Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

:( Lost


katrinamaria

Recommended Posts

katrinamaria Explorer

ok so i need some advice/support/insight/comments/complaints :) ... i've been gluten free for a bit over a year now and am feeling SO much better; however, i do still struggle with bloating and a general "full" feeling quite a bit. i have a few alcoholic drinks every once in a while and i've noticed that the morning after i have a some "D" and then feel really good.... none of that bloated feeling and just a nice, light, "empty" feeling i rarely feel in my stomach/lower abs area. then i read that alcohol is a diuretic (sp?) and i guess it kind of made sense.... anyway, what does this mean?? i'll never feel that way without a diuretic? what's wrong with me.... :huh:

second, i'm considering doing the elimination diet to see if that helps, but i just don't know if i can manage it. i also don't eat meat and just plain don't know what i would eat! i'm so busy between classes and work and i live in the dorms so i have to have a meal plan...

i hope you guys can give me some direction, you all are amazing....thanks so much, in advance--


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

It is very possible that the alcohol that you are consuming contains gluten. I've only been gluten free for only a month, but grew up with a little sister that is a celiac. I know that she gets a potato based vodka that is safe. I know it's hard, since I'm the only one in the house trying to avoid gluten. I would check the alcohol to see it's contents. If it makes you feel bad why drink it?

katrinamaria Explorer

no, drinking alcohol doesn't make me feel bad at all. the day after i feel so much better because i don't have any bloated or full feeling and i'm wondering if it's because alcohol is considered a diuretic and what that means in relation to my body. if i'll never feel that way without artificial aid in that department or what?

lorka150 Collaborator

if you are still feeling bad, try the elimination diet. i can help you with meal plans, if you'd like. while i was figuring things out, i ate about 9 foods for about a year. i still generally stick to those. let me know

evie Rookie
no, drinking alcohol doesn't make me feel bad at all. the day after i feel so much better because i don't have any bloated or full feeling and i'm wondering if it's because alcohol is considered a diuretic and what that means in relation to my body. if i'll never feel that way without artificial aid in that department or what?

Here I am again..evie.. It may be that the alchohol does work as a diuretic and takes some of the fluid from your body. but there must be another way to get this fluid off besides alchol. whiskey is made of rye, beer of corn (sometimes) and some alchoholics have found that their drink of choice is made of a food or grain they are allergic to. Of course wine is from grapes and I do not remember the rest. could this be the case with you. Good luck and good health to you. :rolleyes: evie

tarnalberry Community Regular

I would look into other food intolerances, as you mention thinking about doing. You might also see if you're consuming much salty food (which would make a diuretic make you feel better afterwards).

larry mac Enthusiast

Gee, not being a doctor or a dietician, I don't have any answers for you, only some general questions for this thread.

Doesn't a diuretic make you eliminate excess water? It doesn't cause d (as a general rule) does it? Aren't diuretics prescribed for various ailments? It's just a type of medicine isn't it? Would it be bad necissarily if you needed to take it periodically?

I haven't read any scientific data suggesting that distilled spirits contain gluten, no matter what they're made from. Only beer, but of course everyone knows that. But even without the gluten, it could still mess up your stomach, couldn't it? All the while making you feel good at the same time?

best regards, lm


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmidge Rising Star

just an observation..my husband is celiac & does not drink hard alcohol only wine and it does not give him Diarrhea. When I drink brown liquors I get diarrhea and I don't have celiac. Something in it bothers me.

darlindeb25 Collaborator

Katrina--to me it sounds like you may be constipated, which can happen with other intolerance's. When you drink the alcohol, it gives you diarrhea, which in turn, relieves the constipation. Soy, corn, and rice cause constipation with me, which I might add, is as bad as having diarrhea, pain wise. I cannot drink any alcohol, including wine. It all makes me sick--terrible headache and diarrhea. I think you should try the elimation diet and try to stay away from alcohol for now too.

Betty in Texas Newbie

I hope you start feeling better I know I am a lot older than all of you but my GI dr told me it would take about 5 years to heal after I got on my gluten free diet for life . Because my insides were so messed up and he said never again no alcohol I been gluten free about 3 years and feeling better. I kept getting gluten untill I figured out the great tasting rotesery chicken in the stores has wheat in it for some reason doesnt makes sense . I cook my own now but it was so easy to go pick it up and cooks some veggies. by take care

GlutenWrangler Contributor

Katrina,

You should definitely get tested for other food intolerances. It could be the cause of fluid retention, which is why alcohol makes you feel better. I hope you feel better.

-Brian

  • 2 weeks later...
mollyacampbell Rookie

i hear you on the bloating issue - I hate hate hate that feeling and have dealt with it for a while, even before I was diagnosed and started feeling sick from celiac, I would get it "once a month" if you know what I mean. I also enjoy the feeling after a night of a few cocktails that I am FINALLy free of all that extra fluid that I otherwise carry around with me all the time - it's sick and twisted but I guess if one good thing can come of a hang over, that's all right. Anyway, after being diagnosed in August/September and trying to go gluten free but still having issues, I decided to try the Paleo diet and it was very successful. To follow it strictly is daunting and damn near impossible, but the best thing that came of it for me is that it has helped control the bloating better than anything else I've ever tried. I am pretty sure it's the elimination of grains and corn that is the main factor, but getting rid of the dairy is probably up there too. I think maybe you should try not eating grains for a week and see if that helps. I've actually read other posts on this forum where this works for others who've struggled with bloating.

Sorry you're feeling sick, I am totally empathetic with regard to the bloating issue. Try bigger pants until you have it under control, it's made a difference for me. I was miserable but at least the waist band was looser! Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.