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Could It Be Something Else?


#1mommy

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#1mommy Newbie

I have been gluten free for 6 months now with no results and actually my BM's have gotten worse like undigested food. I still have stomach pain all the time. Something strang happened the other day I ate a meal and felt great. I was the first time in months that I was not running to the bathroom after eating. To my supprise I read the lable and wheat was one of the top ingredants.This was probable one of the only times I did not read first. I was told by a woman that has celiacs that I could have a corn alergy instead. I was diagnosed by blood test and biopsy. The lab that did the blood test had to look it up to see what the needed and said they had not ran that test before. Could they have done the test wrong? I don't understand why there was so much difference.


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CarlaB Enthusiast

If you were diagnosed with a positive biopsy, you have it!!! Sometimes celiacs have a delayed reaction to glutening and sometimes they become more hypersensitive with a small amount. It's like when you're getting a lot of gluten, your body can't do anything about it, but when you get a small amount, the body wants to eliminate it immediately!

My first guess is that you're getting hidden gluten from somewhere.

My second guess is that you need to cut out dairy until you're healed.

Flor Apprentice

Are you eating soy?

ravenwoodglass Mentor

In addition to the other great advice have you eliminated non food sources of gluten? Things like shampoos and toiletries, gluten in hobby or craft items like paints, clays and glues, remodeling stuff like drywall and compound or wallpaper paste? Sometimes as we heal we become more sensitive to hidden gluten aroung us. I kept making myself sick with a shared can opener and pet food, took me over 2 years to figure that out. I hope you get some relief soon but as another poster said with both bloodwork and biopsy positive there is no doubt you are not handling gluten. You also may want to have the blood tests run again, since you did show positive they will be a good indicator of how gluten free you have been.

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    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
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      Would it be rude to ask your age?
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      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
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