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Sore Aching Legs

kristenroman

By kristenroman
in Related Issues & Disorders

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kristenroman Rookie
kristenroman
Posted

Hi! I`ve been struggling with sore aching legs, sometimes crampy. COuld that be mineral defficiency? Anyone have any experience with this? I have been gluten free for 6 months. THis began a couple of weeks ago. Thanks!

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Sophiekins Rookie
Sophiekins
Posted

There is an easy way to find out if it is mineral-related: eat bananas (at least 1 a day) or start taking a gluten-free potassium supplement. If the pain goes away, it was minerals. If the pain doesn't go away after a week or so, go and see your doctor.

bpritt Newbie
bpritt
Posted

I have had cramps and pain in my legs for 16 years, since my deep vein thrombosis (DVT) - a blood clot in the veins impeding blood from returning to the heart. I don't know if my DVT was caused by celiac, but it could be. My Johns Hopkins and Mayo Clinc doctors couldn't come up with any cause but this was long before my celiac diagnosis.

If you have DVT, other signs would be a sudden initial onset of the condition (1-2 days), and symptoms that are worsened by exercising the legs and lessened by resting and elevating them. If you have these symptoms you need to confirm with an ultrasound test and may be helped by clot-busting drugs. But hopefully you have something else. Good luck.

RIMom Newbie
RIMom
Posted

Has anyone experienced this with their Celiac Kids? My daughter (4 1/2 yr old) often says her legs hurt, especially at bedtime. Seems to be below the knees and above the ankles

Used to be that was the time of day her tummy hurt, now no more sore tummies, but sore legs.

Just wondering?

Gwendolyn Newbie
Gwendolyn
Posted

I had a lot of pain in my lower legs for a very long time until recently. I had read that it may be because of celiac, so now I eat a half of a banana a day and am taking Super Nutrition's "Simply One" for women, which is vegetarian and contains no yeast, wheat, gluten, buckwheat, sugar, pollen, dairy, corn or soy residues or any hidden additives.

I had pain a few days when I forgot to eat my banana and take my vitamin, so I just stick with it and have no pain, even when doing long jog/walk sessions of 6 miles. Earlier in November, I was getting pains in my calves, shins and ankles when exercising and they are now gone. I had thought it was shin splints, but it wasn't!

annacsmom Apprentice
annacsmom
Posted

Although my daughter is 18 yrs. old now, and newly diagnosed, looking back now, she used to suffer from very bad "growing pains" in her legs. Now I realize it was all from celiac. At one point she even underwent physical therapy for very severe pain in her knees. Oh, if we only knew then what we know now. Anyway, I don't think "growing" is supposed to hurt!

RIMom Newbie
RIMom
Posted

Thanks, now that I think about it, she eats bananas pretty much everyday with peanut butter. The few days her legs really hurt, I think we were out of ripe ones. In anycase, we haven't had any complaints for the past few days and she is eating her bananas.

She takes other supplements too, which I think helps.

Sarah

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flowergirl Rookie
flowergirl
Posted

I had pain in the muscles of both my legs (all my life) and medicated with magnesium /B6 supplement. Since going gluten free I haven't had one day of pain. My body seems to be absorbing what it needs from my food.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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