Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy


Moondanse

Recommended Posts

Moondanse Explorer

Hi guys-

I had my biopsy today. The report says:

Nodularity and atrophy of the first part of the duodenum and second part of the duodenum compatible with duodentis, ? celiac sprue biopsy.

Otherwise normal egd to third part of duodenum

I'm not quite sure what that all means. But, the doctor said that between the scope today, the fact that I got sick after reintroducing gluten and the history of gastro issues, it's likely to be Celiac just a mild case. I guess that we'll see when the biopsy comes back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome to the Club! :)

I am sure that you will learn more when the biopsy returns and you can sit and chat with your doctor.

I just wanted to add one thing. There is no "Mild Celiac". You either have it or you don't. And, by what you wrote, you have Celiac.

The "mild" is referred to the amount of damage done to you intestines. So consider yourself lucky that you were diagnosed without a great deal of damage. If you do well on the diet, you recovery time will be less than some.

I am sure that you find this as a relief. You can control your health by a diet change, rather than taking pills for the dreaded other ailments.

I am happy for you.

Lisa

happygirl Collaborator

Moondanse:

I second what Lisa said. Definitely no "mild" Celiac....its like pregnancy: either you are or you aren't. Now, symptoms can vary and damage can vary (however, the damage is patchy, and could have been more severe in another place)...so in terms of that, yes, it could be "mild" or "severe." But Celiac is Celiac is Celiac. Welcome to the club :)

If they could see the atrophy, that is pretty impressive. A lot of times they can't, and it looks "normal"...then the biopsy comes back positive.

Laura

Ursa Major Collaborator

I second (third? :unsure: ) what the others said. If the damage is visible to the naked eye without a microscope, there must actually be considerable damage. I hope you won't wait for the 'official' results before going back to the gluten-free diet. The sooner you heal that damage the better.

Well, now at least you know. It is always better to know than having to guess at a problem.

psawyer Proficient

The description is a definitive diagnosis of celiac disease. If there is sufficient damage to the villi that it can be seen with the naked eye during the endoscopy, then there is no doubt. As others have said, mild can only refer to the amount of damage already sustained. Celiac does not have shades of gray--if you have it, you have it.

All that said, the disease can be managed by following a gluten-free diet at all times. This board, and the people here, are great resources to help you do that. Welcome aboard; you are among friends here.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,082
    • Most Online (within 30 mins)
      7,748

    MelanieR
    Newest Member
    MelanieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.