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hez

By hez
in Coping with Celiac Disease

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hez Enthusiast
hez
Posted

I am pretty sure I was glutened around Christmas. I have had the "D" ever since. Usually, when I get glutened the "D" lasts for about three weeks and eases up in the fourth. I am now six weeks into this and still feeling horrible.

So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

For those that have done something similar how quickly did the "d" disappear?

For those with intolerences, is "d" a symptom of an intolerence? Once feeling better how quickly did you react when a food was reintroduced? I am wondering if I am intolerent to dairy. Can intolerences be tested for?

The gluten-free diet is a breeze compared to this one. I miss my junk food. I am trying hard not to cheat and indulge in a gluten-free goodie.

Thanks for your help. I just am in a bad spot. I got used to feeling good!

Hez

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jlynn Rookie
jlynn
Posted
I am pretty sure I was glutened around Christmas. I have had the "D" ever since. Usually, when I get glutened the "D" lasts for about three weeks and eases up in the fourth. I am now six weeks into this and still feeling horrible.

So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

For those that have done something similar how quickly did the "d" disappear?

For those with intolerences, is "d" a symptom of an intolerence? Once feeling better how quickly did you react when a food was reintroduced? I am wondering if I am intolerent to dairy. Can intolerences be tested for?

The gluten-free diet is a breeze compared to this one. I miss my junk food. I am trying hard not to cheat and indulge in a gluten-free goodie.

Thanks for your help. I just am in a bad spot. I got used to feeling good!

Hez

I am VERY New to this myself and am on a strict diet. I would suggest eating brown rice with garlic everyday. Also start taking(if youare not already) a probiotic, this will help settled down an inflamed stomach mucosa. I also have "d" as a symptom of intolerance. My nutritionist has suggested drinking carrot juice as it helps to soak up the extra water in the gut. I am starting to feel better. I have had a few days of solid stool and I have been doing this for about a month. I also eat chicken, fish, sweet potatos and eat yogurt (plain)!!!! Hope this helps, and hope you get feeling better soon!!

lorka150 Collaborator
lorka150
Posted

This happened to me last year, and I could only down about 8 foods for about 8 months. Finally, I started to feel a little better. Have you tried an elimination diet? I was in a tough situation. Like you, I am casein free, but I am also allergic to buckwheat and rice, and some other foods.

Regarding the last poster's response, I would not recommend garlic. A lot of people get digestive trouble from it.

icmarmots Newbie
icmarmots
Posted

:o My Nutritionist would say to take gluten free digestive enzymes and high dose "live" probiotics.

Now when I get glutened I do both for several days.

Nancym Enthusiast
Nancym
Posted

You might want to check out paleofood.com, lots of eating ideas there.

hathor Contributor
hathor
Posted

...So I decided to cut out all processed foods to see if I could get myself better. Started the "diet" yesterday. I am trying to eat chicken/meat, vegies, fruits and eggs. Any other ideas on things I could eat that are dairy free and unprocessed?

...

I am wondering if I am intolerent to dairy. Can intolerences be tested for? ...

You can also eat legumes, nuts, seeds, and gluten-free grains.

One test for intolerance is simply to eliminate the food and see how you do. Enterolab has testing for dairy, egg, soy, and yeast intolerances, also. Some places test your blood (they may say it is for "sensitivities" or "allergies," rather than "intolerances"), but I'm not sure they are completely accurate. You might have to confirm any findings with personal experience.

hez Enthusiast
hez
Posted
  • Author

I think I am going to have to see the doc. It seems to be getting worse not better. It is just so frustrating! I have been gluten-free for almost two years and have been feeling great. I think this is really getting me depressed as well. Thanks everyone for your ideas!

Hez

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kbabe1968 Enthusiast
kbabe1968
Posted

Is it even possible you're continuing to be glutened by something and not realizing?

I just had a glutening because - before going gluten free, I spilled flour in my kitchen. I vacuumed it up. Well, when I went to change the bag (since going gluten free in on Jan1), I had a SERIOUS reaction because I actually breathed in the wheat flour. OH MY...I was sick for at least 4 days so far. And I just can't shake it. I think it's in the AC now....having hubby change the filter just in case.

Anyway....is it possible?

hez Enthusiast
hez
Posted
  • Author

Yes it is possible. I have been slowing going through the list of things I do. I have especially been looking at my shampoo and chapstick. I am the only one who is gluten-free in the household. So dh and I are going back through the routines to make sure I am not getting cc. It is just so hard to be this sick again. I hate it.

Thanks,

Hez

gfpaperdoll Rookie
gfpaperdoll
Posted

cross contamination is so awful...

I get sick from just touching something that someone else touched with wheaty hands - unless I remember to wash my hands before touching my food.

Maybe get your own little refrigerator to keep your food in.

Are you cooking in teflon pans or cast iron? cutting board - new? Only you use it?

Is there any flour in the house? If so, I would think that is the cause of your problem. Like the post above the flour poofs up & gets on & in everything - even your lungs & throat which goes down to your tummy. Anyone with celiac disease in a house that also contains flour - needs to just take the flour, container and all, & toss it in the trash. Bread crumbs are bad enough but there is no way that you will not get sick from flour.

hez Enthusiast
hez
Posted
  • Author

My dh does not use flour. Really the only gluten in the house is their cereal and bread. Everything else is gluten-free. Dh even makes gluten-free pancakes even though I rarely eat them :lol: We have seperate condiments and he can only have his gluten in one area of the kitchen.

I am just really struggling. I feel awful even on no processed foods. I have spent most of the day reconfirming that all the things I use are gluten-free. I am so hoping this gets better in a few days. I will see the doc at the end of the month.

Hez

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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