left the kitchen, already frustrated and angry, on the verge of tears. I then tried to have some tea, but the hot water pot wasn't there. I decided that was it, and I began to cry. My boyfriend caught up to me and told me that I shouldn't be upset. I hate when other people tell me how I should feel! So I told him to hold me and stop talking. He later said "it's period time. I understand." I am making packets for the staff sometime this week.

Afterward, I ate some deli meat, a piece of lettuce, and cheese. I was starving by 4:00, so I had a scoop of Arrowhead Mills puffed corn, God's gift to regularity. I then felt better, and ran 3.1 miles to make up for my very s**** day.

Thank you all for listening.

I have a few questions...what does everyone do for labels that say "spices?" How do you know whether or not the spices don't have wheat fillers?

Thank you!

tarnalberry Community Regular

I hate it when men assume that nothing else is allowed to bother you around your period. Honestly, I don't think people can understand how it feels to have a basic human need threatened. Do keep talking to them - you've got to stick it out though, and not walk out. Because you walked out, they don't know there was a problem. I understand why - oh I know the feeling! - but in the end, it just makes it worse.

As for spices... if it just says ", spices," I assume it's not safe and call.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Spices can have gluten so you need to call the company........unless of course, they're in a product made by a company like Kraft; one that clearly labels gluten.

Sorry you had a bad day.....and too bad that the kitchen staff isn't more understanding of celiac disease

coin-op Newbie

to answer first post:

bring your own food! Why would you trust someone who gets paid minimum wage and doesn't care? it is your body and your health, only trust yourself.

-cass

astyanax Rookie

yeah i hate to say it, but in college i just had to make my own food. i barely ate at the dining hall, they promised me gluten-free food and never produced, and in retrospect (i was diagnosed my freshman year) a lot of the food i ate then i never would now. there's too much cross contamination in those kinds of settings (if your dining hall is like mine was) and i was much better off when i finally moved off campus my junior year.

Guest ~wAvE WeT sAnD~

Coin-Op:

I see what you are saying, but I just wanted to let you know that my patience with the Food Services Personnel has prevailed. They have my gluten-free breads, pastas, cooking appliances, and food station set up for me.

I'm sorry if you're had negative experiences with other people--I don't like putting my health in someone else's hands, but, for once, it worked

:)

Stay Positive,

Alexolua Explorer

Great job Jill! Much better to try and educate others, than just not try. =)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.