Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me With My Back Ache!


chatycady

Recommended Posts

chatycady Explorer

I've been gluten free for a week, but still have a back ache. It actually seems worse. Any advice or suggestions would help.

Thanks

chaty :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

chaty:

I have had a chronic backache for many years. My doctor told me that my IBS and chronic backache were two different issues.

After years of complaining and celiac was triggered ( he was clueless about what was going on), he sent me to a gastro guy who did the endoscopy. My biopsy indicated Celiac.

Since gluten free, I no longer have a chronic backache. I think that my intestines were inflamed constantly.

Give it a month or so TOTALLY gluten free and see how you feel. It does take some time to heal.

Make sure you are completely gluten free, including your cosmetics and shampoos.

Hope this is encouraging.

kbtoyssni Contributor

A week isn't very long. Healing often takes time. Probably not what you want to hear, but give the diet a few more weeks to work its magic. It stinks to have to wait a few more weeks now that you *finally* have an answer, but things will get better.

VioletBlue Contributor
I've been gluten free for a week, but still have a back ache. It actually seems worse. Any advice or suggestions would help.

Thanks

chaty :(

Hi Chaty. I'm new here. I've been gluten free two months or so, maybe longer. Mine was a gradual descent into gluten-free as I kept accidentally glutening myself the first few weeks, LOL.

I had no clue my back pain was in any way tied to the gluten intolerance until one day last week when my sciatica started to act up. That was when it hit me that I'd been without back pain for over a month. Near the end there the back pain got to be a constant daily thing. Now it's just an occasional sciatica attack and even then it's short lived and less intense than it used to be. My range of motion has improved too. I also take glucosamine supplements, which now work a lot better than they used to. So maybe you just need to give it some more time.

violet

Ursa Major Collaborator

My awful backaches used to not only be caused by gluten, but by dairy, rice, soy and eggs as well. As the others said, it could just be that you're too impatient, and that your backache will clear up soon. It is also possible that you need to eliminate other foods (dairy and soy are the most likely ones to be your problem, as these are most common with celiacs).

Try eliminating dairy for starters to see if it makes a difference.

I hope you'll feel better soon, it is hard to do anything with a terrible backache.

Cruiser Bob Newbie

My body has been aching way more than I think it should for my age/condition/activity for over 3-4 years now. The Sciatica has been 12+years and my right wrist is always in pain. That's on a gluten-free, DF, Egg free, Nightshade free, chocolate free, coffee free diet.

I'm convinced things are intermixed: Celiac, RLS, Insomnia, body pain, energy level.

So, now with a new job (decent insurance). I'm working on things and we'll see what I can figure out. New Iga, Ige test results will be in soon and I visit a Nuerologist next week - I assume there will be a full blood work. And in April I'll be doing some more Energy work. Between the non-traditional and traditional medical I should find out some more information on what is going on with my system.

Bob

gluten-free 1999

chatycady Explorer

Thanks everyone. I just wasn't sure my backache was related to celiac. I will wait ... impatiently. I realize now I must give up dairy products as that may be causing some of this too. Your encouragement is wonderful!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



alyssasgabby Rookie
Thanks everyone. I just wasn't sure my backache was related to celiac. I will wait ... impatiently. I realize now I must give up dairy products as that may be causing some of this too. Your encouragement is wonderful!

Hi there! I'm a Newbie, but wanted to let you know how much I can relate to you! Just before my Celiac diagnosis, I was also dx'd with a Cyst on my right kidney and a stone on my left. Combined with the Celiac symptoms I was miserable. Are you sure that your back pain is not from another cause? Don't want to alarm you, but make sure you let your MD know your symptoms. Hope you feel better soon!

johnsoniu Apprentice
Thanks everyone. I just wasn't sure my backache was related to celiac. I will wait ... impatiently. I realize now I must give up dairy products as that may be causing some of this too. Your encouragement is wonderful!

On the bright side, you may be able to try to re-introduce dairy later, after you've had some time to heal up. Depending on how much damage was done before you went gluten free, dairy is often the hardest to digest when you start the diet, especially if it's from whole milk or another high fat source. Hope the backaches clear up soon.

MaryDawn Newbie

Hi I'm new to this..I was diagnosed with celiac in June of 02.I was really sick and lost alot of weight was anemic the whole bit..Then i found out I was pregnant.Couldn't gain weight kept losing , I had to come off my diet. he is now 4 years old and well I'm just getting back on it..So this is all new to me...I wasn't really sick just tired .I went to the Dr last week she sent me for blood work and well I'm Severely Anemic and I have damaged my liver so I am really upset with myself..What was I thinking...I may need a transfusion I will know in the next week or so when I go for my second round of blood work..I also have to have an ultrasound of the liver to see how much damage I did do..How selfish was I ..I have 2 little boys to think of and I thought about was myself..I need allot of help here i have been living on rice cakes and meat and potatoes for the last couple of weeks. I don't know what else to do i called the support group in my area last week and she still hasn't gotten back to me..I really need to talk to other people who have this...No one seems to understand me. they think I'm going on the Atkins diet.Anyway any suggestions on a menu would help a whole lot...

VioletBlue Contributor
Hi I'm new to this..I was diagnosed with celiac in June of 02.I was really sick and lost alot of weight was anemic the whole bit..Then i found out I was pregnant.Couldn't gain weight kept losing , I had to come off my diet. he is now 4 years old and well I'm just getting back on it..So this is all new to me...I wasn't really sick just tired .I went to the Dr last week she sent me for blood work and well I'm Severely Anemic and I have damaged my liver so I am really upset with myself..What was I thinking...I may need a transfusion I will know in the next week or so when I go for my second round of blood work..I also have to have an ultrasound of the liver to see how much damage I did do..How selfish was I ..I have 2 little boys to think of and I thought about was myself..I need allot of help here i have been living on rice cakes and meat and potatoes for the last couple of weeks. I don't know what else to do i called the support group in my area last week and she still hasn't gotten back to me..I really need to talk to other people who have this...No one seems to understand me. they think I'm going on the Atkins diet.Anyway any suggestions on a menu would help a whole lot...

I'm so sorry you're going through so much. I seem to recall a couple threads here somehwere that helped me on what people were eating with sample menues. I eat rice cakes with peanut butter a lot. Trix believe it or not is gluten free. Hardboiled eggs are a great little compact food as are eggs of any kind as long as you're not allergic. Fruits are good, fresh vegetables. Chinese rice noddles are yummy. Thai Kitchen makes them in little packets just like ramen only they're gluten free. Thai Kitchen makes a lot of good rice noodle products. Gluten free baking mixes are great for things like pancakes and waffels and muffins. Some of them don't taste half bad. You can usually find them in organic stores or on line.

I have a couple of what I call last resort foods that I keep around when I cannot figure out what to eat. I always have a bag of Fritos around. They're corn meal corn oil and salt. Gluten free. A lot of other brands of corn tortilla chips are too, you just have to read the ingredients to make sure. Most corn tortillas are gluten free as well. I also keep around a container of sour cream to dip my Fritos in. I've started keeping slim fast shakes in stock because they're gluten as well as lactose free and an easy choice, though somewhat expensive. Read some of the other threads. I think there's one under the Coping With heading on what to eat for breakfast that might help.

Please go easy on yourself. Everyone does the best they can every minute of the day. No one ever sets out to do their worst. If you can forgive yourself for what you didn't know would happen it might take some of the stress out of it for you.

violet

chatycady Explorer

Don't fee bad about the anemia. I went a long time before they diagnoised my pernicious anemia. They were talking about giving me a transfusion also, but I bounced back after B-12 shots. I had kids in grade school and high school and missed out on all their activities as I was too sick to attend them. Dr. asked me if I was depressed! Only when I turned yellow did they finally take me serious.

I even fainted a few times, and they sent me to a heart dr who told me I needed to just stand up slower so I wouldn't faint. Ridiculous!

Now it appears I may have another issue, possibly celiac. I go this week to an gastric guy. Who knows what he'll say....

Anyway, my backache has slowly gotten better. I'm two weeks gluten free. Thanks all! I actually was out brushing my ponies. They are shedding so Spring is very very near! Maybe I'll feel well enough this summer to ride again.

Chaty

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,650
    • Most Online (within 30 mins)
      7,748

    Alexandersgirl
    Newest Member
    Alexandersgirl
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
    • Julie 911
      Good day! New members here and I have a question about medication. My gastroenterologist made me stop some medication during the gluten challenge beforenthe screening test but I have a little surgery tomorrow and I need to know if I can use tylenol for half a day or if it will give me false results using it.   Thanks 
    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.