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Katie618

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Katie618 Apprentice

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GlutenWrangler Contributor

Katie,

There are two possibilities in this situation. Acidopholous is a probiotic, and they can help to get rid of bad bacteria and toxins from your intestine. This cleansing process can last for 2-10 days, and cause cramping, bloating, headache, diarrhea, and constipation. Even though it is uncomfortable, in the end it is a good thing. I went through this process about a month ago, and even though it was rough for a few days, I felt better than ever in the end.

The other possibility is that your products are not gluten-free. Unless they clearly state they are allergen-free, it is a risk to take them. If you suspect gluten, call the manufacturers to see if it is included in the ingredients. You should also ask if the processing plant produces gluten products.

I'm actually going through a situation like this right now. I bought some L-Glutamine that my nutritionist recommended, and felt sick after taking it. I called the manufacturer, who told me half-heartedly that it was gluten-free. I know now that it does have gluten in it, but I've gone through hell because someone gave me the wrong information. So if you do end up calling the manufacturer, make sure you speak with someone who knows what they are talking about. I hope you feel better. Good luck.

-Brian

lorka150 Collaborator

Do you have any other sensitivies or allergies? I am allergic to onions, and I found out that I was getting sick as they were a filler in one of mine.

I agree about the aforementioned acidophilus. Mine, for example, gives instruction to 'ease' into it.

tarnalberry Community Regular

I vaguely recall iron supplements can cause problems, but I don't know the specifics.

rmmadden Contributor

Aside from double-checking to see that your supplements are in fact gluten-free.......Be careful with taking Iron. Some people don't excrete the excess Iron and it builds in the body's cells and can cause all kinds of bad things to the internal organs.

Best of Luck,

Cleveland Bob ;)

Katie618 Apprentice

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GlutenWrangler Contributor

Katie,

I would keep taking them at least for a few more days. If they still bother you, try a different type of probiotic. I use HLC probiotics and they work very well. I would say if you're not getting any better after ten days, switch and see if you feel better. Good luck,

-Brian


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ReneCox Contributor

what are HLC probiotics exactly? and where can you get them?

gfp Enthusiast
thanks for all your answers!! it has definately eased my mind! but do i continue taking the acidopholous? the effects of D are definately starting. i barely could finish dinner before i had to go to the bathroom... (yuck!! sorry for TMI!) my dinner was gluten-free, my supplements are all gluten-free. do you suggest i continue taking them? the acidopholous is about a 30 day supply...do i finish the bottle? or only take it for 2 weeks? i decided on my own to take them because i hear how good they are for ppl with celiac disease.

A bit of D is normal for probiotics ... but you shouldn't be taking significant amounts of iron unless you are deficient... its the number one killer suppliment. (literally killer)

GlutenWrangler Contributor

HLC probiotics are powerful, allergen-free, human derived probiotics. The HLC Intensives have up to 30 billion active cultures per capsule. They also have a line on special probiotics for celiacs called Mindlinx. They have special bacteria that can help to break down gluten and casein in case of accidental ingestion. I get them from RockwellNutrition.com. The service is awesome there.

-Brian

  • 5 months later...
terps19 Contributor

Hey Katie

Are you still taking the probiotics?

I had mad cramping, gas, and some D when I first started taking probiotics. I used to take VSL#3 until I found out I had trouble with dairy. I now take Custom Probiotic's 6 strain blend which has about 270 billion CFU's in a one gram scoop. I know that when I dont take it for a while and then take it I do get D that will last for a few days, but probiotics will most likely help you in the long run. If you still feel crappy for about 2 weeks I would reconsider (either get a new one or just quit them all together for a while).

tmk Explorer

i'm on prescription iron pills for anemia and it has made my diarrhea 10x worse -- i've tried 2 types -- one severely constipated me, the other increased my diarrhea -- i opted to keep using the one that caused diarrhea b/c i couldn't stand the stomach/back cramps from the other. good luck and hope you find out what's causing your problems!

Budew Rookie

For the last year I have had several suppliments suggested by my doctor. All except l-glutamine, coQ10, and probiotics have made me ill.

A couple weeks ago I did a spectracell analysis. Doc says I am missing the trinsic factors that make the body able to utilize the vitamins and minerals. Normal blood tests showed adequate levels but when checked, the body is unable to use several.

This condition causes the body to reject oral suppliments.

I begin injections today. Hope this helps.

  • 2 months later...
lilpup Newbie

Many people may tell you that this is a "cleansing process." I don't believe this one bit. I took a very expensive powdered probiotic blend (no additives/no cellulose capsules/no lactose-derived bacteria/etc) and I reacted very badly to it. My entire body went into immune response mode. I became very anxious, had muscle cramps, acne, headache, the works.

Think about it: you are introduce foreign bacteria into your body. In theory, it will do good things like balance your gut flora and make your digestive issues more bearable. But in practice, your body may react to the bacteria as foreign and may launch an immune response against it. I believe the possibility of a negative response is particularly a risk for people whose bodies are already dealing with gluten/food allergy issues.

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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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