Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Happens After You Go Gf?


Guest memoryofaspyn

Recommended Posts

Guest memoryofaspyn

I am just wondering if after I go gluten-free what happens if you accidentally come in contact with gluten? I have heard some people say they get really sick, do you get any sicker than you would have been before going gluten-free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Yes......your body, before going gluten-free, is so used to the gluten that your reactions aren't as severe......when you go gluten-free, if you get glutened, your body would react more violently, not being used to the gluten, anymore.

lovegrov Collaborator

Different people have different reactions. Some people react horribly to tiny amounts. Some people react about the same as before the diet. Some people are actually less sensitive. And some people, like me, barely react or don't react at all.

richard

Mydnyt Newbie

Something to do with the amount of time since you've been gluten-free?

One of the girls I know is intolerant, but once in a while (ie. 8 months or so) she'll have some pizza or pasta or something while out with friends with minimal side effects. But if she does it a couple of times it hits her big time

tarnalberry Community Regular

I think it pretty much entirely varies by individual, and no one can answer that question for you... I seem to have gotten a bit more sensitive, but was never terribly sensitive to begin with.

  • 3 weeks later...
kabowman Explorer

I was just pondering this and thought I remember seeing - therefore, I decided to add my 2 cents.

Since discovering all of my intollerances and then accidentally ingesting something I know I cannot eat, I am so sick. However, I can't decide if I am reacting the same way I did before the restricted diet (no gluten, milk/casien, corn, soy bean, and corn) because I was sick all the time and it just felt normal or if my reactions are actually getting worse.

Even minute amounts kill me and I am sick for at least 24 hours, and it seems the larger the quantity, the longer the period of pain so I eat any new what I would consider safe food in very small quatities to wait for a reaction and if I don't have one, then I eat more just to be sure.

Just a little venting...I usually enjoy my food and life and am very thankful that I have figured this out so I can actually enjoy life again.

-Kate

HAPPY DOG SUZ Enthusiast

:unsure: Katie

What kind of pain were you in?

I was diagnosed w/fibromyalgia now celiac. Just trying to get a connection if there is one to my pain thanks Suzanne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kabowman Explorer

All digestive pain (along with fever, headaches, joint pain, fatigue) - the docs have checked to see if I have fibromyalgia and so far, I don't pass all 18 points. I am hoping that I don't develop the rest.

-Kate

Guest memoryofaspyn

I get really bad leg pain (in my muscles). Before I found out I had celiac I had them test my lactic acid. 2 years ago my oldest daughter passed away from a genetic condition called mitochondrial disease, and with it she had a condition called lactic acidosis. Since this condition is genetic, it was at first thought that I to had the condition and passed it on to my daughter. I have had sever muscle aches, especially in my legs and lower back all of my life. When I asked the doctors to run the lactic acid test, that is when they decided to also test me for celiac.

I have been searching high and low to find out if my daughter may have also had celiac, she was 8 months old when she passed away, and she only weighed 11 lbs, but with Mitochondrial disease it is common for children not to gain weight, but I am wondering since I was nursing and didnt know I had celiac, was she getting all the nutrition she needed? Did my celiac add to her already severe condition and make it worse? Sorry about the rambling, but I am searching for answers, I miss her terribly, and want to know all I can. we have another baby now who has a 1 in 4 chance of having the same condition, and I want to make sure we are doing everything we can to make sure she will be fine. if anyone is interested you can visit my daughter Aspyn's website at www.aspynblock.com

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,341
    • Most Online (within 30 mins)
      7,748

    Eppie
    Newest Member
    Eppie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin and low vitamin D. I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.