Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac3270's Endo


ryebaby0

Recommended Posts

ryebaby0 Enthusiast

Since celiac3270's "firmly gluten-free" thread is getting longgggggg I wanted to bump it to a new page and give everyone a chance to leave our favorite celiac a good thought for a better diagnosis and "going forwad" days after the 'scope coming up. (I knew he would not presume to do this himself :) Knowledge is power, let's hope you get some on the 13th...

joanna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brehm48 Newbie

Good Luck with the Endo celiac3270!!! :ph34r:

celiac3270 Collaborator

Thank you! :) .....I've been kinda depressed today with the whole symptoms thing, but it brought a smile to my face to see that post :) .....it's nice to know that you have so many people supporting you. Thanks; I appreciate it.

ponita Newbie

Good luck, I'll be thinking of you!

Melissa

rgeelan Apprentice

Good luck!!!

Canadian Karen Community Regular

celiac3270,

I will definitely be thinking of you the day of your endo..... and sending positive health vibes your way...... I will also say a prayer that this will give you the answers you need to get on the road to recovery......

Hugs,

Karen

Guest jhmom

celiac3270,

Good luck! You are in my thoughts and prayers! Please let us know how things are going. :D

I too am having an Endoscopy, mine is on the 14th and I am also having some gall bladder studies ran this week (hopefully). ;)

Take care


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sherquilts Newbie

Even though I am new here I wanted to send by best wishes and good luck. I will remember you in my prayers.

Sheryl

tarnalberry Community Regular

I forgot it was coming up so soon. Good luck! (I admit to being confused at first, because I'm used to 'endo' being used to mean endometriosis, a gyn condition, and ... well, was just very confused. ;-) )

celiac3270 Collaborator

Thank you so much for all your thoughts and prayers........I'll think of you on the 14th, Stacie......and I'll think of all of you thinking of me on the thirteenth :D

j9n Contributor

Good luck celiac3270 and Stacie!

Pegster Apprentice

celiac3270 is my favorite Celiac. I can't believe how much I (a teacher) am learning from this guy! Best wishes and good luck!

Alexolua Explorer

Yeah Pegster, I agree. celiac3270 is a smart kid! Hard working too when it comes to helping others on here. =)

Good luck with everything celiac3270. =D

Guest ~wAvE WeT sAnD~

Good luck, celiac3270!!! :D

Thomas Apprentice

Good luck celiac3270!!

debmidge Rising Star

Good luck celiac3270! Let us know how you made out, etc.

Deb

Carriefaith Enthusiast

I hope everything goes well with you on the 13th. Good luck and I hope for good news!

-Carrie

gf4life Enthusiast

celiac3270,

You are in my prayers. Monday just can't come soon enough! Looking forward to hearing what comes from your endoscopy. I know that you need answers and I hope that you get them. But most of all I hope that you are able to feel better soon. You are a great inspiration to so many of us here and I'm sure we all agree that it will be great for you to be pain free and symptom free. Look at all that you have accomplished while suffering. Imagine what you will be able to do when you are completely healthy! :D

Let us know how it goes. You too Stacie! Good luck to you on the 14th!

God bless,

Mariann

terri Contributor

Good luck with the Endoscopy celiac3270!

celiac3270 Collaborator

Thanks again, everyone :) .....I am even more happy that I'm going to get this done Monday, now. Like Mariann said, "Monday just can't come soon enough". In the past I got abdominal pains and vomiting...once every 3-7 days......now, for the past seven days, I have had abdominal pains -- not much vomiting -- a little last night, but I'm not used to seven days in a row feeling sick....since it's getting worse, I'm really glad that I'll get this checked out. This is a big year for me--there's a mandatory shakespeare play thing, which requires a lot of time and is a really big and stressful process..........even more, I have to apply for highschool (tedious forms to fill out, many essays to write, SSATs, other exams that different schools want, and most importantly, interviews and tours that I can't be sick for :( .......etc.).........so I really want to get this straightened out....at least if I find out what's wrong with me, I can maybe get some sort of medication to ease the symptoms or something..........but thank you all sincerely for your thoughts and well-wishes for not only the endoscopy, but answers and elimination of symptoms :D . School starts tomorrow for me and will drastically slow down my postings, but I will make sure I tell you what happens with the scope and results...

-celiac3270

CarolynM Newbie

Know we are with you in spirit. I will keep your health and education in my prayers. Try not to stress, easier said than done, about school issues - I wonder if the stress is flaring things up. I hope you get some answers.

celiac3270 Collaborator

The first day of school was great -- and the second, today...........I'm getting back in my study-nerd-workaholic mode without any trouble..lol :D ...anyway, in my school of about 320, there were three celiacs. One kid who is three years younger than I am (gluten-free over a year), a kid who was in the eighth grade last year and is now at some secondary school, and then, obviously, there's myself. The teacher that that celiac had last year is now my teacher, so he slightly understands the limitations of celiac disease.........

Oh, the reason I posted. I found out that the biopsy is at 11:30. I need to be at the hospital by 9:30 and no food after midnight before the endo....then clear liquids including water and apple juice are allowed until 7:30. So, that's the time slot now. I got assignments from my teachers for Monday cause I don't want to have to make up a lot of work or call people and do work after the endo. I want to get all my stuff done this weekend so that Monday I can just lie around and relax and post..... :D when I finish. I'll post when I get home. Thanks again for your support.

-celiac3270

MySuicidalTurtle Enthusiast

"study-nerd-workaholic mode"

I noticed.

Hahahaha.

I wish I knew if there were other Celiacs on my campus.

tarnalberry Community Regular

Wow, celiac3270, that's great that they know what you're dealing with! (Well, I hope - we've heard stories of celiacs who... aren't well enough informed for their own good on this board. ;-) )

Canadian Karen Community Regular

Hi celiac3270!

It's good to read about you getting back into "the swing of things". I have a feeling that you thrive on learning!!!

Thinking of you and wishing you luck on Monday......

Karen

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.