Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pocono Buckwheat- Anyone Tried It?

oceangirl

Recommended Posts

oceangirl Collaborator
oceangirl
Posted

Hi again.

Has anyone tried Pocono (brand) Kasha buckwheat? It claims it's gluten-free; their web-site claims dedicated lines and all but I'm always nervous about eating a new thing. I'd just like to add another grain besides rice to my diet. Any advice is greatly appreciated. I have the "organic roasted buckwheat groats- cracked granulation".

Thank you!

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I eat their buckwheat all the time. My favorite is their cream of buckwheat, it tastes very close to cream of wheat and is pretty high in protein. They are a good company with a great product line.

oceangirl Collaborator
oceangirl
Posted
  • Author
I eat their buckwheat all the time. My favorite is their cream of buckwheat, it tastes very close to cream of wheat and is pretty high in protein. They are a good company with a great product line.

Ravenwoodglass,

Thank you so much! When I get over this last glutening, I'm going to try it!

lisa

jayhawkmom Enthusiast
jayhawkmom
Posted

I also LOVE the Cream of Buckwheat!! Very tasty!! I eat it for breakfast often!! =)

oceangirl Collaborator
oceangirl
Posted
  • Author
I also LOVE the Cream of Buckwheat!! Very tasty!! I eat it for breakfast often!! =)

Jayhawkmom,

Thank you for the tip! I'll check that out!

lisa

ravenwoodglass Mentor
ravenwoodglass
Posted
Ravenwoodglass,

Thank you so much! When I get over this last glutening, I'm going to try it!

lisa

If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal. I hope you feel better soon.

oceangirl Collaborator
oceangirl
Posted
  • Author
If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal. I hope you feel better soon.

Thank you, Ravenwoodglass. It's nice to hear a few words of encouragement as I am having my first "sustained" glutening, (meaning I can't seem to get it to stop even as I eliminate any and every suspect thing) in awhile. This is the sixth day of unabating symptoms and even worsening symptoms and I'm really fed up. Sometimes I think it'd be easier just to remove my stupid intestines altogether, but I'll try not to dwell on that. Thank you for your help!

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you, Ravenwoodglass. It's nice to hear a few words of encouragement as I am having my first "sustained" glutening, (meaning I can't seem to get it to stop even as I eliminate any and every suspect thing) in awhile. This is the sixth day of unabating symptoms and even worsening symptoms and I'm really fed up. Sometimes I think it'd be easier just to remove my stupid intestines altogether, but I'll try not to dwell on that. Thank you for your help!

lisa

After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual stuff just a worse case. Always better to be safe than sorry if you can. Meanwhile you may want to do a modified Brat diet that I call the BRA, bananas, white UNFORTIFIED plain rice and applesauce with no additives or homemade. I really hope you feel better soon.

oceangirl Collaborator
oceangirl
Posted
  • Author
After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual stuff just a worse case. Always better to be safe than sorry if you can. Meanwhile you may want to do a modified Brat diet that I call the BRA, bananas, white UNFORTIFIED plain rice and applesauce with no additives or homemade. I really hope you feel better soon.

Ravenwoodglass,

Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...

Thank you so much again,

lisa

ravenwoodglass Mentor
ravenwoodglass
Posted
Ravenwoodglass,

Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...

Thank you so much again,

lisa

I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it once in desperation and it seems to work for me. It's all I take now. I hope you can figure out what is getting you. It can be a real search sometimes. It took me 2 years to realize that my can opener was getting me.

oceangirl Collaborator
oceangirl
Posted
  • Author
I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it once in desperation and it seems to work for me. It's all I take now. I hope you can figure out what is getting you. It can be a real search sometimes. It took me 2 years to realize that my can opener was getting me.

Ravenwoodglass,

Holy mackerel! Yes, the old CAN opener- YIKES! Thank you- I am going to buy some St. Joseph's tomorrow. You have been very kind. Yes, I'm hoping to get to the bottom of this soon!

Thank you!

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,599
    • Most Online (within 30 mins)
      7,748
    Jose Mojena
    Newest Member
    Jose Mojena
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Found coffee or coffee pods that contain gluten

      By trents · Posted

      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Found coffee or coffee pods that contain gluten

      By linnylou73 · Posted

      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Thank you! Very helpful.
    • Scott Adams
      Helping child go strict gluten-free and concerns about growth/height

      By Scott Adams · Posted

      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...