Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Twin Brother

JerryK

Recommended Posts

JerryK Community Regular
JerryK
Posted

I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Viola 1 Rookie
Viola 1
Posted
I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

Sounds like it should be an identical diagnosis.

:lol: to the good looking one :rolleyes:

angel-jd1 Community Regular
angel-jd1
Posted
I've been talking to my brother about Celiac/Gluten Intolerance for a few weeks now. At first he was quite skeptical. He does admit that the symptom list describes him perfectly, but he's sold on the depression diagnosis. I'm telling him....go without gluten for a few days....then eat some.....

He's asking the right questions....what's got gluten in it...what should I eat...etc...

I finally got him to go a day or two without eating gluten...

This morning he's bragging he ate a sub sandwhich last night...feels fine.....

A little while later he e-mails me back...."Hmmm, I don't feel as good as yesterday.

I'm more tired, achey...I have a headache. Yesterday was a 7, today is a 4."

What do you think of that?...Identical twins...identical tooth enamel defects...identical symptoms

after eating gluten...

Oh, just a comment, I am the good looking one. ;)

If you are identical twins, you have identical genes. Therefore, he has the celiac gene (not sure how you were diagnosed, but if you have the gene so does he).

The only difference would be the "trigger". Or what flips the switch to turn your symptoms on. However, sounds to me like his switch has been flipped and he has it also. Just my 2 cents :)

-Jessica :rolleyes:

JerryK Community Regular
JerryK
Posted
  • Author
If you are identical twins, you have identical genes. Therefore, he has the celiac gene (not sure how you were diagnosed, but if you have the gene so does he).

The only difference would be the "trigger". Or what flips the switch to turn your symptoms on. However, sounds to me like his switch has been flipped and he has it also. Just my 2 cents :)

-Jessica :rolleyes:

I'm guessing just plain stress to be the trigger. When we built a house 10 years ago, I suspect that might have been the trigger for me. Other than an Enterolab test, I have no official diagnosis, just

circumstantial evidence, like getting the runs for a week after eating bread.

Lisa Mentor
Lisa
Posted

Jerry:

I do believe that stress can be a trigger. I had "IBS - I Be Stumped" for as long as I can remember.

During some HIGH stress business, celiac kicked in ONE day and I could not leave the house for two months. Sometimes I needed to get to the bathroom in ten seconds and it was eleven seconds away. :blink:

Yup, stress is a very bad thing in many ways.

Lisa

Nancym Enthusiast
Nancym
Posted

I heard something really interesting last Saturday, I heard a doctor speak who treats autoimmune diseases and he was speaking about the one I had, they know it is something environmental that causes the disease, like a bacteria or virus because they breed rats with the gene who will get the disease. However they don't get the disease if they're placed in a germ-free sterile environment. I wonder if celiac acts like that? Perhaps it is just some common virus that can kick it off.

happygirl Collaborator
happygirl
Posted

Nancy:

Thanks for sharing that. Its interesting to hear that, as for years, "autoimmune" theories have included bacterial or viral "triggers" as part of their hypotheses. Although it is just anecdotal stories, there are many of us on here that never got better after having mono. So I definitely think that some (it could be many---makes sense) viruses/bacterial infections, under the right conditions, can "trigger" something.

Thank you so much for posting!

Laura

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Identical twins were at a 70% chance if one had it? Something like that.

Given his response, I think he probably has it. Good luck on that one. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    2. MichaelDG
      - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      celiac.com support

      By MichaelDG · Posted

      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.